tauschung

I posted earlier concerning a related topic:

1. I wet the bed up until 3-4 and a few times after that, nothing major.

I either wear just a diaper or sleep naked.

Thanks for the advice.

Hi,

@Baby Brian: Unfortunately, it still hurts to go to the bathroom. Last night, I think I had to go to the bathroom four times. However, I woke up all four times! I am no longer wearing diapers at night because I have noticed that I wake up wet every time I wear diapers. I have only had a few accidents since the surgery. I am pretty thankful for that.. I *think* I am going to the bathroom frequently during the day. But, I need to put it on paper so I can view trends. Another thing I've noticed is that I get that "pressure" feeling at night when I lie down at night. I think I may suggest going to PT to my urologist when I see him in a few months if I see no improvement. I tried to avoid driving to Austin for the PT I need last time...but if it helps..then who am I to complain? It must be so frustrating for all those specialists to have no idea what is going on with your case. How have you remained strong? I find it very hard to talk about with my partner and especially my family. In the case of my family they only know some basic information i.e. that I had an obstruction and had to have surgery. And, financially...it is so expensive to see these specialists and have tests. I feel very worn dealing with this as well as balancing work, personal life, and school.

It's been a while. I think I am more or less healed from the surgery now. I am taking 8mg Toviaz every other day, and am thankful to be down to one medication. Since the surgery, I have not really noticed any change in my bladder habits . My urine flow has really improved. But, I am still getting up and going to the bathroom and only urinating 2-6oz. I don't feel nearly as urgent anymore, but my urologist has told me not to hold my bladder for a long time. Incidentally, I talked to my mom, and she says that I've always held my bladder for a long time. As a child, I never wanted to finish what I was doing. At night, I have not had any major accidents since the surgery. I consider this a huge improvement. However, I am still getting up anywhere from 2-4 times a night. And, I am not drinking any substantial amounts of water past 8pm (I usually go to bed 11:30-12:00). What worries me, is that over the past week it has started to hurt to urinate again. It almost feels like when the catheter came out. I get this kind of burning sensation and also it feels like the inside of my urethra is inflamed or something because I feel a sort of pressure. If it continues or worsens, I'm going to have to call my urologist and schedule an appointment. I also am occasionally feeling the same pressure/mild pain in my lower abdomen. Anyone have any thoughts or insight into my situation?

Thanks a bunch Rope_W. I don't think that they are kicking the idea around anymore. I think I just misunderstood the specialist. Time for an overdue update! Today I had the TUIP done. And, it went well. I have a foley in right now, and will continue to wear it until next Thursday. The foley itself is pretty big, but I am still leaking a bit. So, I think I'm going to have to grab some pull-ups to absorb the excess. It kinda seems like if this does not work out for me, my urologist has no idea what to do next and will likely refer me out. So, I am hoping that the surgery turns out. During the last month I did a lot of physical therapy. The therapist told me that he thinks that I have compressed nerve bundles in my lower back and neck which may be contributing to my issues. He had me doing a lot of nerve stretches which helped my lower back. However, I don't know if he was hurting me or helping me because I could never get my ulnar nerve to stop hurting for three weeks. I started a new round of antibiotics at the same time as PT, so I don't know if the decrease in frequency/pain was due to the antibiotics or the PT. But, since I have stopped the PT my arms and back pain have since gone away. I think I should just stay away from them unless I get referred to a neurologist. My urologist said that if the physical therapist was right it would have showed up on my CT or the MRI. So...there's my story.

I'm self conscious and ashamed about my diaper use. I have gotten to the point where I feel comfortable wearing diapers around my wife or while out and about. However, I fantasize about having sex involving diapers, but am mostly too ashamed to ask her. It's funny because I know that she would indulge me. I just feel weird about it. And, when the shoe is on the other foot...I have no issues indulging my SO with her fetishes... I guess I also feel like I am being selfish. The other thing is. Both my SO and myself go to fetish parties in town every month. Everyone knows that I am a pain slut, and have a thing for blood/knife play, spankings, floggings, violet wand play, and fire play. However, no one knows that I am also a DL. I just feel that diapers are pretty taboo, and well, I care too much about what other people think. I have not seen any DLs in my area at all. I guess if I did, it would make things much easier for me.

I think darkravendl said it pretty good. For me, the cysto was far more uncomfortable physically because I have an obstructed urethra. So, the scope was a tight fit. However, the nurse or the doctor should numb up your urethra prior to inserting the scope. The urodynamic study was uncomfortable because its just awkward. During my study they had me stand in front of the imaging machine while they filled me up with saline. However, it was pretty cool because I could see the real time x-ray of my bladder and how it was reacting to being filled. I learned I could hold more urine that I thought I could...but the pain I was feeling was increased pressures due to an obstruction in my urethra. You should do fine. They are a little embarrassing, but survivable.

