sjaeger

Hi all Well another month atleast with this Foley/Indwelling Catheter in well I need something supportive to strap it better and more comfy as had an issue where it tugged a little and well blood in bag. I use a 500ml day bag and the supplied straps as so uncomfortable and irritates me (I gave sensory issues ADHD and AUTISM) and find I have to always readjust it as well as the velcro is so annoying. As well as I am also looking for adaptive pants/shorts that open at the side (unnoticeable) I walk mostly and sometimes in a wheelchair and need the day bag upper thigh as I have issues bending (spinal issues) but hopefully the government will supply me with a portable Mobility Scooter (already did trials with OT). Would prefer from Amazon as I live in Australia Measurements are 117cm hips 104cm waist 97cm from waist to feet (Pants) 42cm from waist down (shorts) Many thanks

Hi I am wondering where to buy Bambino Ultra stretch internationally as may be cheaper than buying in Australia. Bambino.com does not ship here Many thanks

Yeah was reading your Betweeners story and most of the time was skipping comments trying to find the next chapter

Hi Is there a way to skip comments to the next chapter of the story or to the next post of the Author? Many thanks

Hi all Currently in mental hell at the moment had Bladder botox (Bladder neck an Urethral Spinter on the 25 March) and had to have Indwelling Catheter due to retention issues on the 27th. OMG the relief from my bladder sensory issues Not having to wake up 4-5time per night to travel to bathroom which occasionally causes falls. Able to drink water without Bladder giving me issues so was restricted to soda based or other drinks. As well as other bladder issues I have had since 2009 since spinal injury. I really hate myself enjoying this relief (I am to keep this in til the 22 May when my urologist comes back) and I want a solution where he operates on me internally to have the same relief as the catheter (already been in full taped diapers since 2009 and find them comfortable) OMFG I feel like such a freak to the point I emailed my treating Consultant Psychiatrist of 3 years regarding this and requesting a Psychiatric assessment as well as psychologist as they both know I have been suffering. I suffer from under and overactive bladder and retention and can not safely self cath due to bad essential tremors in hands (had previous urological staff give up on me as I refused on medical grounds) I also have Autism, Bipolar and ADHD and since 2009 spinal issues at l3l4l5 s1 which neurosurgeon has written no treatment or surgery was an option. I was for a permanent solution for health safety (retention) as well as Quality of life solution but I feel so fucking messed up in the head that I am taking valium more regularly (Psychiatrist knows but isn't concerned as he did a phone safety check up on me after the emails I sent him)

Is this a safer option then medically prescribed Indwelling catheters due to Retention?

Hi all Just had Bladder neck and Urethral Spincter Botox on Monday stayed overnight in hospital with an indwelling cath and leg bag but when being discharged I was having straining issues, as well as burning and was told by the recovery ward to go to treating GP the urology dept reception told me the same thing as I left with no IDC or AntiBiotics. Wednesday went to treating GP which told me to go to local ED (So I went to local hospital not the one that did OP) well they inserted IDC as well as a flip flow and gave me an antibiotic and referral letter to go straight to treating urology Dept the next day. Thursday Went to the Urology Dept well the receptionist was just going to let the nurse talk to me and make a follow up appointment with no action that day. Thankfully the nurse rang my treating urologist and wanted the flip flow replaced with a leg bag and will be called this coming Tuesday or Wednesday to see how things are going but I don't see the Urologist til the 22 May. Apparently I might get the IDC taken out on the 8th but I am going to request to keep it in until I see the urologist as I am going to discuss other treatment options as Botox if works only works for about 6ish months and then will have to take it easy no exercise or stuff for 6 weeks after everytime botox is done. Well I feel I am completely tolerating the complete urinary incontinence quite well (caused by IDC) except its bulky, doesn't fit under clothes well as well as I am slowly becoming more and more wheelchair dependent and have multiple falls which I am concerned will dislodge the IDC in future if I chose the as the perminate option as well as no sexual activity, exercise etc Today has been emotional hell as been over analyzing my future with my bladder to the point I ended up contacting both my Psychologist and Psychiatrist to make sure I am not made about wanting to be made completely Urinary incontinent without any external devices. As had Bladder neck and Urethral Sphincter Botox done Blader treatment options pros and cons 1. Botox to Urethral sphincter and bladder neck might not work. - Every 6ish months - Reduced workload 6 weeks afterward every time post-OP - Reduces efficiency over time. 2. Indwelling Catheter (cant Intemedite self cath due to essential tremors etc) - Falls risk I should be using a wheelchair a lot more often due to my spine and feet but it is not OH&S-friendly for support workers who require mobility scooters. - Will take time to adjust to wheelchair/ mobility scooter as will be more reliant over time due to spine and feet according to Neurosurgeon, Podiatrist, EP, Physio - Multiple falls to the bathroom. - Bulky does not fit under clothes well - Fear of dislodgement if fall - Has to be changed approximately every 3 months government is already paying for briefs and it is unlikely for nursing to change IDC. - Possible won't be able to masturbate/sexual encounters or exercise much except swimming with a flip flow. *POSITIVE- Am completely urinary incontinent for short periods no Frequency, controlled leakage, no retention NO NUMERMOUS FALLS TO BATHROOM AT NIGHT. 3. If able to make the Bladder itself incontinent (My wish) - Once off - Already have briefs that are more discrete than IDC. - Already previously advised by OTs, StateHealth clinical staff to use Briefs in bed due to fall risk. (Bladder is uncooperative regarding this as well as urinal bottle etc. - Possibly fewer infections than IDC and cath, - Briefs help with bowel marks (which I think is blood about to have a gastroscopy and colonoscopy done (the Gastrologist thinks I have IBS Constipation after initial appointment) as well as excessive sweating. Are there any pros or cons I am missing Thanks

