Unsure what to do

[Diapered Wookie]

Over the past 1.5 to 2 years, I've gotten to the point that I suddenly feel the urge to go. There's no warnings. If I usually don't go within a few minutes, I start leaking. I've even woke up to a small wet spot one night. The doc has tried 5 oral meds. The first one seemed to help. It made me drowsy though. Another one helped some but stopped working. They just did the botox injections last Monday as a last resort type of thing. It's hard to say if they're working yet. If they don't work, I'm not sure what to do. If they do, it's something that would probably be done at least once a years depending on how long it lasts. 

I can't endure that every so often though. Between the pain during the procedure and the painful urination for several days afterwards, I'd rather die. Just them trying to insert the tube so they could pump in the numbing medication was extremely uncomfortable. I was about to tell them to forget it as they tried getting it in.

[feralfreak]

the answer is right in front of you, you are incontinent, wear protection. its called urge incontinence, if i understand right, i can only imagine how frustrating it could be.

[Newbee]

Doctor wanted me to try meds but after looking at all the side effects and other medical issues that I have we decided that the only way to go was diapers it was hard at first to come to terms with but with the help and support for f my doctor and my husband it no longer bothers me.

that’s just my two cents worth.

 

[Diapered Wookie]

I've worn as part of age regression for several years. I don't wear often and prefer having a choice. The problem for me would be dealing with wearing at work.Due to heat, I wear shorts and a short sleeve shirt. I'd rather not have everyone know. Plus having privacy for changes. That could be taken care of if there's a specific restroom I could use. I might go the way of wearing at night to avoid waking up. Then I could decide from there.

[beallucanb]

If your waist is small enough try goodnights, I would try them first, they look like underwear enough to fool most people.

you can enhance goodnights by sticking in a perforated  male guard, or just use a guard in a pair of briefs to start out.

I'm with you I wouldn't want painful treatments or mind numbing pills, because I live on mind numbing pills from an accident I was in.

If I could go with my meds I would chuck them in the toilet right now, problem is I can not get by without the meds.

No one with any sense should give you shit about wearing protection, if you have a medical condition that requires protection.

[Diapered Wookie]

I might be able to "fit" in the new xl goodnites. I've been wanting to get some to try anyway. Even if I don't fully use them, they'll at least get me from leaking in my underwear if I don't quit make it to the restroom. AS for wearing at work, I know nobody should give me crap about wearing diapers. I still don't want others to know of have them show though. Especially being in Trump country. Someone I work with went to the rally they had here about 3 months ago.

[Newbee]

For work I wear a brand called ID or AMD or Abri form they are all more discrete and don’t crinkle like my other diapers because I don’t want people at working knowing I wear even though I wear because I have no choice.

[Cushy Tushy]

I totally understand the way you feel that you don't want your co-workers to know that you are wearing. The thing is you are wearing them for a medical reason and if for some reason they do end up know that is a simple solution in telling them that why you have to wear them. If I worked in an office and not at home as a Contractor, I wouldn't have that luxury. I trained myself to be incontinent of both bladder and bowel over many years of being an ABDL. The only people that know of me being an ABDL are my roommates who are also my mommy and babysitter and also my parents. I have been doing this for 19 years and 12 years 24/7. 

So I guess my advice for you is to embrace diapers and find support whether it be somewhere in your community or even here.  I have only been on this site and I wish I would have joined here way earlier because the support here is incredible. 

[feralfreak]

it seems to me you are afraid of losing some dignity or respect because you need to wear a diaper, if you needed glasses, a prosthetic leg, or a cane, should you be embarrassed? no, incontinence is a disability, it doesnt deprive you of any dignity unless you let it, YOU wear the diapers, they dont wear you unless you let them.

[Little Belle]

On 11/15/2021 at 10:48 AM, Diapered Wookie said:

If they don't work, I'm not sure what to do.

Yes you do! Wear a nappy with pride ? there are a lot worse things in this world than incontinence and I've found, after years of pretending I didn't have UI, wearing a nappy has changed my life is a really positive way. I've never felt so de-stressed and comfortable. The positives totally outweigh any negatives. 

[WetDad]

I'm with Little Belle, enjoy the new-found confidence you have now that you can rely upon your diaper/nappy solution. I let doctors try to cure my IC for years, and it never worked completely, but the side-effects of all the meds & pain of surgeries still did not remove my IC, it only made it less. Sometimes. Now I am content to manage my IC with diapers. I know when I will need them, and so I wear during all those potential times. The security I get from that is worth it to me.