I'm not really interested in making myself incontinent..but am curious about catheter play because I am having surgery done soon, and I'll have to be cathetered up to a week. As far as I can see...it looks like really the only things that are needed for this kind of play is a catheter and some sort of lube. Of course sterilization on the outside of the penis is a good thing. But, a full tray is unnecessary for each time....right? Both times I had a cystoscopy done the nurse used a syringe to inject the surgilube into my urethra. Think I'm going to do that if I ever get some catheters.

@adhb: Yeah. But, from the sounds of it, my doctor believes that I will have retrograde ejaculation as a result of the surgery. I've actually had it from one of the medications I had before. I talked to my SO, and she's comfortable with either. If we wanted to have kids (we are not planning to have kids), it's still not out of the question. I guess we'll see what happens during my appointment in April.

And, the update is...I don't have an update. I keep calling in and am told that they will call me back. It seems like both doctors are never in the office at the same time. This shit is so old. Edit: Dr 1's nurses finally got back to me. Dr 1 wants to do a trans-urethral incision of the prostate or TUIP. Talked to the SO, and she has no issues with it. I read an article stating that the TURP is more effective than the TUIP, and that it (TUIP) was done more for people who have more severe health issues. I'm going to definately talk to Dr 1 and 2 regarding TUIP and TURP. Anyone have any special knowledge they'd like to share?

I'm a switch. My partner likes shibari/bondage, needle play, and sensation play. I'm into...lots of things, to include diapers, bathroom control (being told when I can go, and how I can go), fire play, knife play, violet wand play, spankings, floggings, nipple torture (I can almost cum from this one alone), biting, and well pain in all its forms if being dominated right, figging, pegging, enemas, forceful face fucks, etc...

Security or Comfort Diapers keep my furniture and me dry. Also, when I'm having a flare and I have to make multiple trips to the bathroom they are pretty convenient and keep the pressure/pain down.

Molicare Super-plus. My day-time diapers are Molicare Supers.

@redneck diaper boy: I am in the process of my second opinion with Dr 2. It seems that Dr 1 and Dr 2 don't see eye to eye. However, if I still don't like what is happening I'll go outside their network. @Bettypooh: I've had to bring in notepads in the past. I work with MDs and PSYDs at one of my jobs and they are so full of themselves. It is definately a different experience being at the receiving end of their bravado. I unfortunately had a few questions to ask this last Monday, but was not given the opportunity to ask away. Plus, the cystoscopy was pretty intense and that did a good job of shutting down my thought process.

@sara_ab: Wonderful idea. They actually work in the same office. One of the reasons I'm going to call in tomorrow is because Dr 2 stated that she wanted to follow up with me after the cystoscopy. Then after I got it done, Dr 1 was like, 'I still don't know whats going on with you. We haven't ruled anything out. Your case is extremely rare..yada yada yada. Try the new meds and follow up with me in three months and we'll see about the surgery.' The surgery is definately an issue, and I have tried to talk to my SO about it, and she basically said she needed to think further about it. We don't have any plans to have children. But, removing the ability to have children is another issue entirely. From what I understand, Dr 1 was saying that the surgery could cause 'reflux issues.' So, I might be able to produce sperm and such, but it won't come out right. It's another reason why I want to know what the surgery is, so I can dig further. I want to know of ALL costs and benefits, especially if there is a probability that it won't help me at all. Thanks for the words of encouragement!

I recently saw a specialist that my urologist referred me to, because I have not had much sucess in getting diagnosed with something or treatment. The specialist mentioned painful bladder several times. However, she stated she did not know what exactly was going on with me. She gave me a few options: get surgery on my prostate - microcuts to reduce pressure, physical therapy for my pelvic floor muscle, or electrostimulation for my pelvic floor muscle, OR get a cystoscopy to check to see if my prostate is the issue. My main urologist saw me Monday and did the cystoscopy. My brain kind of turned off afterwards, and I wasn't able to ask many questions. He did tell me that he found the obstruction that my urodynamic study found (increased pressures). He stated that the neck of my bladder was suspended, and that it may be the cause of some of my problems. He suggested some surgery, and told me that it may not help at all..but would definately impair my ability to have children in the future. My symptoms - seem to come and go regardless of medications: frequent, painful, urination painful ejaculation tender testicles constant pressure in my bladder and lower abdomen - during flares it gets much worse feeling of not emptying after urination painful spasms in my bladder bedwetting My medications: Toviaz 8mg, Tofranil 20mg, Tamulosin .4mg I plan on calling the office tomorrow morning to ask a few questions. I don't know if they'll answer, but I plan on asking anyways: What is the name of the surgery that Dr 1 wants me to do? Does Dr 2 want to meet with me again, to discuss the alternative therapies - since we have the results from the cytoscopy? Should I try to do kegels? To confirm, does Dr 2 think that I have painful bladder syndrome? Did Dr 1 observe anything in my bladder that would point to painful bladder syndrome? If anyone has any suggestions, comments, etc.. I welcome them. Thanks for your time.

