Restarting my journey to incontinence and hopefully true bedwetting

[kincaid]

@MISSY1959 you're right about the Silastic being more comfortable, the material is so smooth i sometimes don't even feel it.

Unfortunately the hospital nurse damaged my bladder neck by inserting the previous one pretty good and walking with any catheter feels like having minor acupuncture.

They want me to show up with a ch16 or 18 silicone one but outside that period I'm going back to Silastic, and ch14 as this is more comfortable.

 

They now started saying they prefer i use intermittent catheters but doing this so often will cause major trauma to my urethra. 

[MISSY1959]

Medicaly speaking your situation would normaly be the self cath method.  its a straight tube insert to use pull out when done. 

i had a slight discomfort the other day pulled out the cath slight infection cleaned it the next day and put back. had to pull it out a few days latter.  one of the things i have learned is that if you get the slight bladder infection and mine was related to sinus and meds nothing else.  you cant reuse it.  i guess no matter how much you clean it the bacteria must eat into the cath.  it was only in about 2 weeks.  each time i take it out i leave the diaper on for about 24 hours to flush the system.  also not been on my cranbery juice as much either.   i did clean it again and put back new ones here in a few days. 

 

[kincaid]

4 hours ago, MISSY1959 said:

Medicaly speaking your situation would normaly be the self cath method.  its a straight tube insert to use pull out when done. 

i had a slight discomfort the other day pulled out the cath slight infection cleaned it the next day and put back. had to pull it out a few days latter.  one of the things i have learned is that if you get the slight bladder infection and mine was related to sinus and meds nothing else.  you cant reuse it.  i guess no matter how much you clean it the bacteria must eat into the cath.  it was only in about 2 weeks.  each time i take it out i leave the diaper on for about 24 hours to flush the system.  also not been on my cranbery juice as much either.   i did clean it again and put back new ones here in a few days. 

 

Yeah but i really do not want self catheterization. I want padding

And because of the damage from the catheter i too had zn infection. Took meds for it, then inserted the Silastic. There are moments i don't even feel it or realize it's there. I wonder how long i can keep this one in before getting debris or blockages. I don't disconnect the leg bag for showers or night bag anymore and this helps in keeping the loop closed. 

 

I'm planning to wear diapers in the day and inserting a cheap silicone coated latex cath only for the night when ly current supply is out, using night bags. Its cheap and helps prevent holding it while i sleep.

[MISSY1959]

I Noticed that i feel it more i guess what you call holding it while you sleep with the diaper. be it the need to move rollover or what.  i will wake with a soaked diaper so im not sure i feel it all the time but i do some.  the bigger heavier diapers and i usualy use a panty girdle of sorts to hold up tight.  

i think as im still on a sinus infection brain not here.  i meant to say intermitant self cath.  its just a straight tube more or less.   im not sure i would let anyone else do a cath i can feel and know what to do when i feel what. i cant imagine someone else being able to do anything but shove it in.  no way they could get that right.

i dont notice mine is in at all love it.  i like the diaper but honestly even the monthly once i do it not worth it just to messy or leaks etc.  

i wanted to try with just a pair of panties on outside to see how long i can hold it normaly without a bulky diaper before it lets go.  might try that when the new caths come in and i take this one out.  hard with a big bulky diaper to get the true feel of where you stand.  i know urgency builds some wih the diaper and cover and such so its restrictive.  should be here end of week will see how that goes.  see what kind of non cath ability i have left.

[kincaid]

9 hours ago, MISSY1959 said:

i meant to say intermitant self cath.  its just a straight tube more or less.   im not sure i would let anyone else do a cath i can feel and know what to do when i feel what. i cant imagine someone else being able to do anything but shove it in.  no way they could get that right.

Well, it's that I was talking about, they prefer i do intermittent self cath instead of foley's but to do that I'd have to traumatise the urethra multiple times a day, the male urethra is about 30cm long and line has 3 warzones that suffered a lot of damage from previous surgeries.

