Regraining,a Nd Possible Retraining

[Guest wayneo]

Hello,

I have something going on with me that I am hoping is like a miracle..I have been day incontinent since I was 19 I am now 36. Well I was told that my incontinence is caused by a slight spinal abnormality, kind of like spina bifida but, I am not diagnosed as having spina bifida..

Well the last year or so I also started having trouble controlling my bowels. (which is very hard for me to deal with) as I am in a high position and meet with many people and it just plain gross's me out.

Well I have always had back pain the last few years it ihas gotten really bad where sometimes it limits me, sometimes need help getting out of bed. Well I have been going to Pain Managment and they have started doing epidurals, I got my 2nd one yesterday.

This morning I wake up I am soaked as usual and then all of a sudden, I get this feeling I have not felt in probably 15+ years I knew what it was immediately. My bladder was telling me I had to pee. I ran to the bathroom tore off my diaper and sat down on the toilet and I peed in the toilet! I tried to stop peeing when I was sitting there with no luck doing that. I was happy though put on a pull up and did my morning routine. An hour and a half later I got in the shower while in the shower I got the urge again and I started peeing again still could not control it but I knew it was coming..

All day today I have got the signal I needed to pee did not make it to the bathroom at all before I wet myself (in a diaper). Today I have gone through more diapers than I ever have in a day trying to make it to the bathroom but I have hope.. I called my Dr. this morning and she was not in today, but is going to call me tomorrow I am wondering is something like getting your continence back?? Will it go away will I be able to potty train myself for a lack of better words. I am going to get pull ups for tonight and as long as i do no leak a bunch tonight I will try them tomorrow for work. I am thinking maybe now the medications that the Dr.s have tried me on all these years and core exercises if I continue to get the feeling of needing to pee I truly have hope of reagining my continence.

Then I guess the next question will be, will my AB feelings dwindle. I have just started having the last couple of years, will they subside if I can regain control and not need diapers? Even if I still have AB feelings it would be so nice deciding I wanted to wear a diaper and not need to wear a diaper.. I am so Excited I ahd to share this with everyone..

Wayne

[plusmbr]

Hello,

I have something going on with me that I am hoping is like a miracle..I have been day incontinent since I was 19 I am now 36. Well I was told that my incontinence is caused by a slight spinal abnormality, kind of like spina bifida but, I am not diagnosed as having spina bifida..

Well the last year or so I also started having trouble controlling my bowels. (which is very hard for me to deal with) as I am in a high position and meet with many people and it just plain gross's me out.

Well I have always had back pain the last few years it ihas gotten really bad where sometimes it limits me, sometimes need help getting out of bed. Well I have been going to Pain Managment and they have started doing epidurals, I got my 2nd one yesterday.

This morning I wake up I am soaked as usual and then all of a sudden, I get this feeling I have not felt in probably 15+ years I knew what it was immediately. My bladder was telling me I had to pee. I ran to the bathroom tore off my diaper and sat down on the toilet and I peed in the toilet! I tried to stop peeing when I was sitting there with no luck doing that. I was happy though put on a pull up and did my morning routine. An hour and a half later I got in the shower while in the shower I got the urge again and I started peeing again still could not control it but I knew it was coming..

All day today I have got the signal I needed to pee did not make it to the bathroom at all before I wet myself (in a diaper). Today I have gone through more diapers than I ever have in a day trying to make it to the bathroom but I have hope.. I called my Dr. this morning and she was not in today, but is going to call me tomorrow I am wondering is something like getting your continence back?? Will it go away will I be able to potty train myself for a lack of better words. I am going to get pull ups for tonight and as long as i do no leak a bunch tonight I will try them tomorrow for work. I am thinking maybe now the medications that the Dr.s have tried me on all these years and core exercises if I continue to get the feeling of needing to pee I truly have hope of reagining my continence.

Then I guess the next question will be, will my AB feelings dwindle. I have just started having the last couple of years, will they subside if I can regain control and not need diapers? Even if I still have AB feelings it would be so nice deciding I wanted to wear a diaper and not need to wear a diaper.. I am so Excited I ahd to share this with everyone..

Wayne

Might want to give a chiropractor a try. I had IBS really bad,,,since going to the chiropractor, it is quite manageable now. I still wear pull ups and all in ones just in case. Still have a little leakage once in a while but not had a bad accident in a while.

[Bettypooh]

Two thoughts here. Main is a good chiropractor, and you might have to see several before finding the good one. I'm on my 7th and last one, she's awesome. So how do you know who is good? Firstly, they will not do much(if anything) to you without current xrays of your back because they understand that there can be a lot which can't be seen or felt from the outside and that the tiniest mistake can cause yo great harm. Second, they will not "string you along", making sure that you return regularly for months on end even though you see no improvement or alternately doing so little that you have to return for months on end. Third is watching what questions they ask you, a good one will want to know as much about you as your doctor does because they understand that bone, muscle, and nerve health is affected by diet, how you do things, and your individual lifestyle.My quest was for painful injury, but I've learned so much about the back now I can promise you that a good chiropractor can do some good for everybody As to your situation, if there is nerve injury due to something in the back having been wrong all along, the odds are good that normal doctors wouldn't catch it. And this can be a cause of incontinence, clinical depression, and a host of other things you'd never associate with the back Note that I didn't say always or likely, only that it has been known to happen and passes clinical research standards for proof.

