What Kind Of Incontinence Is This?

[Pixie_Stix]

It's been getting progressively worse for me over the years, starting several months after getting hit by a car in the cross walk (which caused various sorts of nerve damage in different parts of my body...but not in my groin area that I'm aware of). Basically it's like I feel the urge to go, I use the bathroom, I feel like I've finished and completely emptied my bladder, wait and wait and wait...nothing happens. But then after I "zip up", wash my hands and go back to doing whatever...then I start leaking! Usually for anywhere from 5 to 10 minutes afterwards, completely without control, usually without any feeling at all, but sometimes like a sudden urge sensation when it's happening, but no control.

I used to just stuff wads of toilet paper in my underwear to "deal" with the problem, but it's reached the point now where I need to wear a pad/guard all the time, otherwise I basically wind up with soaking wet underwear, even if I use toilet paper.

I'm wondering if I can expect this problem to get even worse (I'm only 30 years old right now), what kind of incontinence it might be, and what possible treatment options (if any) exist. On the one hand I'm kind of inclined to just "live with it" so long as it's not going to get too much worse, especially since it's embarrassing enough that I don't really want to talk to a doctor about it. Despite being somewhat of an AB/DL, I honestly really don't want to be stuck having to wear diapers constantly though, so that's why I'm worried about it getting worse and if it does get worse, will it be too late at that point to fix it (presuming it can be)?

[BabyCharley]

It sounds like you have a true medical issue going on. I suggest getting advice from your doctor.

[LILJIM]

or not it's time to Talk with ur Doc...It's like a water leak in ur house if not fixed soon makes a bigger mess the longer you wait.

[BoTox]

Do you have prostate issues? At 30 I'd hope not but you should definitely see a medical practitioner for at least a check up and bring this up as a symptom. You don't have to say you wet yourself. Tell them it feels like incomplete emptying and then later you have sudden urges that make getting to the bathroom difficult. From there you can touch on your more urgent issues.

[~Skitty~]

http://www.urologychannel.com/incontinence/overflow/index.shtml

overflow incontinence maybe? ._.

[Pixie_Stix]

Do you have prostate issues? At 30 I'd hope not but you should definitely see a medical practitioner for at least a check up and bring this up as a symptom. You don't have to say you wet yourself. Tell them it feels like incomplete emptying and then later you have sudden urges that make getting to the bathroom difficult. From there you can touch on your more urgent issues.

I think I like this idea best. My doctor is actually a woman and about my age, so that just makes it all that much more embarrassing to have to even mention at all. I've thought about maybe trying to get a different doctor, like an older male, but I'm on state medical so I don't really have too much say about who I can see. I'm not so sure the state medical coverage I have would cover seeing a urologist either, I had enough problems just getting them to approve seeing a pain specialist and a ortho-surgeon to get my jaw fixed. I got in a nasty habit of clamping down on my teeth/jaw every time I got a pain spasm from the nerve damage, due to trying to "tough it out", which in turn created an incredible horrendous TMJ problem and now I have pretty much unending migraines. I don't think that could cause bladder problems...unless it's from all the Tylenol I've been taking...but I've been having liver and kidney panels done every 6 months and they always come up normal sooo...yeah, not so sure about that. Plus the problem started before I got the endless migraines and started to get worse before then too.

The fact that the state medical likely won't cover seeing a urologist is yet another nagging factor that's making me just to want to ignore it...and if I could get coverage for it I'd probably have to go through the whole process I went through with the other stuff, which would mean having to share my personal problem with a whole bunch of random strangers who aren't even doctors at all...I really don't like that idea...I think I'd almost rather just wear diapers than have to go through humiliation like that.

It wouldn't actually be that bad to wear them all the time if I could wear like those Tena Flex ones, but they're so freakin expensive compared to regular adult diapers. The Abena pull-up ones aren't too bad either, I usually wear those at night because I sometimes wet the bed (pretty much guaranteed if I drink any alcohol or soda close to when I go to bed) , but I've also had a few accidents wearing those at night too, so they're not really the ideal alternative if it gets worse during the day...because I really wouldn't ever want to have an accident during the day. I'd rather wear uber thick crinkly diapers under spandex shorts than risk having a great big wet spot right on the front of my pants.

--Edit--

It also doesn't help that I'm like uber self-conscious about wearing diapers in public. Even just wearing the pull-up ones I feel like everyone can see them and everyone knows I'm wearing them. I know they can't, but it's just like this nagging feeling I can't get rid of.