I know that if I do that I will have serious scar tissue buildup and the entire urethra would narrow, ending up with a very invasive surgery.
Also having to do so while not being able to at times is a problem, this would overstretch the bladder and cause possible kidney infections.
Nobody mentioned in any document what to do at night except draining the bladder before you go to bed and when you get up but my night bag is always pretty full (2L) so i can't imagine waking up with such an amount, that'd be very painfull.

 

But you're right, often I don't feel the silastic ones either, they are very comfortable compared to silicone ones, why the hospital dislikes non silicone ones is beyond my understanding except for the bacteriuria.

[MISSY1959]

Yeah when i was learning about it i gi issues some bladder.  autoimmune disease so i am on some of those fb sites.  they have to self cath and have accidents at work and such. no way.  i found the risk with the silcone ones is blowing up and poping inside.  i know one did on me.  the silastic can stay in longer but no real bacterial issues.  like i said right now sinus infections so more bacteria in my body so a slight one on the cath. just an irritation.  was surprised it was in 2 weeks. took it out you can tell becasue calcium grit forms on it. thats the infection or result of it.  but could be my disease as well.  these silastic caths are so comfortable i honestly dont want not to have one in.  i did clean this one put it back in twice now after cleaning and a day in a diaper.   im bad about the cranberry juice they say that helps.  

one of the first silicone ones i had and have a second one here the bulb broke and the pieces did piss out after a time.  was thankful of that and i did find with them you can pinch it off vs these you cant. 

[kincaid]

17 hours ago, MISSY1959 said:

Yeah when i was learning about it i gi issues some bladder.  autoimmune disease so i am on some of those fb sites.  they have to self cath and have accidents at work and such. no way.  i found the risk with the silcone ones is blowing up and poping inside.  i know one did on me.  the silastic can stay in longer but no real bacterial issues.  like i said right now sinus infections so more bacteria in my body so a slight one on the cath. just an irritation.  was surprised it was in 2 weeks. took it out you can tell becasue calcium grit forms on it. thats the infection or result of it.  but could be my disease as well.  these silastic caths are so comfortable i honestly dont want not to have one in.  i did clean this one put it back in twice now after cleaning and a day in a diaper.   im bad about the cranberry juice they say that helps.  

one of the first silicone ones i had and have a second one here the bulb broke and the pieces did piss out after a time.  was thankful of that and i did find with them you can pinch it off vs these you cant. 

I think i had a minor rupture in the balloon of the silicone one they inserted in the hospital as of the 10cc there were 4.5cc left after 3.5 weeks and it was supposed to remain in for 2.5 more weeks.

 

But out of curiosity why did you use 16Fr instead of 14Fr? I find the 14 very comfortable, and i always found diameter choice confusing

[MISSY1959]

After 2 months or close to it being in with 5ml in it i got back 2.5. now there was probably some in the tube you cant get out but i think that as the cath degrades over time it seeps through.  i cleaned my last one put it back in might take it back out today waiting new ones on thursday.  like i said fighting a sinus infection so this flares up a little.  my sinus infection so bad begging for surgery.  16f is the size recomended for men. i have a 12 here as a silicone i guess i started with it i kept it as a spare. i did find it leeked and its the one or one like it that blew up when filling.   i have used 18  20 22 also the bigger the more discomfort with no gain. the 16 seals good no irritation and does not leak. 

 

[kincaid]

3 hours ago, MISSY1959 said:

After 2 months or close to it being in with 5ml in it i got back 2.5. now there was probably some in the tube you cant get out but i think that as the cath degrades over time it seeps through.  i cleaned my last one put it back in might take it back out today waiting new ones on thursday.  like i said fighting a sinus infection so this flares up a little.  my sinus infection so bad begging for surgery.  16f is the size recomended for men. i have a 12 here as a silicone i guess i started with it i kept it as a spare. i did find it leeked and its the one or one like it that blew up when filling.   i have used 18  20 22 also the bigger the more discomfort with no gain. the 16 seals good no irritation and does not leak. 

