kasarberang

Thank you for the shoutout!

No problem, I really enjoyed your story and I thought it deserved more attention.

I have no idea if my post will actually give it more attention, but I figure it couldn't hurt. :)

Same to you @kasarberang

Brian

@kasarberang

If everyone had a normal life, and nothing ever changed, there would be no challenges to face, and no way to enrich yourself or learn new things.  Being disabled, and having CP, I was raised by a GREAT family, who allowed me to be myself and taught me many things.  When I was born, there was no "manual" on how to take care of disabled children, and my Mom and Dad did that twice, once with me, and once with my brother. 

Being disabled was a "normal" part of my life, because it was all I ever knew:  My parents taught me well, inspired my choice of vocation, supported me in my decisions (some good, some bad), and taught me the differences between right, and wrong, and helped me through my life.  My brother Mike may say I was "sheltered" from things around me, and maybe I was, but I think I turned out pretty well for a guy that they thought would not be able to do many things -and each of these, I proved I could do.

"Normal" is a state or a condition, and should not be confused with what we consider "Normal" because for each of us, Normal means different things.  In 2020, "Normal" means: Any state or condition that was in place PRIOR to the pandemic, and all the things we were able to do before that occurred.  Now, in 2020, Normal is a state where we are all doing what some officials are asking us to do, and where we are trying to remain healthy and not get sick. 

You and I have our challenges, our minds, our families, and our memories.  We may have to continue to make sacrifices, and adopt a "New Normal" as we proceed, but we we will NEVER FORGET the past, and what makes us special.

If I had to make a choice, I am glad I am the way I am - I would not change ONE THING that happened in my life, although I do sometimes wish that I could have made different choices sometimes, but I would still be who I am, and I would not change that:  I have good supports, a great love of my family, and I am gonna be an UNCLE again soon to a little Baby Girl, so I would not change anything.

I am also happy I am not "normal" because in this context, I normal, but that makes me, the person I am, and that is special:  God made me who I am, and I would not change that.

Keep thinking Positive - We WILL get through this!

Brian

And you officially have a wife. Great job buddy!?? Not many youngsters do at that age. Usually they're off in college getting drunk and partying or having sex. Or just being stupid in general. Congratulations buddy! Like I said before, I hope you're having a happy birthday and enjoying it! Glad to see you got your life figured out at such a young age.?☺️??❤️?

@BabySpiderBoyYep! I have been married for almost 4 years! (it'll be 4 years in March). It was always one of my life goals to be married and independent, never really thought it'd happen so early, either. Things happened better than I could have ever hoped, I'm so lucky to live the life I do. Wouldn't trade it for the world.

That's great to hear, considering you have to put up with IVs on a daily basis and not having the ability to eat and just drink soups all day. You really handle that like a pro. And I'm so glad you're so happy in your life. *BIG HUGS!* Buddy!???????❤️

Happy birthday month

I hope your wife survived the flaming hot challenge

Personally, when it comes to rood I don't think you're missing all that much (though I think some people would kill me for that comment!) For some people it's a passion but for me, I'm not really all that bothered. I'm certainly not going to cook for hours to make something I'll eat in minutes

That's very true! @Elfy??

And yes @kasarberang spicy is most definitely a flavor!?? I love spicy food! As for condiments, I don't really use them. Not that I don't like them. It's just that most of the time I don't see any need for them. I only use them if the food tastes bad, which doesn't happen a lot, if any. When I was in hospitals I hated being hooked up to I.Vs. I couldn't imagine having to do that everyday. Like I said, you have tremendous strength! And I think you dislike most flavors because of your gag reflex, which isn't your fault. Hell, if I was in your position, I would probably feel the same way.??? But I'm glad you at least get a lot of enjoyment out of watching people eat. Ketchup to me is only good on cheeseburgers and meatloaf. Other than that I can't really think of anything else it would be good on, besides fries. But then again it depends on the type of fries. Like curly fries for example. To me, those don't need ketchup.

Maybe they were just   s l o w .

@kasarberang

One type of cough med is a suppressant, which means that it will calm your coughing if it is causing you issues, like being unable to sleep, or do normal activities. 

The other, is an expectorant, which means that it will make it easier for you to cough up stuff in your lungs.  This is helpful so if there is anything in your lungs (Mucus, etc) you can cough it up, so it (hopefully) won't cause pneumonia or other issues.

Have a Great Day!