[Nappycouple]

I was injured when I was a teenager, and suffered the with same issues. With me it was nerve damage, but to be sure you should see your doctor. To your doctor this just a problem, and nothing you should be embarassed about, and I'm sure your doctor can help. Remember incontinence is a result of another problem, if the underlining problem can be cured the incontinence will also. Leaving this alone, in all likilyhood it will get worst. In my case I'm now diaper dependent, but only because the drugs that you can take for this problem, reacted poorly with me. I wish you good luck Bob

[Dougie]

TALK TO YOUR DOCTOR!!!

My spine doctor is a couple of years younger than I am, and she is very attractive. I thought it would be embarrassing to talk to her about my issues too at first. The last time I talked to her we discussed my incontinence like it was no big deal. It is very reassuring knowing I am being treated and respected like a human being. If I wasn't her patient I would ask my doctor out. That would be a professional ethics issue. Anyway, she doesn't get uncomfortable talking about bowel and bladder issues with me, so why should I be uncomfortable talking about those with her.

If your doctor gives you a referral to a urologist for incontinence how can it not get approved? If you have a prostate problem that blocks the urethra or you can't drain your bladder by pushing urine can backup into your kidneys and can kill you.

[Little BabyDoll Christine]

Let me make sure I understand: You have a problem that is getting worse and you are not talking to a doctor

Right?

Uh-huh

My recommendation: an EEG and when that turns out blank, a cranial MRI

I can tell you about two persons who died of cancer that would have been very treatable if they had not waited, in one case, about a year and in the other almost the same (a believer in astrology). I can tell you about a reocrded case of a 3 year old who died from a very treatable bowel obstruction because his parents were Christian Scientists. Thsi last was the Twitchell case in MA c1990

It does not matter what you want, You WILL end up in a doctor's office. the big quiestion is will you end up in the hospital or morgue after a rather painful and maybe protracted terminal phase

Scared enough yet?

[Dougie]

Let me make sure I understand: You have a problem that is getting worse and you are not talking to a doctor

Right?

Uh-huh

My recommendation: an EEG and when that turns out blank, a cranial MRI

I can tell you about two persons who died of cancer that would have been very treatable if they had not waited, in one case, about a year and in the other almost the same (a believer in astrology). I can tell you about a reocrded case of a 3 year old who died from a very treatable bowel obstruction because his parents were Christian Scientists. Thsi last was the Twitchell case in MA c1990

It does not matter what you want, You WILL end up in a doctor's office. the big quiestion is will you end up in the hospital or morgue after a rather painful and maybe protracted terminal phase

Scared enough yet?

After that reply I might go to the doctor tomorrow.

[Pixie_Stix]

Actually, I recently had an MRI of my brain that showed everything was good. I have a "perfect brain"...whatever that means. I've also had a whole slew of other medical tests done and am continuing to get tests done and other problems worked on. Honestly, the incontinence is not as "major" as most of my other medical problems (all stemming from the car accident). I've also been having liver and kidney panels done every 3 months because of how much Tylenol I take everyday and they likewise show everything in the norm.

And no, I don't have magical insurance that covers whoever the doctor randomly sends me to. It's state medical, it took me nearly a YEAR and two rejections just to get on it in the first place and even getting them to approve all the really *NEEDED* medical treatment has been just an absolute hair pulling nightmare.

I think the most deranged thing they did was when they sent me a letter saying that I could only continue to get cash benefits if I was following what my doctor wanted me to do as far as treatment, when they themselves had, at the time, *REJECTED* what the doctor wanted me to do; as the insurance wouldn't cover seeing an ortho-surgeon.

If you're rich and/or overly privileged then it's pretty easy to just see any doctor you want, any time, for hours on end, but most of us don't have that luxury, most of us have to kind of "be our own doctors" so to speak, spend a lot of our own time researching, studying and trying to find out what's wrong and to then weight all the options and find a cost effective treatment to then present to our doctor...often times almost completely on our own. My current doctor in particular, which is at the "free clinic", usually only sees me for about five minutes at a time and is always sending me home with great big huge twenty plus page packets of medical data and potential treatments to look at, analyze and come back to her with what I tried, what I want to try, how they worked out, etc, etc. Same thing with prescriptions, she'll prescribe things, often at my inquiry, but then relies on me to keep track of their effectiveness, how they worked, when I took them, what side effects they might have had, etc, etc, etc.

...that's just the way it is for poor people and those overworked doctors who get paid next to nothing treating those less fortunate. They have to "make do" with what they have and often times that means relying on the patients themselves to help them out.