I bought my mattress protector from Target. Something like: http://www.target.com/p/Allerease-Mattress-Cover/-/A-13079652

Another update! I saw a new urologist yesterday to follow-up after getting my urodynamics study. She stated that basically, I have very high pressures in my bladder and even with that I had a very low stream while urinating. According to her, this usually indicates a blockage. However, this has not been observed in any of my tests. She believes that the issue either lies in my pelvic floor muscles or within my prostate and that my options are: physical therapy to relax my pelvic floor muscles, electro-therapy (TENS unit), or micro cuts to my prostate or prostate muscles to reduce some of the tension. She said that either I could begin the physical therapy to reduce the pressure or get another scope and see if the issue lies with my prostate. I chose to get scoped, because, well, why would I do physical therapy when that may not be the problem? I definately like this new urologist, she seemed very empathetic and pointed out that I had been seeing my previous urologist for over a year, and nothing that he suggested had worked. So, the appointment is set for January 23rd. I hope that this produces some valuable information. On a side note, I had to travel to Arkansas to visit my wife's family twice in the past month. Man, that was hard for me. We thankfully got our own rooms during both trips, but I had to go out of my way to dispose of my diapers daily at gas stations and such. My wife and I decided not to tell our hosts of my issues and I just slept on my pads in case of a leak. I was so nervous about the trips that I tried doing the alarm thing, and suffice to say that it did not work out. I could not get the alarms right, and I kept wetting in between alarms. After four days of laundry my wife said that was enough. I'm feeling a variety of emotions right now. Relief that my urologist actually believes what I'm saying and has a plan to help me. Annoyance that this problem has been going on, and how it has impacted my life. And, I'm kind of worried about what this test will find out, and basically all that entails. Thanks for letting me get that off my chest. Happy Holidays to y'all from TX.

Sounds good. Will do...

http://s3.amazonaws.com/data.tumblr.com/tumblr_lqozml93MB1qjp9h2o1_1280.jpg?AWSAccessKeyId=AKIAJ6IHWSU3BX3X7X3Q&Expires=1316287736&Signature=6f3Qf0IoSTSgRqU7azP3cwz7WZc%3D Looking for stuff to get my SO

Jen Harris, You feel the need to go like normal, but the way is blocked. You can still push the plug out and go, but its a little harder. I am not aware of any health risks related to this. Being backed up or wearing a plug for 8 hours isnt going to kill you. Source: http://www.edenfantasys.com/sex-guides-and-tips/guides/anal-toys-and-anal-pleasure/anal-beads-and-butt-plugs

So...I just saw my Urologist this morning..I had to reschedule my last appointment. He was all worried because they found a mass in my pelvic area. They had the mass listed as a uterus. Yeah. So, I have a CT scan scheduled for tomorrow and a follow up with el doctor Thursday. Wish me luck! Edit: I have seen my doctor. (I dont know what the rules are for multi-posting one after another....) I saw my urologist. The CT scan revealed no abnormalities. He said that he couldnt find anything going on. He then told me that he believes that my frequency is due to leftover irritation from prostatitis, and from years of trying to hold my bladder while I was at work. He chalked my bedwetting up to the learned behavior previously mentioned and a crazy sleep schedule (I get up at 6:50am and go to sleep ~1230-1AM). He said that he thought that I was doing everything right diet-wise. He said that he is going to prescribe me Bactrim, a milder antibiotic to ensure that the prostatitis is wiped out. He's keeping me on tamulosin, and changing my prescription to 4mg toviaz. He suggested that I get an alarm to use on the weekend, or outside of the semester. He said that he will follow up with me in two months, and is still considering having me do a urodynamics test to study pressures and such within my bladder. He also offered to send me out for a second opinion, and to someone who specializes in neurogenic bladders. Based off that word, I'm going to say that I probably am wasting my time and seeing that specialist. Neuro = neurological and Genics = genesis or when I was born. I hadn't had any bladder issues as an adult since 2004. Either way, I think that I'm going to wait it out and see what happens in two months. I can say that I'm pretty excited. If this is only by the prostatitus, then there is a chance I won't have these symptoms again. However, I wont keep my hopes up....I dont want to be let down, when he says that he changed his mind in two months....