Brian

@kasarberang

Good Luck with that Bud - Never dealt with many shipments from overseas, but when I did, they seemed to take a hell of a lot LONGER to get here, and even when they are here, seems to take AGES to get something, especially from china......

Brian

@~Brian~It's here, due to the pandemic all the sites are offering a far more limited selection of shipping options, so it's here, like in my county. They're just withholding it because the company didn't provide a good enough description, hoping it will be resolved by the company, or I can get a hold of FedEx next time to handle it myself.

Thanks:  and I sent the site another $25 - feel pretty generous this month, and I LOVE this place

Was messing around with my GoPro Hero 8 Black, need to see what I got - also went out for the first time in like 2 months today with mask on - Doctors orders hehehe   Sometimes, wish what happened (in the story)  that would happen to me, pretty girl, you know the drill *grin*

@kasarberang

Way to Go Man - Cant wait to read it

Brian

Thank you Brian! I hope it matches or even exceeds or expectations.

Don't worry man:  I know how hard that can be:  You have an idea or a premise and you are not able to come up with a way to make everything make sense....Its like having a salad...You have all the INGREDIENTS, but you have a hard time deciding what you could make to go **with the salad**

Take your time Man.....I KNOW the feeling.....having Ideas on the tip of your brain, and not being able to turn them to words......You are NOT alone

Good Luck!

Brian

I agree! It's definitely awful! Haha.

@Jesse The BabySpiderBoy

It's often not the doctors, but the nurses. And yes, it's a matter of sterility.

Speaking frankly, it's easy for someone to say that they've received only the best of care if the care they receive does not require a whole lot of effort on a nurse's part. It's not hard to say, change a bandage, rotate a patient, give someone medication, take someone to the bathroom, or even to insert and deal with a simple arm I.V. Those things are fairly low risk and require low skill and effort on the nurse's part. I could literally do most of those things myself, no problem.

It's often those require a certain level of care, one that requires someone to actually, well, give a shit. Something that, if messed up, could literally kill the patient. It's those people who receive the shit care because nurses simply don't, they don't care. If the patient dies because they weren't careful, or didn't maintain sterile protocol, they still get their paycheck, they won't get in trouble "oh, he was going to die anyway" they'd say and because the situation was slightly more complex than average, everyone will believe that, yeah they probably would have died anyway.

I have had such a bad experience with the medical industry that I actively avoid telling my doctors things that any normal person would be worried about. I've had multiple issues where I tell the doctors the problem, so then the doctors try and "fix it", usually the "fix" causes permanent problems and doesn't actually fix the original issue. So, I've just stopped telling anyone anything, unless I, personally, deem it an emergency. The doctors aren't as bad as the nurses though, I have had better experiences with them on average (though still plenty of bad experiences.) I think it's because it's far easier to become a nurse than a doctor, so doctor's tend to be more knowledgeable and more caring in general.

That is EXTREMELY fucked up! No wonder you HATE the medical industry. I would too given what you've been through. Like, GOOD God!☹️?????? Those nurses should get their medical license taken away, if they do stuff like that. it goes against the hypocratic oath. Especially because a patient can die on your watch when you could've prevented it. That's JUST cold blooded murder at THAT point. LOL!???????

@Jesse The BabySpiderBoyThe fact is nurses, especially RN's which is the only level of nurse which is allowed to take care of people like me, are on short supply. They get hired and basically can do whatever they want because they graduated from nursing school. That's all it takes, they don't have to be good, and they will never get fired, and even if they are, it doesn't mean anything. Companies will snatch any RN up if they get a chance.

I had a nurse who was there when my dad had a heart attack, she was taking care of me at the time, but I was upstairs watching stuff with my wife, while she was downstairs. She watched my dad die on the stairs of our house as my sister's screamed. She did not perform CPR on my dad, which could have saved his life.

She is still at the exact nursing agency she was at when she was working with me, she didn't even get a slap on the wrist for not performing CPR which she is technically mandated to do if ever there's a situation like that.

No, my Emojis are more or less to just Express my emotions. I try to use my Emojis to express my tone of voice in my opinion of what I'm saying so that it has more of a connection to how I feel emotionally about a topic. It's ALSO just another way to show my personality, because I have a VERY silly personality actually.???? I'm a legit 11 or 12 year old in an 27-year-old body. LOL! A 27 year old DISABLED body. Nevertheless!??