 

Well, even though I am male, the 14 I got in right now does not leak at all, while the 16 they put in did leak, though they said diameter alone does not determine leak factor.
I am more convinced the infection caused by insertion problems caused everything (leaks, debris).

I just flushed my 14 and only a tiny speck of debris (scar tissue from the last one) came out, other than that, no complaints at all.

I've had to order a ch18 silicone one with Tiemann for when i go back to the hospital, but i honestly agree that I do not like the material.

I did some research and it turns out that with silicone foley's balloon rupture is known to occur when you pre-test the balloon (some nurses inflate it and deflate it before inserting it into the patient to test if the balloon works). Therefore they advise not to do this with silicone foley's as opposed to latex based ones.

[MISSY1959]

yeah i think in my case it was just an overinflation. hard to say but i found the silicone to flimsy and i pinched it off more than not.  so when i came to the silastic it was great. 

[TGalactic2012]

On February 28, 2018 at 11:23 AM, stevewet said:

Same here best of luck. I love being incontinent and enuretic

Are you also encopretic aka loss of bowel control I have slight encopresis

[MISSY1959]

i had gi issues due to autoimmune causes lesions in my upper gi.  they found it on endo and colon test. mom lost 18 inches of her upper gi due to it.  i told the dr during my colon test and since i was staying overnight they found it in an endo.  they put me on gerd meds i told them im not gerd.  they did not listen so a year latter i started fighting with the va was pumping fluids out.  put food in stuff came out.  hemotology found i was vitamin dead ie food out.  so 2 years in they the gi clinic put me on suclafrate and relized the lesions would never heal.  so gi issues mostly gone.  ie i dont need to wear a diaper just in case.   i chose the cath and 2 years in im probably dependant on it either way. no way i can go but a short while not without a diaper on.   so in this time my autoimmune has caused more nerve issues im sure will play into that. i follow the ms page and most of them have that issue. 

[kincaid]

On 10/30/2019 at 7:49 PM, MISSY1959 said:

yeah i think in my case it was just an overinflation. hard to say but i found the silicone to flimsy and i pinched it off more than not.  so when i came to the silastic it was great. 

Well, here's the shocker:

My pharmacy told me that his supplier got in contact with Rusch teleflex manufacturer and they did say that it happens regularly that the insertion of Tiemann tipped catheters can cause tissue damage when the tip is suddenly no longer pointing up during isnertion. And that this happens even when done by trained people (nurses) 

I am very positive this happened to me as the white radiopaque line is painted on the side of the catheter, not on the top, meaning that if the tiemann tip is pointing up, the line is to your left.

When it was inserted , the line was in a 45° angle between left and up, which eans the tip was pointing in a 45° angle to my right side, and that is where I felt pain.

Also a bit after that big chunk passed, I felt the catheter rotate and then the white line was showing completely up. so yes, mistake, but I can't file a complaint because it was my choice to have it placed.....though I never asked for a Tiemann....

 

I'm now ending week 2 with the Silastic, still very comfortable, no infections, much mobility. I was wondering, the manufacturer sais I could definitly keep it in 6 weeks, you always spoke of 4, did you ever keep it in longer than 4 weeks?

[MISSY1959]

i have heard of those tips when i researched it. seeing as the cath can rotate i felt that was a bad idea so never went there.   i have a pending emergency surgery for my sinus will find out tue when.  i had it done in 1990 forgot about. my auotimmune medication set it of so dying at night is highly likely.  also sinus infection.  well that also has led to minor uti for the first time i took that cath out at 2 weeks. it was somewhat plugged with calcium left it to clean and soak. wore a diaper chose to put a fresh one in for bed. so looks like i will start cleaning for now weekly.  as i said in your question i have worn it for about 6 weeks to 2 months.  4-6 weeks is about optimum since the water in the ballon starts to escape and the cath starts to break down or degrade.   this is the first time it was partialy bloked and its nothing to do with the cath or having one. it has to do with sinus and skin infections in me.  just happened to be an oppertunity  to happen.  but it cleaned no degredation of the cath so will clean and use it again.  these clean very well.  once you start noticing a rough surface that does not come off and redish or brown shadow to it then its ate into and no longer usable. that roughness is what causes the pain you might feel and also creates the infection.  but it was minor i almost did not remove it to clean and then thought i would check. alot flushed out in the soaking dish so i know it was partialy plugged.   i had a diaper on for several hours went to the movie i swear i cant live without the cath now the diaper is just to much bulk and weight and layers to protect.  love wearing the cath.  not sure what will happen if they do sinus surgery on me.  guess they will find out then.  i hope they do the surgery but god its an awful surgery but since i already cant breath it would at least have an ending.  will see. 

