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mick_dl

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  1. There can be various reasons why this happens. It is often due to hemorrhoids, but there are also many other reasons why this can happen. This can usually only be properly clarified with a 3D endosonography and a vector volume manometry if the proctoscopy did not produce any clear findings. Unfortunately, both are examinations that a normal proctologist rarely performs. It is usually better to look for a hospital that has a pelvic floor center that also specializes in bowel problems. You can significantly improve the problem by eating less fiber and, for example, taking psyllium husks in the evening before going to bed. Pelvic floor training also helps.
  2. So far I have not experienced that a cashier has asked me funny questions or laughed. However, this thread reminds me of a commercial for the prevention of AIDS that once ran in the 90s in Germany. The slogan "Tina - how much are the condoms" is still known by many...
  3. Hello foreverdl, a glucose value of 130 is too high - but the more important value is the HbA1c value, i.e. the long-term glucose. The point is - the bladder and foot problems are most likely related to the spine. Ultimately, it's a question of cause. Either the nerves are damaged by compression or by neuropathic inflammation. The result is more or less the same, but the treatment and prognosis are different.
  4. Hi foreverdl, Yes - numbness in the feet is usually the first thing to go. In addition, there may be poorly healing wounds, because you do not always notice when you hurt your foot - moreover this can also include muscle pain. If nothing is done about the sugar levels, other deficiencies are often added, starting from the bottom - e.g. muscle weakness, so that you can no longer walk properly or keep your balance. Sooner or later the bladder is also affected. The development of the bladder usually goes from overactive to flaccid. This means that in the final phase urination is no longer possible and the bladder must be emptied with a catheter. What is your HbA1c if I may ask?
  5. Hello foreverdl, diabetic neuropathy is often visible on an MRI (at the latest in the late stages), and it can also be detected with an SSEP / EMG on the affected nerves. Anyway - usually the feet are affected first. The bladder, but also the eyes or the heart come later if you do nothing - and if it affects the heart, it is life-threatening... And the tests are not that bad. The problem is rather that you have to lie quite relaxed while the nerves are stimulated for the measurement (small electric shocks) - if you move, you don't get any results, especially if the entire spine is measured.
  6. Well - there is a difference between a diagnosis and a _founded_ diagnosis. You get a diagnosis of OAB when you tell the doctor the right story. A confirmed diagnosis you sometimes don't get at all, because you can't find out the cause clearly. Normally, at least one urodynamic examination is necessary for a confirmed diagnosis. If there is a neurogenic disorder, other examinations (e.g. SSEP, pelvic floor EMG, etc.) are also necessary. The urological societies of the countries have published clear guidelines on how to proceed with the diagnosis. Normally, urologists adhere to these guidelines. The GP‘s sometimes do not.
  7. Hi Rue Rue, So I would really take this seriously if I were you. I had an accident many years ago in which several intervertebral discs were compressed. I had a lot of pain and no feeling in some of my fingers and parts of my legs. The whole thing improved after a few months of physiotherapy and sports. And then it disappeared completely. I didn't follow it up until my inco (which also had other reasons) got worse some time ago. I searched a lot until someone came up with the idea to do another MRI of the spine because I also got strange calf cramps and the feeling in one leg was gone again... Five intervertebral discs are now pressing the spinal cord together in different places of the spine and are the cause of the problems. If I had had the operation right away, I would probably have a good chance of getting it under control again. Unfortunately, I didn't - and now I have to live with the crap... It can still be operated - but no longer minimally inversively and the chance that they do more damage is present. The already damaged nerves can no longer be repaired - in this case it would only be a matter of preventing me from ending up in a wheelchair...
  8. Hmm - sorry but this is a strange question for me. Ether your incontinent or your not. If you are incontinent you have to wear and better discuss this with your doc. I have all my appointments in diapers because I don‘t want to stay there in soaked trouser. Docs see this every day so I’m honestly more scared to go to a gym as to a doc… But anyway - if your wetting starts with the flare up of your back injury this might be critical and you better check this as fast as you can with a neurosurgeon because this is a emergency situation. If the spine is really the reason and you wait to long your this may cause irreparable damage to the compressed nerves.