Hi Would any one know of any other helpful Incontinence Facebook or Forum support groups as I have issues dealing with mine and find online support useful. Thanks

Hi all I am concerned regarding my Urologist who is a professor at my local hospital hence no one is higher than him. 2nd appointment (which was a teleconference with my support worker and carer at the time) He first stated there wasn't any solution then he wanted me to self Indwell Catherise (he stated this on the phone with my support worker or get support worker to do it) without any training or knowing exact size. 3rd Appointment (Dec) He stated he doesn't want me to be Indwelled catherised due to uti risks and have Botox to the Urethal Spinctor and prostate (but wrote to GP COPY AND PASTED "Botox injections to the pelvic floor and bladder neck given that he does have longstanding voiding dysfunction".) I signed relevant paperwork that day and was told have the procedure in February. 4th Appointment (28th Feb)Urologist never showed up nor communicated this with his staff as he was flying to London (I am in Sydney, Australia) and was not notified this until 30mins after the appointment and had to wait an additional hour for a different urologist who made me sign the same paperwork as didn't know if it was sent to Admissions back in December (thankfully as after the appointment I went to hospital admissions and found out my urologist never submitted the paperwork in December and refused to allow me to make a written complaint due to all the issues with the urologist. I forgot to mention he flat out refuses to communicate with my Continence Nurse (who is private and the urologist is public public system refused my a public Continence nurse) my continence Nurse is a Doctorate with a PHD and I requested him to do this numerous times. My question is Is Botox to the Urethal Spinctor and prostate and "Botox injections to the pelvic floor and bladder neck given that he does have longstanding voiding dysfunction the same? If so what are peoples experiences as I have a letter from admissions that I should have the procedure in about 3 months? And would people trust this behavior from their specialists? Many thanks

Not yet the urologist hasn’t even put the signed paperwork into admissions since December and didn’t bother t show u on Wednesday at the appointment so had to see another urologist there 1.5 hrs after the appointment was supposed to happen

Loved the story so much that I stayed up all night reading it

Hi I have real bladder issues (whihc my treating urologist knows about so not a kink for me) I wake up 5+ times per night to rush to toilet and it is becoming unsafe for me 1. Falling getting to the bathroom about once per week as well as the fatique where sometimes I nearly fall due to the exhaution of lack of sleep.

I do have both and under active bladder and spinal issues but issues with toilet training as a young child

I have bipolar, ASD 2 and ADHD spinal and feet issues and underactive bladder and continence issues. I have been told by numerous treating Psychiatrists my control freak and OCD issues are part of my Aspergers (original diagnosis) / ASD 2 (since DSM5). I have told my Urologist, psychiatrist and psychologist Id rather be totally urinary incontinent rather than my bladder having a mind of its own and not be able to control it all time I did express my logic well I have been told by numerous Neurosurgeons and Urologists I will never have a fully behaving bladder as well as I dehydrate myself due to painfully fully bladder or urgency I just rather leak all the time as it is I wake up for the bathroom 5+ times a night and have falls about once per week due to Psych sleeping meds and mobility issues and as well as have severe sleep apnea on top I rather just have a soaked nappy/diaper/pad to deal with in the morning. Since my issues started in 2009 when I excerbated my spinal issue which no one knew I had prior I started researching about incontinence and came across these types of sites, which I am embarrased to say I enjoy the fiction stories on here (not sure if that also makes me ABDL) and also wear Bambino Magnifico Adult Nappies instead of the continence nurse prescribed Bambino Bianco Ultra Stretch All White Diapers which are the same instead of the print but the plain white are limited stock in Australia and all medical Diapers/nappies in Australia are cloth backed which irritates my skin and pullup type which I can get away with causes bad chaffing and slips as it doesnt fit my body type and not adjustable,

1200ml+

I find myself dehydrating myself to have some normalcy of the bladder as well

Well I embarrased to say even though I have an underactive bladder with incontinence issues I have begged my Urologist to make me fully urinary incontinent as I can not deal with the unpredictability as well as my GP is telling me I am harming my Kidneys by not drinking enough due to the unpredictability of bladder behavour either overfilling to point of pain and sometimes struggle to release. Also waking up bloody 5+ times a night and having falls about once per week (mobility issues due to spine and feet).