[kincaid]

9 hours ago, MISSY1959 said:

i have heard of those tips when i researched it. seeing as the cath can rotate i felt that was a bad idea so never went there.   i have a pending emergency surgery for my sinus will find out tue when.  i had it done in 1990 forgot about. my auotimmune medication set it of so dying at night is highly likely.  also sinus infection.  well that also has led to minor uti for the first time i took that cath out at 2 weeks. it was somewhat plugged with calcium left it to clean and soak. wore a diaper chose to put a fresh one in for bed. so looks like i will start cleaning for now weekly.  as i said in your question i have worn it for about 6 weeks to 2 months.  4-6 weeks is about optimum since the water in the ballon starts to escape and the cath starts to break down or degrade.   this is the first time it was partialy bloked and its nothing to do with the cath or having one. it has to do with sinus and skin infections in me.  just happened to be an oppertunity  to happen.  but it cleaned no degredation of the cath so will clean and use it again.  these clean very well.  once you start noticing a rough surface that does not come off and redish or brown shadow to it then its ate into and no longer usable. that roughness is what causes the pain you might feel and also creates the infection.  but it was minor i almost did not remove it to clean and then thought i would check. alot flushed out in the soaking dish so i know it was partialy plugged.   i had a diaper on for several hours went to the movie i swear i cant live without the cath now the diaper is just to much bulk and weight and layers to protect.  love wearing the cath.  not sure what will happen if they do sinus surgery on me.  guess they will find out then.  i hope they do the surgery but god its an awful surgery but since i already cant breath it would at least have an ending.  will see. 

Well, you should metion about your incontinence and then they might insert a catheter during surgery, but these days they prefer you wear a diaper if they don't need to cut in that region.

They prefer the "don't catheterise unless absolutely necessary" these days more and more here.

Also, for blocked catheters I always use a uro-tainer Suby G or Solution R, it's basicaly 3.23% citric acid solution or 6% citric acid solution (don't know which one was which) and I used it when my silicone cath was very yellow after 3.5 weeks, it was cripsy clean after flushing it with that stuff.

and yes I know the balloon volume decreases, that is why lately they add 10% glycerine in it to reduce the volume loss. I just don't understand why the hospital insisted I would keep mine in when the balloon volume was 4.5cc out of 10cc after 3.5 weeks and I had an infection and lots of debris was scratching my bladder neck....
 

If I can keep these silastic's in for 6 weeks I will, I'm starting week 3 with this one tomorrow and am still doing really well, no infection and no debris at all. I love the smooth surface , it doesn't rub and honestly? Even with all the strictures and having 2 TURP surgeries, I had no problems inserting a normal tipped catheter despite they advise Tiemann instead then. It slid right in just fine, and I really love CH14 it is so much more comfortable for my fragile and sensitive urethral wall, CH16 is just too thick for me, it hurts.

Since you're dealing with the sinus infection, best advice i can give (but I assume you already know this) is to drink at least 100 ounces of water a day and take 2 to 3 cranberry pils (not the juice!) It helps me every time to literally flush the system, and even when that alone is not enough it helps in conjunction with antibiotics to get rid of it faster.