[Diapered Wookie]

I'm still not sure if the botox injections are going to work. I'm still making the mad dashes to the restroom. I got some goodnites to catch any possibles leaks that might occur. They kept sliding down after about 6 hours of wearing even though they were still 100% dry. If this doesn't work, I'm going to ask about some other options. 

[feralfreak]

10 hours ago, Diapered Wookie said:

I'm still not sure if the botox injections are going to work. I'm still making the mad dashes to the restroom. I got some goodnites to catch any possibles leaks that might occur. They kept sliding down after about 6 hours of wearing even though they were still 100% dry. If this doesn't work, I'm going to ask about some other options. 

if treatments dont work, remember this: a bad day of wetting your self is better than a good day of being mauled by a bear

[Diapered Wookie]

3 hours ago, feralfreak said:

if treatments dont work, remember this: a bad day of wetting your self is better than a good day of being mauled by a bear

With the way I've felt the last few years, I feel like the latter option would sometimes be better as long as it was over with quick.

[deewet]

I feel your pain, but understand, you are not the only one on this boat.  Even as I am quite a bit older than you, I am dealing with some of the same issues.  I was "lucky" enough about 10 years ago to wet myself in an airplane waiting to get into a bathroom.  That was the straw as they say that  pushed me into different forms of padded protection.  

When I am home, I get by with  pads I stick into my underwear, efficient and very inexpensive.  When I am traveling, I never leave without a pullup on, they are readily available these days as they are promoted mostly for women with issues, but hey, a pullup is a pullup.  Urge icon is the easiest of these things to manage it seems, as long as you are prepared for the inevitable.  In my case, this has evolved into post void dribbles which my protection today is capable of dealing with.  

While my urologist tells me that I have conditions that will worsen my incontinence in the next years, I will deal with that when the time comes.  The point here, you don't need to use diapers at the onset of your issue, but you do need to be able to adapt to conditions as they arise with a proper level of protection

[feralfreak]

18 hours ago, Diapered Wookie said:

With the way I've felt the last few years, I feel like the latter option would sometimes be better as long as it was over with quick.

i never get people to laugh at that joke, i was trying to give you a laugh. i would trade you situations in a heartbeat if i could. let me give you a bit of perspective, might make what you are going through seem a bit better, not that it doesnt suck for you, you are going through something that would be hard for anyone, but do you know what i would trade for your bladder issues? every single day i pray to God that my mom doesnt have chest pain, and many times she does get it, thankfully nitro taken and it goes away(with prayers), she suffered a 3rd heard attack, was neglected at the local hospital during said heart attack, i think that is why she keeps getting chest pains, some times she has to have some oxygen, thank God her brother up the hill has an order for home oxygen because she doesnt have one for it, even when she needs it sometimes during pain, if she has to go to the hospital i fear she will be neglected again, ive dealt with her refusing to eat right and exercise, even after past heart attacks, she promises she will do better but still ends up just sitting there addicted to facebook and pch games. she asks for things she cant have anymore, gives me attitude when i have to tell her "no" saying "well if i cant have anything i want i might as well be dead!" im fighting to get her to get healthy and she seems hellbent on making her health worse. i wont even go into the state of the house we live in, or the "family's" lack of concern and lack of interest in helping, im getting chest pains from the stress, only i hide it. my godparents, who both had covid, almost lost their son to covid, he was at the point where he could have died, was admitted and then taken to the ICU, he was in that bad a state, he was seriously that bad he almost died, and he has a long road to recovery if i understand it right, losing bladder control has got to suck, but if i could trade my issues of worrying about my moms health for needing to wear a diaper all the time, or facing the need for it, hands down i would take that deal, if i could i would go to God and "print that up and ill sign it, Lord". in a heart beat.

[Cruiser 03]

If the Botox works you are going to be catheter dependent if not diaper dependent , why the fuss ?

I am both , no matter how much I leak , old urine is still building up in the tank . So Every diaper change or for any periods of personal care that a diaper isn’t on me my aide inserts one and takes control. 
 

you don’t need to decide on one or the other ,you can bat for both teams , it works for me .

[Diapered Wookie]

Decided to post an update. I don't think the botox helped much, if at all. It doesn't matter how much I drink, the urge still hits. Something I'm beginning to wonder is if my body even absorbs much of the water I drink. I donate plasma and they tell me I appear dehydrated a lot since it takes a while for me to complete the donation. I tell them I drink enough water that I usually have to go every 45 to 60 minutes and it's usually a very light yellow, almost clear. I plan on letting my provider know. Catheters are a no go. I'd say having the numbing agent put in was just as bad as having a scope shoved up my butt. Even with it being numbed before the botox injection, the pain was still extremely bad. I was about to tell the urologist to not bother continuing. Then the pain while urinating the next few days was awful. The result was not worth going through that again.