Been diagnosed with under active bladder and urologist next month is giving me Botox at the prostate and urethral sphincter. Has anyone had this done as it is I tend to store 800 -1200mls before I feel it if I don’t have overactive symptoms that day. my private continence nurse and public health urologist has divided me on different treatment plans as urologist refuses to communicate with continence nurse

Hi all What should I know about Indwelling Cath as had a phone consult with public urologist and he wants me to trial a size 16 as medications have failed and well I am getting up at least 5 times per night and nearly physically collapsed (thankfully support worker caught me) I am considering doing the valve system instead of having a bag

partially in a wheelchair. I have Bladder retention and leakage and over-sensory issues with the bladder (I also have autism) as well as issues with slight leakage and severe constipation of the bowels. Public Urologist has no confidence in how to treat me he expressed to me and my Support worker (who is also a nurse) I see my Continence Nurse early next month for a follow-up I am wondering Are there any reusable anal plugs to keep prescribed suppositories in for the required 30mins due to bowel issues due to spinal signal issues? Also looking at an Indwelling catheter to drain into diapers like a temporary stent (to stop the over-sensory issues and retention) I do not want a bag as I am mostly mobile as well as a bag gets twisted as well as pee can escape around the catheter as well as I can't self-cath due to disabilities incl Essential tremors in my hand which are too extreme. A previous Public Urologist stated years ago they can't do anything as they could make the leakage or retention worse hence the idea of induced incontinence as well as making myself physically and psychologically sick with dehydration as water aggravates the overstimulation of my bladder hence I drink mostly Pepsi max or coke zero with is damaging me teeth etc As it is these issues are really affecting me mentally to the point of thoughts of Self Harm (don't worry I won't as I have a fur baby that keeps me on my toes and hasn't had a depressive episode in years) as really who would want to really piss themselves but I think would be the healthier option ( a means to an end )overall if it allows me to drink more fluids including water (replacing caffeine etc) I have also mentioned this to my psychologist and psychiatrist as I also have Bipolar and Autism so it affects both and also mentioned it to Urologist (in writing but ignored my concerns and symptoms as well as my Continence Nurse has been sympathetic with me and I have emailed her. Has anyone done this if so any recommendations TIA

What should I look for in a portable reusable adult changing mat? As going to start getting much-needed support from a support worker for personal care I am 172cm I need help with personal care, including suppositories and lotion, and creams after baths. TIA

Hi all I am in Australia and wondering what are the differences between Abena abriform slip premium and Abena abriform comfort Both are cloth backed Tia

Hi all I am medically incontinent and wear abena abriforms But thinking of trying an ABDL Diaper hopefully one I can get trial packs off scented and Velcro and so more comfy and softer than abena many thanks

Hi all I have a new Urologist appointment in October after my last one (in 2019) refused to do anything due to my bladder issues in both retention and main incontinence and told me just to self cath (which I cat do due to my other disabilities incl essential tremors in hands) at the moment when I drink fluids I have issues with bladder going into sensory overload which is hell. Medical History ASD 2 / bipolar disorder / asthma /ADHD / Factor V Leiden / Fatty Liver / Obesity / Panic Disorder with agoraphobia / Complex PTSD / Plantar fasciitis (both feet). Childhood abuse to the lower back. No issues/continence issues prior to 2009. Mobility issues Spinal injury at L3L4L5S1 in 2009 (arthritis)/ L5/S1 Disc Bulge 2009 Past testing Urology Cystoscopy 2010 Hospital Urodynamics 1 2011 Hospital US Abdomen 2012 CT Lumbar Spine 2012 US Renal and Lumbosacral 2012 Neurosurgeon report 2012/2013 hospital) Urodynamics 2 2019 Hospital) Continence Assessment 2019 US Renal 2020 Symptoms Symptoms Intermittent urinary incontinence- leakage every time I am in water (whatever I have in my bladder), waking up 2-3 times per night to go to the bathroom but been advised to void in diapers due to safety with my balance issues and medications, which causes severe sleep disturbances. Several bathroom trips at night, but came close to falling due to spinal and feet issues causing poor balance, as well as sedative nighttime medications, hence advised to void into diapers for safety reasons. Occasional urinary retention, weak urinary stream, bladder sensory issues such as vibrations, cramping, and urgency, which are intolerable. Occasionally small urine volume during voiding when I feel bladder is full, urinary frequency and urgency, intermittent dribbling, not knowing most of the time bladder are full. Long-term bowel constipation (occasional bleeds) found current Movicol and Laxatab not really effective. Most of the time, if not for the urgency, I do not feel the need to use the bathroom. My support worker reminds me to use the toilet, yet not much comes out even though I have drank water. I also restrict fluids until I know I won’t leave the house so I am near the bathroom mostly habit but lack of fluids is also making me sick and I have been warned that this can damage my kidneys. My psychologist is also constantly reminding me to drink more fluids as it affects my physical health, energy, and mental health due to lack of fluids Thanks

Came across this the other day https://pubmed.ncbi.nlm.nih.gov/24419714/ Which I am thinking about asking as deemed medically unable to self cath (Learning disability, Autism, Essential tremor in hands