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Amyuser

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Everything posted by Amyuser

  1. Most people end up going thru Urodynamic testing and other fun ( and I mean that in the worst way oossible) catheters and sensors in your bladder and butt and then cameras and such to investigate why you are Incontinent, it's a very rare thing for a doctor to say well he leaks get him diapers and have a good life .Most urologists feel that diapers mean all their schooling and training is failing them and take it kinda personal, the usual deal is tests and pushing and endless array of drugs at you to "help" you , lots of side effects that suck and invasive tests and cameras into your bladder all in the name of "helping". You might have an easier time playing the spectrum card but it is by no means a guarantee and alot depends on the ego of your doc and how long you have seen them as a patient. It's usually the really old Docs or the very young progressive docs that let it slide without starting the spanish bladder inquisition, the old ones will give you room to grow "out of it" or "it's just a phase type thing" and the real young ones lack experience and just take it for face value and realize wearing diapers are not the end of the world. It's for you to decide Wether to gamble with the parents not freaking out, and the doctor being mercifully and not putting you through the whole ten yards of tests, Good luck on whatever you choose. Sent from my SM-T810 using Tapatalk
  2. It's not cold here anymore it's going to be 88 thank God! Now what did I do with my bikini cut diapers Sent from my SM-T810 using Tapatalk
  3. You can't go wrong with a heavy or super heavy weight cloth nite diaper with a pair of rubber bloomers over top, bloomers are the best protection money can buy for laying down. Sent from my SM-T810 using Tapatalk
  4. Why are you not making a Stent out of a silicone Foley, or an old red rubber rob Nelly wouldn't that be easier to do? And if you did become actually IC insurance would pay for your diapers,I get three cases of ATN'S a month provided by my insurance company. Sent from my SM-T810 using Tapatalk
  5. Actually as far as meds that can cause IC you are far more likely to trigger IC with Tamulosin in both its regular strenth and in overdose than with any benzo's, Tamulosin specifically relaxes the bladder neck and such however at its regular prescription strength many people develope Ortho static hypotension and discontinue use due to it,let alone exceeding that dose,you will guaranteed wet yourself if you can not stand up in order to stagger to the bathroom, a wet bed or diaper is the only outcome . Sent from my SM-T810 using Tapatalk
  6. From my own experience it very well could be your prostate mine stared going south in my twenties so age does not neccasarly figure in,although getting older is definitely a side effect of life, it would probably be a good idea to have some lab work and a digital rectal exam when you have the money to go to the Doctors.
  7. Becoming a DL was my "happy ending" after being Incontinent for 20+ years, I started to look for ways to make it less a chore and a burden, I'm still Incontinent and it still sucks but my outlook has changed. As has been said getting a therapist to work through and on these issues can be done, and certainly renting a low cost hotel room every now and then can be done even cheaper until that becomes known and the results to your family life are shall we say less than optimal, your best bet well this is a fantasy and "optional" is to take the time to acknowledge and accept it and integrate it into your life as a positive thing rather than a negative consequences of having it enter your life because your secret self and your public self will eventually collide and cause you misery, you are in what I consider the prodromal phase were you still have the ability to accept, explain and intergrate this into your life , as has been said it is not a crime in any way or anything people are going to recoil and find sick or deviant if it is gently addressed in positive way with your loved ones, the trick is to get your personal "house in order" with a therapist who can help you explore why and how you feel the way you do, and help you accept it ( your self acceptance needs to be in place BEFORE revealing it to your family or friends) this is needed in order for anyone else to accept it for what it is, some guys dream of Ferrari and Porsche's in the garage, Women read harlequin romances and dream of being in bed with Fabio , you will settle for a little diaper time ,nothing wrong with that as long as it's handled that way rather than being a bombshell dropped in your life. Yes being Incontinent is a nice easy clinical solution, it answers "every question" and "demands respect" or any competent Attorney will get the respect out of their wallets. In reality just accepting yourself and introducing and integrating your fantasy side with your family life is a lot easier ( it seems daughnting and huge until you realize it's feelings and emotions, we all have them yet adults try and deny them and claim they are vanilla when most people are spumoni (van,choc,straw) when it comes right down to it addressing your feelings and then sharing them with your loved ones and creating a supportive accepting environment, is child's play compared with life in the closet, keeping a secret and trying to live a double life turns into a rocky road all because we won't accept ourselves or give anyone else the knowledge and ability to accept us as we are. We are all imperfect we all have failed hopes and impossible dreams, You accepting You could lead to a happy life and a happy wife, your sharing may bring out your wife's desire to be spanked by the postman ( who happens to have a diaper on behind his mailbag )trust me your wife has thoughts and feelings of her own that she may be interested in exploring and having her needs realized and accepted she just hasn't spoken of them with you yet, so opening a dialog on the subject could bring both more happiness and closer than ever. Like Forrest Gumps mom said life Is like a box of chocolates fruits nuts flakes and some cremes you never know what you're gonna get, having a diaper desire isn't strange or unusual when you think about it, like I'm fond of saying the young and the old usually need them, the people that wear them in between are just adopting that need earlier, treat it like a unique gift rather than a unique curse and so will everyone else . Sent from my SM-T810 using Tapatalk