I plan on talking with my provider, and HR where I work. The don't want people bringing backpacks in that aren't clear. If I end up wearing most, if not all, of the time, I'll have to bring one in that isn't clear. If they won't let me, I'll take it above them and possibly talk to someone outside the company. 

[feralfreak]

53 minutes ago, Diapered Wookie said:

Decided to post an update. I don't think the botox helped much, if at all. It doesn't matter how much I drink, the urge still hits. Something I'm beginning to wonder is if my body even absorbs much of the water I drink. I donate plasma and they tell me I appear dehydrated a lot since it takes a while for me to complete the donation. I tell them I drink enough water that I usually have to go every 45 to 60 minutes and it's usually a very light yellow, almost clear. I plan on letting my provider know. Catheters are a no go. I'd say having the numbing agent put in was just as bad as having a scope shoved up my butt. Even with it being numbed before the botox injection, the pain was still extremely bad. I was about to tell the urologist to not bother continuing. Then the pain while urinating the next few days was awful. The result was not worth going through that again.

I plan on talking with my provider, and HR where I work. The don't want people bringing backpacks in that aren't clear. If I end up wearing most, if not all, of the time, I'll have to bring one in that isn't clear. If they won't let me, I'll take it above them and possibly talk to someone outside the company. 

i wonder if something is blocking your intestines from absorbing water, its my understanding(correct me if im wrong) that that is where water is taken up at. maybe you are taking too much salt in your diet(for you, might seem odd but enough for one might be too high for another), or if you are a diabetic, but im not asking because its not my place to. as far as donating plasma if you are looking dehydrated there i wonder if you need ive fluids.

[Diapered Wookie]

No signs of being diabetic at all. Bloodwork, which I have done at least once a year, is normal and no signs of it during eyes exams. As for salt, I can't stand it. I don't put it on anything and usually leave it out of recipes that call for it. I don't eat out very much and also don't really eat frozen meals. Mainly because they use so much salt that it tastes horrible. I do have IBS though and it usually gets worse in the summer. My VA provider is getting me into a gastroenterologist even though I haven't noticed anything change other than the usual.

[feralfreak]

alcohol?

did a little checking, https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&cad=rja&uact=8&ved=2ahUKEwiA8fqC1aP6AhWHF1kFHbbJDR8QFnoECAQQAQ&url=https%3A%2F%2Fgut.bmj.com%2Fcontent%2F43%2F2%2F294&usg=AOvVaw1sRBP__7YUROs5T-7ioKJ2

the body needs some salt, if you dont have any that might cause your problem, try sea salt(it takes less than table salt)or diet salt, you have to have some, hard to get around it.

[babykeiff]

On 11/15/2021 at 10:48 AM, Diapered Wookie said:

Over the past 1.5 to 2 years, I've gotten to the point that I suddenly feel the urge to go. There's no warnings. If I usually don't go within a few minutes, I start leaking. I've even woke up to a small wet spot one night. The doc has tried 5 oral meds. The first one seemed to help. It made me drowsy though. Another one helped some but stopped working. They just did the botox injections last Monday as a last resort type of thing. It's hard to say if they're working yet. If they don't work, I'm not sure what to do. If they do, it's something that would probably be done at least once a years depending on how long it lasts. 

I can't endure that every so often though. Between the pain during the procedure and the painful urination for several days afterwards, I'd rather die. Just them trying to insert the tube so they could pump in the numbing medication was extremely uncomfortable. I was about to tell them to forget it as they tried getting it in.

 

On 9/20/2022 at 12:19 PM, Diapered Wookie said:

No signs of being diabetic at all. Bloodwork, which I have done at least once a year, is normal and no signs of it during eyes exams. As for salt, I can't stand it. I don't put it on anything and usually leave it out of recipes that call for it. I don't eat out very much and also don't really eat frozen meals. Mainly because they use so much salt that it tastes horrible. I do have IBS though and it usually gets worse in the summer. My VA provider is getting me into a gastroenterologist even though I haven't noticed anything change other than the usual.

You state that you have both IBS, and now bladder issues. Added to this is low water levels - dehydration. I presume that you are talking to a specialist about this as the IBS, urinary issues and dehydration are all symptoms. I suspect that you are aware of the original problem, but if you are unaware of it, I suggest that you talk to the specialist that you are seeing.

Incontinence is always a symptom... and you have yet to identify the core problem. Without you doing so, what is the question are you asking here?

