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Diaper Lover
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South Carolina
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https://twitter.com/DL2017sc?s=09
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Fleetwoodmac32192 started following Toddy
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frustrated with autism stigma?
Fleetwoodmac32192 replied to Fleetwoodmac32192's topic in Incontinence - Medical
I'm also concerned about the potential Medicaid cuts and work requirements. I've been looking for work for several years and I don't want to be forced into a job that I don't want just to keep my health insurance. -
Prescription vs Diagnosis for diapers
Fleetwoodmac32192 replied to babypat80's topic in Incontinence - Medical
I use a company that accepts my Medicaid plan. They help me with samples and finding the right fit, and handling the paperwork with my doctor and insurance. Aeroflow Urology -
Just writing this as a vent. Not to get too political, but RFK Jr. said earlier this week that autistic individuals will "never pay taxes, never hold a job...or never use a toilet unassisted." I know that this is not true for everyone. While I have a sibling with the mind of a 5 year old with multiple disabilities, he will always need his own care, he needs assistance cleaning up after using the toilet at times. I manage my needs with pull-ups and changing them independently when I need to, while trying to hold it in for the toilet. I'm able to get a job if my disability needs have accommodations and treated with privacy and respect. I spent years trying to mask as normal when I felt afraid to ask to go to the restroom or I felt like a bad person trying to use diapers, but being told by school it's not socially acceptable. When I tried speaking about the pain and humiliation I went through from lack of access to supplies, privately in an email to the school board years later as an adult, I did not get any responses. I was watching a local school board meeting last year when I heard someone mention this quote at the end. "Knowledge is like underwear. It is useful to have it, but not necessary to show it off" It felt like my experiences were indirectly mentioned, or it could be completely unrelated. It made me reflect on my attempts at wearing diapers when I was younger for my comfort and balancing personal responsibility, even though I was punished because I was viewed as "different", I now understand they were trying to teach how actions have consequences. I know now I could have been treated better for a medical condition thats not my fault. Autism is not an epidemic, we just need to treat each other with kindness.
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SteveE1898 started following Fleetwoodmac32192
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Fleetwoodmac32192 started following Kaliborio
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Hey it's been awhile. I've been wearing for 7 years and after my partner and people around her got norovirus, I know I should highly consider long term steps to keeping my hygiene important. I always prioritize washing my hands to prevent this. Trying to use the restroom when I need to, wear pull-ups less often, take showers more regularly, and I don't want to lose motivation to stay responsible for myself. I know autism makes it complicated for me but I'm trying my best. I'm hoping I'm not paranoid or overthinking this. I'm glad my partner is recovering from this after going in the hospital and getting sick, and I want to stay cautious and do my part to prevent this from happening from my actions. I'm scared and looking for responses. For context, we live separately for now around different people, but I'm preparing myself in case we move in together someday soon. Last time I seen her was 4 weeks ago, and I don't recall feeling sick before or afterwards. Thank you
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Over the years, I have noticed people struggling to access diapers including myself in the past. Some having to choose between electricity or diapers. I'm glad my Medicaid covers mine, but I know it's not the same with everyone else. No one wants to reuse dirty toilet paper, so why should we have to stay in diapers too long because we don't have enough supplies to change? I know how it feels when you have to go and just can't wait. With Disability Pride Month in July, how would you give advice to your past self when you were just starting out trying to navigate this, or for someone reading this today? It's not just babies, children, and older adults. It can happen to anyone. Incontinence is not your fault! How the Diaper Gap Affects Adults
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Hello there, I have been interested in AI recently and decided to give making a bot a try. Right now there's a slight cost/limit on free messages, but I'm hopeful this will improve over time. I have been testing it and trying to make sure it provides verified and accurate information. Please provide a thumbs up or down to it's responses to help it improve over time. I'm not looking to gain anything from this other than giving back to a community who could use this. It could help us all better connect with each other. Lastly, Please respect my privacy as I am looking for work and trying to protect any possible opportunities. Thank you https://poe.com/IncontinenceBot
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DiaperboyEddie12 started following Fleetwoodmac32192
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Near White Knoll/Red Bank area??? Just looking for people to chat with.
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Hi there, I have been wearing pull-ups for almost 6 years now. I have been training myself to poop almost every morning after I wake up while I'm still wearing a pull-up. I recently switched to Prevail Daily Underwear and it works great for me. I previously did fiber loading using pill supplements and staying hydrated for almost a year and the volume with each one was really intense. My doctor prescribed miralax for constipation but I haven't needed to use it as much recently. I usually get the urge to go when I'm eating oatmeal for breakfast or drinking coffee, but sometimes it's right after I wake up before I have anything. If I feel ready to go, I'll try to squat down beside my bed and lean forward a little bit, and put my attention on trying to let it out comfortably as much as I can. I can usually get to the toilet during the day, but it's nice when I can just let it go and not have to hold it in as much. Does anyone know if using regular (not hollow) butt plugs occasionally helps relax things back there? Would love to read your comments.
