Look after your prostate

[Greybird]

I have posted this on FL but I thought I would start a thread here as it is just as relevant.

Well, now I have a conundrum. I wet the bed as a child until I was 12 then less frequently after that. A confirmed ABDL at probably 10/11 years old and going through all those years of denial and acceptance ending in my going 24/7 in nappies 4 or 5 years ago. I am now 70. I wet when I feel like it and whilst I i born with a small bladder, I still have the same one and it has remained small! The consequence is that I wee often. I do have control but only as much as my small bladder will allow. I wear my terry nappies and plastic pants almost all the time, only wearing disposables when I cannot hide the terries easily.

My problem now is that weeing often is also one of the symptoms of prostate problems, especially at my age. So, yes, you guessed it, I have been diagnosed with prostate cancer and am going to have it removed in a week’s time. It has been caught in time in that it is ‘contained’, ie. not spread to bones etc, so that is good. I am not looking forward to the operation. Catheter for two weeks followed by six weeks of rest and recuperation. Anyway I am not complaining, it could be a lot worse, I have a close friend who died of it.

The conundrum is of course I shall be in compulsory nappies (the medics politely call them ‘pads’!) for up to six months or maybe longer. At least I can carry my nappy bag around as everyone will know why and hopefully I'll enjoy them as much! The surgeon was very surprised when I told him I was not worried about being incontinent. How do you explain that one!!!!

So the message is for all of us ‘older’ ABs or DLs please go and get your PSA checked and maybe even a DRE as well. Happy days.

 

[WetDad]

Thank you Greybird

[AbabeBill]

It good advice, and I’m so terrible at going through with it. 
I wish you all the best Greaybird, hope you have a uneventful, speedy recovery. And on the light note, enjoy the diapers!

[oznl]

Hope this works out well for you but if it hasn't metastasized anywhere else, things are strongly in your favour as I understand them.

This is something I've thought about though.  Prostate cancer killed my grandfather (late diagnosis) and my father has it (earlier diagnosis but not much is being done about it for him since it's a race between the cancer and geriatric inevitability).  Genetically therefore, it's on the cards and it has occurred to me that as I'm presently using nappies 24/7, I might not notice any onset. 

Before going 24/7, I was experiencing escalating urgency but I think that was just down to a "mid 50s" thing.  My GP runs a bunch of bloods including PSA annually.  So far, PSA has been pretty quiet.  My PSA even went DOWN at the last test and my GP was asking how I managed that (I didn't like to mention that I'd been 24/7 for a month when the blood was taken).

Any insights as to what we should be clued in for (for those of us who aren't using bladder control anyway)?

On a small upside, you are going to have a few months of clinically necessary nappies with no questions asked and hopefully, support.  I hope the catheter doesn't annoy you.  I've only ever had one for 2 days (and was bedridden for both of them) but it still drove me batty: the bladder spasms were relentless.

[Dubious]

Need to get 40+ first, the time I have heard they get checked, and you could just check your self.. 

Explore your body often and you will notice differences 

[Greybird]

7 hours ago, WetDad said:

Thank you Greybird

It's a pleasure wetdad.

7 hours ago, AbabeBill said:

It good advice, and I’m so terrible at going through with it. 
I wish you all the best Greaybird, hope you have a uneventful, speedy recovery. And on the light note, enjoy the diapers!

Thanks, AbabeBill, i shall indeed enjoy the nappies, legitimately!

[Greybird]

5 hours ago, oznl said:

Hope this works out well for you but if it hasn't metastasized anywhere else, things are strongly in your favour as I understand them.

This is something I've thought about though.  Prostate cancer killed my grandfather (late diagnosis) and my father has it (earlier diagnosis but not much is being done about it for him since it's a race between the cancer and geriatric inevitability).  Genetically therefore, it's on the cards and it has occurred to me that as I'm presently using nappies 24/7, I might not notice any onset. 

Before going 24/7, I was experiencing escalating urgency but I think that was just down to a "mid 50s" thing.  My GP runs a bunch of bloods including PSA annually.  So far, PSA has been pretty quiet.  My PSA even went DOWN at the last test and my GP was asking how I managed that (I didn't like to mention that I'd been 24/7 for a month when the blood was taken).

Any insights as to what we should be clued in for (for those of us who aren't using bladder control anyway)?

On a small upside, you are going to have a few months of clinically necessary nappies with no questions asked and hopefully, support.  I hope the catheter doesn't annoy you.  I've only ever had one for 2 days (and was bedridden for both of them) but it still drove me batty: the bladder spasms were relentless.

Thank you, Oznl, I had a close friend who died of it, and worse, he never had any symptoms at all. I'm sorry to hear about your father, but I am told many die with it, not because of it. If they suspect that that might happen they sometimes just give some hormone therapy which slows or stops the growth of the cancer.

Just monitor your own urgency and have the annual check, both PSA and DRE. Some doctors here are ambivalent about the PSA as they say it is unreliable, but it is a guide and a good starting point. I wish I had been more insistent. Your being in nappies 24/7 should not have any bearing on the PSA result (but I'm no expert). I have been 24/7 for a few years now for very similar reasons as you, but I have wifely approval, if non participatory. Now I can 'come out', to anyone that asks, perfectly honestly!  If there is anything to look forward to it is that. The down side is inability of erections, but as long as libido is in tact, I shall venture into viagraland, not that wife is interested in sex.

could not agree more about catheters, hate the things, but it's only two weeks so I shall just have to put up with it!