If you want to know what people who leak urine do, that is simple - they deny the fact that they need diapers and hide wet pants etc OR wear either diapers - either pads / pull-ups / full mat diapers. The type of diaper is based on multiple factors - how much one wets, how long the diaper has to last, and how often can one change. You seem to work in an environment that does not allow one to bring in a change bag. As a result, you will have to wear increased bulk diapers - long enough to last your complete shift (plus possibly the time traveling tto and from work). This size of diaper will be visible (may not be originally as dry) under shorts, your choice of undergarment in work.

You state that you will be dealing with a gastroenterologist, that might not be a bad idea. Your IBS is based on what you eat, how you process what you eat (or don't due to some complication) and the relative bowel sphincter control. Add to the complication of low / incorrect water balance, adressing your diet could be a smart move.  

 

[Diapered Wookie]

The IBS issue has been around a lot longer. Like 10+ years. I rarely have alcohol. Maybe 1-2 beers every 2-3 months. I haven't seen the gastroenterologist yet. I do take fiber pills and that helps the IBS some. Part of me wonders if all the crap I dealt with over the years is causing some of the problems. Jet fuel and fumes, jet exhaust, other lubes, fluids and cleaners.

As for salt, I tried mixing some in water a few times a day. That didn't change anything. Salt levels in my body have come back as normal during blood work. As far as minerals like sodium and stuff go, I only had one abnormal result one time and it was high calcium.

[babykeiff]

1 hour ago, Diapered Wookie said:

The IBS issue has been around a lot longer. Like 10+ years. I rarely have alcohol. Maybe 1-2 beers every 2-3 months. I haven't seen the gastroenterologist yet. I do take fiber pills and that helps the IBS some. Part of me wonders if all the crap I dealt with over the years is causing some of the problems. Jet fuel and fumes, jet exhaust, other lubes, fluids and cleaners.

As for salt, I tried mixing some in water a few times a day. That didn't change anything. Salt levels in my body have come back as normal during blood work. As far as minerals like sodium and stuff go, I only had one abnormal result one time and it was high calcium.

It seems that you work at an airport, which would explain the high security and the jet fuel etc. Jet fuel fumes etc (your presumed work environment) would not cause, on their own, degregation of bladder and bowel function to the level that you would get IBS and/or bladder issues.

Logically, if they did, all your co-workers would be in diapers etc, and it would be a common problem for airport workers worldwide. This does not rule out specific chemicals used in the industry - ie antifreeze, fuel, certain cleaners. An airport does not have the correct air-flow to dissapate the chemicals to the level requied so one can work with them and be safe. This is due to the added chemicals in the air - jet fuel and exhaust. Air dissapation flow is calculated in a 'clean environment', by measuring the time it takes said chemical to disperse in air (nitrogen 78.08, oxygen 20.95, argon 0.93, carbon dioxide 0.04). Changing the ratio of these elements will change the dissapation flow of said chemical, i.e. increasing the level of carbon dioxide, carbon monoxide and nitrogen (common in jet exhaust), will, on average, require twice to three times the air volume to match the required dissapation flow. The airline industry, being so competitive, nomally, cut corners in working environments to the bare minimum, so in your case, it would not be unusual if you were exposed to higher concentrations of chemicals than normal / safe. Since diaper dependency is not a common issue for airline workers, it can be construed that chemical exposure on its own does not cause diaper dependence. It will cause lung damage and reduced life span, but since a high proprortion of airline workers do not smoke (environment not conducive to smokine / naked flames), the lung damage is similar to that of smokers, and may self repair in about 5-10 years after leaving that environment.

However, in your case, there is an addition to your diet plus the work environment that is causing your issues. A decent dietatian / allergist / gastroentrologist should be able to find out what is causing your core problem.... after all, the I.B.S. / bladder issues are symptoms, not the core problem. IBS is mainly caused by something in your diet that causes irritation in the lower bowels. As a result, the bowels release to get the irritant out - similar to what causes one to sneeze / cough / vomit. Something in the airways that causes an irratation, and one will cough / sneeze to remove the irratant. If it is within the stomach, one will vomit. If it is lower than the stomach, ie the intestines, the body will force it out of the bowels = diarrhea, or in your case, I.B.S.

...I rarely have alcohol. Maybe 1-2 beers every 2-3 months....

Alcohol is a duretic (fills bladder and makes you wet), and nothing to do with IBS... that is unless the specific version of alcohol you prefer you are alergic to it, or something within it. A few people are allergic to the miniscule rat hairs found in some beers, to such an extend that they have bowel and bladder loss if they consume said beer.

[Diapered Wookie]

IBS is not my issue here. It's my bladder and I mentioned the alcohol since feralfreak mentioned it. I also no longer work around aircraft and haven't since 2016. Thing is that something may not cause problems right away.