  9. Well, I'm not in a wheelchair, but I know some people who are. If you still have some control over your bladder, you usually try to maintain it. Of course, there is also a functional incontinence that arises, for example if you could’t reach the toilet fast enough due to your disability, but the people I know there take a foldable urine bottle for such a case. Diapers are not so popular. I do not know where there is something like that in the U.S. - in Germany you can get it here, for example: https://www.cbf-da.de/cbf-webshop/faltbare-urinflasche.html
  10. Hi Jack, did the Rezum treadment worked well for you and does the flow values get better afterwards and how much? I‘m pretty interested in results because I‘m also think about to apply for this procedure in stead of TURP. It seems that there not that many people out who have personal experience with it - especially if it it comes to the longterm effect. So I would be happy if you can tell me a little more about your experience with it. THX Michael
  11. Hi Brian, Thank you for your detailed mail. I think there are indeed some - especially older people who have continence problems and are poorly cared because they either do not want to admit the problem or do not seek help because they think that's just the way it is. People who are affected by incontinence and have a job can hardly afford such a posture and wet pants and will choose a suitable aid. I mean - that's why these things are called "aids" because they try to compensate a disability. It's just like you say - it's good that you can choose between many different aids. In the end, everyone has to decide for themselves what works for them best and what does not. For me it was - despite my "history" also a process and I can say that despite my DL experiences when this started I definitely did not want to run around in diapers. I used as long as it was possible pads because they were in some respects better to handle. When that was no longer possible, I tried it with condoms catheters - unfortunately with moderate success, although I found the things actually already practical. Later, due to problems with my spine, I developed fecal incontinence and my urinary incontinence got worse, so I could no longer do without diapers. Nevertheless, I was and am really glad that there are now many discreet functioning aids available with which this can be compensated, because otherwise I could not continue to work and that would have been really bad. However - a realization was that many worries regarding the perception of the situation really take place almost exclusively in one's own head. The more problems you have with your own situation, the more you believe that others feel the same way. But this is almost always wrong. Personally, with very few exceptions, it has not happened to me that people - when they have learned about my health problems - have not appreciated me. It is rather that they want to help somehow and are sometimes a bit disturbed when they begin to understand that there is no easy solution. When people are confronted with disability, it often causes uncertainty and fear because many have not dealt with it. Not least perhaps because it makes simply times fear to consider how fast this can catch one. I think it is the same with the aids - although some are more curious. On the subject of diapers and incontinence aids: I don't think they have a bad reputation. Incontinence has a bad reputation - because many people find it unhygienic and disgusting. Exactly this leads to questions like this, because no "normal" person can imagine that someone wears diapers voluntarily. Exactly this is then a problem for DL's but not for those affected by incontinence. They have to fight rather with the prejudice unhygienic and disgusting what has to do with diapers but only on the edge.
  12. I always find it interesting how differently people think about protection and incontinence.... Protection was the solution for me, not the problem. The problem is the incontinence and that also causes fears, e.g. that my health will deteriorate, and especially at the beginning of the problem that I will leak, that people will make jokes about me or not take me seriously and so on...
  13. Sorry - but what do you think...? Who has a major continence problem can unfortunately not choose when that fits and when not. I personally find it a bit disrespectful to appear at a doctor's office with a full diaper. So I change it again before I go in there if it is used. And if you have a longer dental treatment, then you might want to get rid of the probably wet thing at the end - and there surely do not want to change in the car if there is a toilet at the doctor ...?
  14. So I think that internet has little to do with whether you pursue that interest or not. With the DL's it is a fetish that is not dependent on communication. With the AB's it is a little different - but even here it does not need the Internet to interact. The only thing the Internet has done is speed things up. It's easier to get information and it doesn't take as long to find out that there are others who have similar needs. The really funny thing is that I'm pretty sure there's still not a whole lot more "real" contact with people outside of the web than there was before. That is from my point of view the really amazing because the topic is still so afflicted with shyness and prejudice that hardly anyone dares to get out of anonymity and prefers to stay virtually on the net.
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