  8. Well leaking every ten minutes by most urologists standard would get you a bag and condom cath if you are male, females would be issued diapers and men leg bags, simply because to insurance companies it is far simpler to send you to PT for "repoty training" like they do after TURP ( Trans urethral resection of the prostate)and teaching you "timed voiding" and lengthier ability to hold rather than pay for a lifetime of crappie diapers unless you have both types of IC such as IC & functional IC ( functional IC is when either your bodies normal signal for "I have got to pee" is to short, or due to a physical limitation you can't access the toilet such as those of us in wheelchairs) or a combination of stuff with OAB, Prostate, Neurogenic bladder or Bowel, basicly a dual designation of IC & FIC means you are hopelessly devoted to diapers for life, a Neurogenic bladder is there term for bladder dysfunction caused by something else in your Neurological system is the root cause they believe but nailing down what it is, is any bodies guess ( such as one of the 40 known variety of muscular dystrophy, there are also several things they suspect as being a dystrophy but not enough research to prove it yet) and frequently Neurogenic bladder as well as Bowel results in both retention and flooding,those affected never completely empty as well as have very cloudy urine as well as frequent sediment in their urine from being retained in the bladder for long periods this frequently results in people both needing diapers and cathing multiple times a day ( I am up to 5 X s a day, the most I am aware of is eight times a day .*day* being 24 hours ) if you can't tell I have a mix of personal experience and educational training in many areas of medicine which has aggravated and alienated many a physician which has resulted in me both getting some really top of the line doctors and some really AWFUL ones. A large proportion of people with Bowel IC control a majority of leaking by doing morning enemas of tap water to empty as much as possible at once to limit the amount of volume of stool in their systems to have accidents with. There are many more flavors of incontinence than 4 and no flavor being a choice one. Sent from my SM-T810 using Tapatalk
  9. Leaks are a fact of life when IC, you can't get perfection in protection . your just have to accept that leaks happen,and plan accordingly. Sent from my SM-T810 using Tapatalk
  10. You have impeccable taste I wear the U 3 with "blue ice" custom high rise ,I use velcro because of my disability, wrapped elastic on waist and legs and I bought my own patterns for pull on and snap on to, every pair is just like the last,however they have been going strong for 9 years Jeannie and Howard do a great products and really care about each and every customer. Sent from my SM-T810 using Tapatalk
  11. Look at American Jean's on the net they made me custom pants to accommodate my Angelfluff U 3, many colors of denim and can be cut to leave room for diapers. Sent from my SM-T810 using Tapatalk
  12. Dr.Bronners peppermint castile soap good for cleaning, enemas, douches what ever get the big bottle you will love it. Sent from my SM-T810 using Tapatalk Has anyone tried a grade school volcano baking soda and vinegar and let it foam up and out. Sent from my SM-T810 using Tapatalk
  13. Yeah I wouldn't know what to do with my waste if I was cured tommorow and would probably go into a fugue state denying that the factory equipment was working. I wonder if catatonic patients have visions of adult diapers in there head. Sent from my SM-T810 using Tapatalk
  14. There are some Bambino's cloth diapers I have seen but I doubt those are related either. Sent from my SM-T810 using Tapatalk
  15. My right arm and hand from the shoulder down was paralyzed for five years ending in 2010 I got partial use back , last alot of muscle and my elbow is Contracted as well as my fingers because it was never splinted to preserve function. It certainly made diapering a chalenge best to use a cloth type back with velcro closure rather than tape and wear some rubber or plastic pants over top to catch any bad taping leaks. Sent from my SM-T810 using Tapatalk
  16. I am IC however I have been diapered for 24/ 7 going on 25 years, I have had like one rash and that was in ICU so the nursing care caused it not my own disregard for hygiene. Sent from my SM-T810 using Tapatalk
  17. I care 5 X 's a day , I can cath myself faster than my urologist or his nurses, as he says though 5 X 's a day for the last eight years I should be able to do it hanging from the ceiling like a bat. If you have trouble getting in remember to always cath lying down ,it removes the s curve out of your urethra, also if you have trouble with your prostate get a coude cath this has a special tip , just find the raised dot on the end of the cath it tells you how you twist it to get least resistance. Also for beginners Do Not Get a Large Ballon 30 cc will be about the size of a plumb whereas the 5 cc will be about the size of a grape. If you have never done this before get some intermittent disposables that you can practice with, it will get you comfortable with the technique only difference is no Ballon to retain it , try inserting one 2 or 3 times a day for a week this will prep you and the urethra and get you comfortable with doing it, I also recommend that your intermittent be hydrophilic it will be slicker than snot right out of the package, when you go to use KY again it will feel like rubber cement. The silver coated silicone is the best for long term retaining the silicone heats up to body temp and becomes very flexible while the silver coating prevents