[MISSY1959]

Its bad i had sinus rotorroooter at 30 i totaly forgot about it. so now im yelling at them at the va over it.  my meds make uti and sinus infections more likely.  it is a side effect.  i don think i have a uti but i did get a lot of calcium what looks like salt in the bottom of the pan. i had rinsed it off as well and tried to flush it and went what. sort of squrted back had preasure.  must have been half a teaspons so it was deff plugged.  waited a few hours put new one in all good.  4 drs at the va said surgery of which 2 looked at the ct of the face then the surgeon came in said no.  i told him to fuck off and left. so now the head of ent countermanded that so i see him tue.  i might live to be 70 if the meds dont kill me first.  oddly in great shape just issues.  but with my issues and i can do a cath with little to no chance of infection anyone can. 

i was just thinking after i put the new one in to get some cranberry juice i keep forgetting. 

i soak mine in soap and bleech then rinse with alchol in and out before using.   sterile surgilube also helps.

 

[kincaid]

4 hours ago, MISSY1959 said:

was just thinking after i put the new one in to get some cranberry juice i keep forgetting.

Take cranberry supplement pills, they work much better and have no sugar.

My previous urologist told me and they seriously improved things.

The pills have z much higher dose than the juice. 

[Sweetgirl]

On 2/28/2018 at 9:27 AM, Inconito said:

 

I started wearing diapers 24/7, almost 4 years ago with the objective to become incontinent. I tried various ways to shortcut like stents, foley caths (last one involved UTI and antibiotics). Then I resorted to drinking a lot, staying relaxed at all times which looking in the rear mirror was hard to do. In fact I believe I wasn't that successful at it. Nevertheless I made some progress, but not even close to what I wanted.

 

So now marks the day, where I'll restart my journey, greatly inspired by Felix among others.

 

Instead ofninly focusing on the long term objective, incontinence and bedwetting. I've decided to split it my endgoal into what I consider more realistic short term goals.

First goal. Wet in my diaper, at least once every hour. Once that has been achieved,

second goal will be wet my diaper once every half hour.

 

I known I have triggers which somehow impacts my bladder and makes it spasm so I get the urgent feeling of needing to pee, like focusing on my cellphone, reading emails and such, so naturally I'll use that to begin with, simply to reinforce. But I need to find other triggers as well.

Goal one should be achievable, within one month, though doesnit take longer, then so be it.

 

Second goal will be harder, but I hope that by accomplishing first goal, second one should be doable.

Also given the fact that, I'm not starting entirely from scratch.

 

My hope is that once I have accomplished my second objective, that my bladder has shrunk considerably, meaning I can begin focusing on bedwetting.

 

I'll update once a month, or when I feel there is enough progress, to share.

 

 

Sendt fra min BTV-W09 med Tapatalk

 

 

 

I started with a med issue of wetting my bed in my sleep to finding out every time I drank water I wet myself. Bought diapers and constantly told myself just relax. After I peed I would drink that much water to fill my bladder. After about a month my bladder had shrunk enough to now I wet my diaper without thinking. Working on complete incontinence by stretching and weakening my anal spinchters. 

[MISSY1959]

well a childs brain is not fully engaged to all its senses and muscles an adult is.  so no mater how much you try you will still know or feel the need to release.  the point becomes how long you can hold what amount.  with a cath in for over a year i cant hold but a couple table spoons now.  if i put a diaper on between caths i feel urgency to go because the now set normal for the muscles is open and relaxed. as such with out the cath in the body wants to try to hold it closed more.  with little capacity its only a few minutes of walking before i pea more again.  just small amounts. if i stand up with a diaper on a little comes out if i drink sitting more will come out while sitting even because the volume is such that i cant hold it.  with sleep meds and a diaper i will wet the diaper to its full 32oz capacity by morning.  i will remember it a couple times sort of like roll over move leg that urgency feel.  big diapers do impact that because they cut off the flow.   its my day to clean the cath so diaper till tomm.  i normaly use a panty girdle to keep it up as it gets full so i can get about 12 hours out of a northshore supreme

[kincaid]