Lastly, I wouldn't reduce the usual capacity of your diaper until you're positive that you aren't going to need it for obvious reasons. I wish you all the best for a cure, and as to any DL aspects it might be even more pleasant to have it as something special for 'playtime' while you experience other underwear options you didn't have before on a regular basis

Bettypooh

[babykeiff]

I am only dx you from what information you gave in your post. For clarity, I will pick out the main points

19 - 36 (17 years) - Bladder Incontinent due to spinal problems. - More correct, spinal nerve injury.

35 - 36 (1+ year) - Bowel incontinence

Within the past 3 months - sensation returning before peeing.

1/ If your condition is progressive, you will loose all sensation in both bladder and bowel.

2/ It could also be psychosomatic - ie the fact that you have been diapered for 17 years, your subcontious has decided to relax your anal sphincter - and this will temporarily give you some urinary sphincter sensation.

3/If your condition is regressive, you will eventually gain 60% control, but will never regain 100% control. -ie You will leak when stressed, laugh, and sleep, but under normal conditions, will be able to control your bladder. This means that you may be able to get away with some lighter form or protection like a pull-up etc.

Each of the above three would have to be confirmed by your urologist or medical practitioner, who will check for muscle tone etc. If, however, the associated muscles have atrophied (a high chance of that - 17 years of non use) you will never gain urinary control. This is a chance considering that you are aware of the sensation, but unable to react to control it.

[littleJaina]

BK, I don't agree with your diagnosis at all. At any rate, I think you ought to be a bit more hopeful. My initial take on things is that there may have been significant pain or swelling around his nerves that has been relieved by the recent treatment. While atrophy is a problem, there is no muscle in the body where atrophy cannot be reversed. It will probably require some biofeedback to help strengthen the muscles in the right places, but it is possible. Back to 100% may not be quite feasible, but then again as adults age the definition of 100% becomes shakier too. Very few women who give birth are ever quite at the same level they were before birth because of a variety of things, but most of them never even report symptoms because they are so minor.

However, I do agree that it in this situation it would be worth looking into a chiropractor. I'd definitely want one that looked at x-rays though. If you have an irregular spine, you don't want someone jacking with your spinal column without knowing where everything stands. However, chiropractors are great for many things including pain management. If pain has been a factor in your incontinence (or numbness that led to incontinence) then it may well be worth looking into! Good luck!

I am only dx you from what information you gave in your post. For clarity, I will pick out the main points

19 - 36 (17 years) - Bladder Incontinent due to spinal problems. - More correct, spinal nerve injury.

35 - 36 (1+ year) - Bowel incontinence

Within the past 3 months - sensation returning before peeing.

1/ If your condition is progressive, you will loose all sensation in both bladder and bowel.

2/ It could also be psychosomatic - ie the fact that you have been diapered for 17 years, your subcontious has decided to relax your anal sphincter - and this will temporarily give you some urinary sphincter sensation.

3/If your condition is regressive, you will eventually gain 60% control, but will never regain 100% control. -ie You will leak when stressed, laugh, and sleep, but under normal conditions, will be able to control your bladder. This means that you may be able to get away with some lighter form or protection like a pull-up etc.

Each of the above three would have to be confirmed by your urologist or medical practitioner, who will check for muscle tone etc. If, however, the associated muscles have atrophied (a high chance of that - 17 years of non use) you will never gain urinary control. This is a chance considering that you are aware of the sensation, but unable to react to control it.

[babykeiff]

BK, I don't agree with your diagnosis at all. At any rate, I think you ought to be a bit more hopeful. My initial take on things is that there may have been significant pain or swelling around his nerves that has been relieved by the recent treatment. While atrophy is a problem, there is no muscle in the body where atrophy cannot be reversed. It will probably require some biofeedback to help strengthen the muscles in the right places, but it is possible. Back to 100% may not be quite feasible, but then again as adults age the definition of 100% becomes shakier too. Very few women who give birth are ever quite at the same level they were before birth because of a variety of things, but most of them never even report symptoms because they are so minor.

However, I do agree that it in this situation it would be worth looking into a chiropractor. I'd definitely want one that looked at x-rays though. If you have an irregular spine, you don't want someone jacking with your spinal column without knowing where everything stands. However, chiropractors are great for many things including pain management. If pain has been a factor in your incontinence (or numbness that led to incontinence) then it may well be worth looking into! Good luck!

"BK, I don't agree with your diagnosis at all. At any rate, I think you ought to be a bit more hopeful."

What do you wish me to do. Lie or possible mislead wayneo? I suggested that he confirms what I stated with a urologist and a reputable medical practitioner. What else can I say?