Happy days

Greybird

 

 

4 hours ago, Dubious said:

Need to get 40+ first, the time I have heard they get checked, and you could just check your self.. 

Explore your body often and you will notice differences 

Dubious, I am not sure you can check yourself, back to anatomy classes for you! You are right about keeping an eye on any changes to your body though.

[Stroller]

Good luck with it Greybird.  There but for fortune...

I last had a check 3 or 4 years ago.

[wetmonkey]

Hi Greybird, thanks for posting this as I have had a prostate scare this past year as well and had to wear a catheter for two months. The prostate seems a very mysterious part of the body that rarely gets talked about as much as heart or kidneys. I ended up in ER here in Canada and had massive urine retention and in the end it ended up being prostitis (not sure I am spelling that correctly) but still will probably have urology appointments for the rest of my life. My Dad had prostate cancer but he was lucky enough to have been diagnosed very early and it was taken care of very easily. Still he dealt with incontinence for over a year and had a lot of stress and difficulty with it, I tried to be supportive but he was of course very ashamed and upset by the whole thing.

I hope everything goes ok for you and you recover well. You always have support here and not sure if you know about it but adisc.org is also a supportive community that I found really good when I was having my problems. While I clear now I also have a really small bladder and have started having some nighttime accidents and wear diapers anytime I drink at night.

All the best.

[stevewet]

I had my prostate checked when I started to become incontinent.

[Greybird]

3 hours ago, Stroller said:

Good luck with it Greybird.  There but for fortune...

I last had a check 3 or 4 years ago.

Hi Stroller, you need to get it checked again. Apparently it does grow slowly but  ....

 

1 hour ago, wetmonkey said:

Hi Greybird, thanks for posting this as I have had a prostate scare this past year as well and had to wear a catheter for two months. The prostate seems a very mysterious part of the body that rarely gets talked about as much as heart or kidneys. I ended up in ER here in Canada and had massive urine retention and in the end it ended up being prostitis (not sure I am spelling that correctly) but still will probably have urology appointments for the rest of my life. My Dad had prostate cancer but he was lucky enough to have been diagnosed very early and it was taken care of very easily. Still he dealt with incontinence for over a year and had a lot of stress and difficulty with it, I tried to be supportive but he was of course very ashamed and upset by the whole thing.

I hope everything goes ok for you and you recover well. You always have support here and not sure if you know about it but adisc.org is also a supportive community that I found really good when I was having my problems. While I clear now I also have a really small bladder and have started having some nighttime accidents and wear diapers anytime I drink at night.

All the best.

I had prostatitis a few years ago with retention, dreadful!!! I feel sorry for your father, my brother-in-law had his prostate out and has wetting problems such that he almost will not leave the house! I shall not be like that! 
Thank you for your good wishes, much appreciated.

 

54 minutes ago, stevewet said:

I had my prostate checked when I started to become incontinent.

Hi Stevewet, have it done regularly, it was my mistake not to have a PSA done every year, sometimes the NHS need a push.

[WBxx]

I’ve had an erratic and slowly increasing PSA for 20 years with exams every 6 months.  DRE’s and biopsies find nothing, but it’s still worrisome.

Not necessarily by the doc below, there are many performing it.  But if it were me I’d look into robotic surgery.
https://www.roboticoncology.com/robotic-prostate-surgery/

[Bobbyca]

Internal rostate massage is very enjoyable and may well lead to reduced prostate problems from congestion and blockage of the ducts.  I also believe that cycling once thought to cause erectile disfunction, is benefical to the function of the prostate due to the external massage while cycling

[Greybird]

1 hour ago, WBxx said:

I’ve had an erratic and slowly increasing PSA for 20 years with exams every 6 months.  DRE’s and biopsies find nothing, but it’s still worrisome.

Not necessarily by the doc below, there are many performing it.  But if it were me I’d look into robotic surgery.
https://www.roboticoncology.com/robotic-prostate-surgery/

As long as they find nothing that's good. Have they done MRI scans/biopsies? But I understant your concern.

On the robotics, I have heard good things about it. I think my surgeon is going to do the open surgery style, which he says is just as good (he has to cut less!) and recoveryis the same. I'll tell you in a few weeks.

 

1 hour ago, Bobbyca said:

Internal rostate massage is very enjoyable and may well lead to reduced prostate problems from congestion and blockage of the ducts.  I also believe that cycling once thought to cause erectile disfunction, is benefical to the function of the prostate due to the external massage while cycling

Not sure about the cycling! Those seats look like they will damage everything down there!!!

[WetDad]

8 minutes ago, Greybird said:

Not sure about the cycling! Those seats look like they will damage everything down there!!!

It's counterintuitive - those that look the most painful turn out to be very comfy, while the thickly padded wide seats can be very uncomfortable. I love cycling, it's a great way to see the outdoors. I live near a park with lots of trails, very enjoyable. 

[deewet]

I have gone through a prostrate surgery called Resume to greatly reduce the size of mine, and can say it did help me get off meds to allow for good flow, but still did not resolve the issues I have with urge incontinence.  My Urologist did say that this urge thing was a different issue from the flow issue so not much he could do for it.  

Having said that, it comes and goes, so there are days when I need to wear pads at the least to keep from getting my pants wet and smelly but again Urologist said that there is nothing he can do for that and it could be worse.  

Is this caused by prostrate or other bladder issues, I don't know but I do know that it seems to be getting worse so eventually I will be joining the diaper crowd as well out of need as well as want.