I was curious though, they advised a 16Fr in the hospital to kept in 6 weeks but why that size and not a 14? I feel much more comfortable and have less pain in the urethra with a 14Fr 

[MISSY1959]

i have tried 14-22 16 is normal for men i am told. diff types silastic  vs silicone also appear to be diff size.  comfort seal non irriation are the right choice.  remember the balloon does not deflate all the way when it comes out. what goes in as a 16 comes out a 20.  you also do not want to suck so much fluid out of the ball it becomes flat that hurts on the way out.  reuse is often as well a 20 going in vs its orriginal 16.  right now i have been taking mine out every 2 weeks to clean and rotate another one in.  they are good for about 6 weeks and have it in as long as 2 months. due to medications i have for autoimmune issues side effects are sinus infections which also influance uit. same bacteria. 

 

[kincaid]

19 hours ago, MISSY1959 said:

i have tried 14-22 16 is normal for men i am told. diff types silastic  vs silicone also appear to be diff size.  comfort seal non irriation are the right choice.  remember the balloon does not deflate all the way when it comes out. what goes in as a 16 comes out a 20.  you also do not want to suck so much fluid out of the ball it becomes flat that hurts on the way out.  reuse is often as well a 20 going in vs its orriginal 16.  right now i have been taking mine out every 2 weeks to clean and rotate another one in.  they are good for about 6 weeks and have it in as long as 2 months. due to medications i have for autoimmune issues side effects are sinus infections which also influance uit. same bacteria. 

 

yeah, I read that recently that when pullng it out it's best to push back 0.5 - 1 cc of liquid to prevent creased that may damage the bladder neck.....wish I knew that sooner :s

but for me the ch14 silastic is so comfortable and flexible, soft and allows more mobility vs the silicone ch16 which feels more like a stiff tube....though the worst one really is the ch30 they inserted after  TURP, that was also a silicone one but it was so hard and thick it felt like some rigid plastic tube O.o very painfull btw but needed to get all the post -surgical debris out (tissue, blood clots and there were a lot of them....)

So this is why I was wondering if it wouldn't be better to try to keep the ch14 in for 6 weeks instead of using ch16, am currently in week 3 again but so far am good, have found that I have a LOT of bladder cramps from the balloon and needed to increase medication to calm down the bladder muscle, then everything was fine again. 

[MISSY1959]

Im only using 5ml not the 10 in the ball.  im not sure what a bladder spasm or cramp is.  i know as the cath is in longer more calcium builds up on it and i feel it more.    i know when i put the diaper on the other day to flush out things between changes i barely got out of the shower. it was like i was trying to hold it in like a long road trip.  got the cath in and was relieved but only a couple tablespoons came out in the bag.  my body is so set on the cath now as a routine.  but it was very urgent to put the diaper on or the cath back in.   i notice the urge to go just crossing my legs on my desk with the cath. have to move them so it can release.  

as far as size goes it has to be comfortable and seal. to big it rubs and tears tissue. id  go with the 14 next time you change and watch for it.

[kincaid]

bladder cramps feel like the balloon is rubbingthe badder neck and straining, it is caused by the natural muscle contraction of the bladder wall to puysh out foreign objects.

Having a catheter in (a foley or suprapubic) wil most definitly cause this side effect. I'm surprised you never felt this, or also a constant pressure against the balloon rubbing away.

Depending on the bacteruria and encrustation you may feel sharp shaving like sandpaper , whihc is debris caught betwen the balloon and bladder neck scratching away, which usually means there is a UTI or you didin't drink enough water, and can lead to a serous CAUTI and tissue damage. (trust me, been through all that)
 

[MISSY1959]

I only find minor calcium deposits as the cath ages. in or out even cleaning it and reusing it has a life span. i have started watching the filter in the bag for deposits or calcium i can see a little and when i see more i pull it to clean it.  but if i leave it in for 6 weeks the cath ballon degrades to half the fluid and the irriation starts and the ballon turns a brownish color from i guess decay.   its the silastic itself breaks down to some degree.