encrustation and infection. DO NOT USE A 12 FR that is pediatric and will be to small and cause some discomfort because it rattles around in there 14 FR or 16 or 18 is what you want to start with and what's used most often for surgery insertions , there is a big difference when you go above a 24 FR and aside from stretching yourself out there is no real benefit to going bigger and anything above an 18 FR is today considered to be barbaric in the medical community, they used to slam a huge one right in when you needed it however very few situations actually derive any therapeutic value ( of course intimidation by a crazy nurse is always possible because a 30 FR is like a telephone pole up little junior). Never inflate your Ballon with air use saline and do not overfill, over filling is reserved for retrieval should the valve be stuck you can blow the thing up and remove it that way. Clean the glans well with iodine, wear gloves and if you lubricate the first inch of the catheter ( don't worry the standard length is 16 inches) it will slide in easily , when removing the cath from the package sometimes it helps you control the cath by wrapping thru your fingers for better grip, insert until it can not go any further in this will make sure it's totally in and after Ballon inflation give it a gentle tug to get it seated in its normal position, it is fairly common for the Ballon to cause occasional bladder spasm ( it will literally be trying to force the Ballon out) Most important of the whole thing is be calm and enjoy, if anyone has any questions or I can help you find something from products to knowledge just ask . Sent from my SM-T810 using Tapatalk
  18. Years ago when I was going to give aquatherapy a try, the therapy pools are small so I had condom Cath's attached to a bag that was just going to float in the pool, however the aquatherapy got cancelled because we found out exercise was very very bad for me, among the stuff wrong with me is Degenerative Disc & joint disease ,narrowing and stenosis of the spine and C5-C6 is bulging on my central cord,and foraminal tearing. It was my muscle diseases that stopped the aquatherapy because every time I use my muscles is the sooner I die and my doctor said the trade off was not worth it considering I take opiates due to the muscle diseases anyway,hastening my death in order to maybe use a microgram or two less Fentanyl was not worth it and I must say I agree. Sent from my SM-T810 using Tapatalk
  19. Yeah having been a Paramedic in N.Y. seen lots of patients in every manor of clean and dirty underwear and diapers, you need not worry unless you take a crap in the diaper at the Hospital for no reason. Sent from my SM-T810 using Tapatalk
  20. I had a stroke in February and when the Nurses would come in to change me they saw my wounds from being shot years ago , so when the order for an MRI came up the Nurses came in and asked where the bullets were, I said what bullets they said the ones you were shot with, I said holy crap these are some good drugs I did not even know, they said not now but we saw the wounds from when you were and had to make sure they were removed otherwise they would tear you up, it was pretty funny at the time. Sent from my SM-T810 using Tapatalk
  21. If you are training to wet at night also remember that your body will wake you to pee, however if you do not move and let it go the body will soon realize it's waking you up for nothing because you wake up don't move and pee and go back to sleep,it will stop waking you up because you don't get all crazy about dealing with it, you just relax and pee. Sent from my SM-T810 using Tapatalk
  22. I used to run marathons, before I was in a wheelchair. And as one of my Hobby is Amateur radio I have worked both the NYC Marathon for 5 years and had so much fun that for 4 years I also went and worked the Boston Marathon, Point of fact the NYCM is the largest Amateur radio event in the country that is coordinated and operated by the dedicated all volunteer army of radio operators who donate their time equipment and talent to ensure everyone is as safe and cared for as humanly possible. Two of the years I did I worked the "recovery and medical area" and you would never imagine the number of runners who wear diapers, I saw so much protection in that one day of the year than me and ten friends wore in a year ( and we are all 24/7 ,
  23. You can get some awesome 12,000mah portable charger/battery back up many places, they are charged by USB and then when your phone tablet or phablets you just use a USB to lightning or USB C to micro USB whichever fits your device, have fun! Sent from my SM-T810 using Tapatalk
  24. Well AB your plan is going to portray the IC people in a bad light, and is inconsistent with the conduct of the IC, they hotel staff will be talking about the weirdo in that room, you have no expectation of privacy and no recourse if someone from the staff complains about your conduct amongst thrmselves or to other people. I was in minnesotta on a trip and had never stepped foot in the state before, my wife felt sure i had alot of friends but figured nobody in the state eould know me, we ran into three people that i was friends with,so in this day and age of "social media" and such you will truly never know all the connections among your friends and aquaintances or those of your employer. Be respectfull and discrete,they have probsbly had thousands of IC people stay there and know from first hand experience how they conduct themselves and manage thrre condition, you will stick out and be talked about because your actions will be counter to all the other guests they have had. You may embarrass us all be it ABDL or IC , if you would not do it in your home community,you should not do it somewhere else, because we all live somewhere.
  25. Cloth diapers will feel wet they are not like disposables which feel dry, you need to wetbyour cloth diapers until they start leaking , then you will know how much they hold,then as you add inserts do the same thing so you will know what to expect from any particular setup.
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