"My initial take on things is that there may have been significant pain or swelling around his nerves that has been relieved by the recent treatment."

That is a assumption that you have made. Yes, wayneo stated that he is getting treatment for pain, but never stated what the pain was affecting.

While atrophy is a problem, there is no muscle in the body where atrophy cannot be reversed. It will probably require some biofeedback to help strengthen the muscles in the right places, but it is possible.

Where can you regrow something that has died? Yes you are somewhat correct in the fact that partial atrophied muscalar tissue can be exercised to grow new tissue on top of old, but with wayneo, we are talking abut non-usage of 17 years. Biofeedback - yes that works in about 5% of cases where the lack of usage is within 12-24 months, not 17 years. It is also used as a semi-preventive action in certain forms of muscalar dystrophy. What else would you suggest, electric inducements similar to Frankenstiens lab?

However, I do agree that it in this situation it would be worth looking into a chiropractor.

Would not a orthopedic specialist be a little more qualified/experienced to address the issue, with a consult from an urologist be a little more correct?

"If you have an irregular spine, you don't want someone jacking with your spinal column without knowing where everything stands."

I love your terminology 'irregular spine'. Normal OR abnormal growth of the human spinal column does NOT, by rule, cause pain. The pain is caused by tears of fractures within its tissue structure normally cause by either impact or stress injury.

"However, chiropractors are great for many things including pain management."

..as is a dentist great for eye care, or a veterinarian great for curing cancer in humans. Pain is the humans primary notification that something is not correct. If you have pain do you try and cure the symptom and ignore the problem. Would you prescribe a person head-ache tablets if he comes into your clinic with an axe buried in his head?

"If pain has been a factor in your incontinence (or numbness that led to incontinence) then it may well be worth looking into! Good luck!"

I would reasonably expect that wayneo, being incontinent for 17 years, has 'looked into this' sometime in the past 17 years!

littleJaina, are you, by profession, a chiropractor, or training to be one, or are you a Suse developer using the Python command line client OSC? In my humble opinion, you seem to be slightly out of your depth with your advice.

[babytommy1981]

I have had IBS for along time since early teens, and been a bed wetter my whole life, after my motorcycle wreck, i started wetting and pooping during the day, i surgery witch has helped with the pooping and some of the wetting, when i started going to my chiropractor i told her about my little problems, she said she would try her best, the first time was not fun it hurt as my back was all out of wack. now after about 6 times going, i can feel my bladder but i know im going to pee know, my bowls are kinda under control unless i eat to much fat in my diet. then its back to soiled diapers again. as i juct can hold it to make it to the bathroom.

find your self a good chiropractor as they too can help with your back. and pain managment is great been getting that done since march 2001. it helps me be able to walk with out hurting.

I should be in a wheel chair, but until the day comes i cant walk or bare the pain anymore. ill walk as many miles as i can even when wear my diapers.

[babykeiff]

I give up.

[Guest wayneo]

Well this is a few weeks into my feeling of peeing again. It is much worse for me now knowing when I am wetting. Before i would just wet and not really know I am wetting, now I know I am wetting and unable to do anything. I go thru many more diapers than I ever have in my life.

I had been seeing Chiropractors for about 4 years until i just could not function day in and day out with the pain. The four different chiropractors that I have seen over the last 4 years all did xrays. They all did the same types of adjustments and all said the same thing about not being comfortabloe doing certain adjustments. While none of the Chiros saw on the x rays the 2 bulging disks and the one ruptured disk.

With no improvement from the Chiros I went to Pain manangement, they had an MRI done and said I should not be going to a Chiro with the disk issues. The pain management docs did 2 epidurals with no relief from the pain, they tried giving me all knids of pain meds which I declined as I have to be sharp at all times at work. They said they could do one more that they will only do a total of 3 in a 12 month period,a nd one every 6 months after that. they did the third one and that when the peeing sensation came back. I was in Heaven for 2 days until i visited my Primary and told her of the sensations i was having of peeing. She sent me to a new Urologist (26 years old) which she ws excited about him being on the cutting edge. Well i went to him last week which I hate going to new docs and going thru my whole history..UGH Well I liked him a lot he sent me to he sent me to the hospital for a Uro dynamics test which I am asuming came back not good, because wants me to go it Friday and he said he wants to do more tests and get with a Neuro for a consult. I at this point asked him is there a chance and he said to be honest right now no.. He did say but, and that he has hope so I should also. So back to him Friday I know this is going to be all the Damn visits again for the next 6 months...but if I can regain my continence i am game for all of the tests.

I would love to go to bed with my wife have a normal round of sex and not have to scramble for my diaper right afterwards..Now I will be honest that I have some ab feelings which only started a year or two ago, i think due to a Nurse at my Urologists office long story.. I would love to choose to wear them if I had the feeling of wanting to wear a diaper. So I am not giving all hope up but my primary gave me the 95% chance of not regaining control to the point of not needing some sort of protection. 5% is more than I had 5 weeks ago..

Wayne0