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Mobile apps for adult diaper users
Fleetwoodmac32192 replied to jimpa's topic in Our Lifestyle Discussion
Found this new app for tracking how much supplies you have left on Android. https://play.google.com/store/apps/details?id=fr.diapstash.diap_stash -
I tried Prevail Daily pull-ups in youth/small adult and it's almost perfect for me without being too tight or too loose.
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I found a post on Tumblr that gave a good overview into what you would need in your diet. Fiber is a good start. I usually try the pills or gummies. Apple juice is great too. As far as fiber foods, Bananas, potatoes, and oatmeal are good starts. I'll post what I found from Tumblr below. Hope this is helpful! Foods that thicken stool Bananas Rice Bread Potatoes Creamy peanut butter Applesauce Cheese Tapioca Yogurt Pasta Pretzels Oatmeal Oat Bran Grits Boiled milk Dark Chocolate Foods that stimulate stool production Dried or string beans Raw fruits Raw vegetables Highly spiced foods Fried foods Greasy foods Prune juice Grape juice Seasoned foods Cabbage Leafy green vegetables (lettuce, broccoli, spinach) Sweet foods and beverages Wheat bran
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I actually found out something interesting when I was reviewing my old school records today. I started from the beginning and after matching up the dates with my age and now I have a different picture. Age 2/almost 3 Developmental screening test states that I "refuse to sit on the toilet. Will let parent know when "stinky",sometimes pees in the toilet, can use pull-ups. Does not ask to use the toilet. (I actually don't remember doing this?) Age 4: my parents request for help going pull-ups and wipes for me. I was still wearing pull-ups. Between the ages of 5 and 6 I had a goal to use the toilet independently. I was successful, but because of my irritable bowels I missed out on school and still had accidents between the ages of 5 and 11. It cleaned up slightly at 12. I didn't have to wear pull-ups at the time, but I think going without them triggered something in me at one point because of how many years I experienced bowel accidents. When I was 13 I recognized I needed additional help with social skills and advocating for my needs like asking to use the restroom. I was also being yelled at by a teacher about going to the toilet for the past 3 years I was in middle school. During that time once I tried wearing a depends pull-up discreetly but it was socially embarrassing. Thankfully the incident wasn't anything noted on my record but still felt embarrassed when my music teacher reference the pull-ups jingle in a lesson with my peers after it happened and I felt really embarrassed in my face on the verge of crying. After this incident I changed high schools and got the help that I needed and between the ages of 16 and 19 and I felt more comfortable asking to use the restroom. I graduated at 19, then about age 20 I started wearing pullups again by choice. I had spent some time going through cycles of constantly needing to go and trying to use the restroom but every urge just felt more frustrating. Now I finally have both bladder and bowel incontinence listed on MyChart and I'm in the process of getting a prescription for pull-ups due to Autism. Through it all I try my best to be polite, care about others, and take care of myself. I feel a sense of confidence knowing I have everything I need and I don't have to hide or feel insecure about my conditions anymore. I have issues with my sensory awareness, but I am still capable of going to work and doing good as long as I have the support and resources I need to manage it. I am glad I could end 2022 learning about myself this year, and accepting myself with love. Also greatful for communities like this that let me know I'm not the one one going through this.
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SpiderBaby started following Fleetwoodmac32192
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yeah I get constipation often and I tried fiber in the past but I had to drink so much water it felt like I was overwhelming my system with how often I was peeing.
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I have to use miralax once daily with apple juice, 17 grams. I'm not sure if it's better to do in the morning or at bedtime? I've thought about wearing pull ups for comfort just in case.
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Yeah no matter how successful I feel, it's like I don't feel ready to leave pull ups and diapers behind. I know I can make it to the toilet but I still feel scared every time my bladder feels any pressure. The idea of letting go or having an accident is comforting to me but at the same time I don't want to smell like a used toilet every where I go. I love the northshore GoSupreme pull ups but it's too expensive for me to purchase and use regularly. My partner gently told me they don't want me to wear around them and I'm trying to respect that, but the urge doesn't go away. I did have an accident once in front of them but i felt sensory overload in that moment and accidents don't usually happen to me. My doctor believes it's because of my Autism processing my senses is impacting it. Beyond trying not to be dehydrated, I haven't received any other response from my doctor. I don't understand how anyone can hold it in for 2 hours at least and be considered healthy. My partner has diabetes and autism yet they have to go less often and seems like they can hold it better than me.