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ImmortalDzire

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Posts posted by ImmortalDzire

  1. Questions

    As a child, did you have problems with staying dry or avoiding messing yourself during the day at any point after the age of about 4?

    I recall having a small number of accidents, primarily when out of the house in unfamiliar environments; my parents had a very unrealistic view of how long I should be able to wait

    As a child, did you have problems with staying dry or avoiding messing yourself during the night at any point after the age of about 6?

    Not that I recall

    Do you currently experience, or have you previously experienced, the need to urinate eight (8) or more times per day?

    Yes, it varies but if I'm hydrating properly I'll go as many as 12-14 times daily

    Do you currently experience, or have you previously experienced, faecal staining on your underwear despite conscientiously and carefully wiping and cleaning yourself?

    All the time

    Do you currently experience, or have you previously experienced, the need to urinate during the night, such that you consistently wake up two (2) or more times per night?

    I usually don't get up that I'm aware of but recently I've begun getting up once a night

    Have you ever had to rush to the toilet because you were afraid you might otherwise wet or mess yourself, whether or not you feel like there was any reason to believe that in hindsight?

    I frequently find myself feeling a strong urge, especially with a BM

    Have you ever refused to do, or been reluctant to do, any activity or task because you're worried you might have an accident, whether or not you feel like there was any reason to believe that in hindsight?

    Not that I can think of immediately

    Regardless of whether you actually have any trouble staying dry and clean in practice, do you feel like you have to put in any conscious effort to maintain your continence? Regardless of whether you have any reason to believe your continence is compromised, do you find yourself feeling worried that it might not hold up?

    I am actively aware that it seems to be degrading, I definitely feel more aware of it than ever.

    Regardless of whether you actually have any trouble staying dry and clean in practice, do you feel like it's harder work to maintain your continence, or like your continence is more likely to fail, than it was some time ago, e.g. a few years ago?

    Most certainly, in my teen years it felt rock solid and I could go long periods without needing the bathroom up to 2-3 hrs after the initial urge

    Do you currently experience, or have you previously experienced, incidents where you coughed, laughed, sneezed, engaged in exercise, did manual work, etc., and then became aware you had wet or messed yourself to any degree as a result?

    Yes, I find my underwear frequently becomes damp without my knowing by the end of day

    Do you currently experience, or have you previously experienced, a sudden, compelling physiological need to urinate or defecate which is difficult to defer?

    Frequently

    As a result of the "sudden, compelling physiological need" described above, have you ever actually wet or messed yourself?

    As a transgender person, the ability to find an unoccupied bathroom that accomodates me in the workplace hinders my ability to make it in time. So yes.

    Do you consider yourself completely continent, more-or-less continent, or something else? Please provide details.

    Becoming gradually less continent, more-or-less.

    Do you have a clinical diagnosis or confident self-diagnosis of any of the following conditions?

    • ADHD predominantly inattentive, a/k/a ADD
    • ADHD predominantly hyperactive
    • autism
    • dysautonomia, autonomic dysfunction, or autonomic dysregulation
    • Ehlers–Danlos syndrome (EDS), any type
    • EDS, hypermobile type (hEDS) specifically
    • fibromyalgia
    • mast cell activation syndrome (MCAS)
    • myalgic encephalitis/chronic fatigue syndrome (ME/CFS)
    • orthostatic intolerance (OI)
    • polycystic ovarian syndrome (PCOS)
    • postural orthostatic tachycardia syndrome (POTS), any type
    • POTS, central hyperadrenergic type (hyperPOTS) specifically
    • sensory processing disorder (SPD)
       
    • Autosomal Dominant Polycystic Kidney Disease (Type1)

    Do you experience the recurring or ongoing desire to lose control of your bladder and/or your bowels? Have you ever tried to? Do you have any plans to?

    I had thoughts like this since I was about 12, and continue to; I wager my continence is a matter of time and I would rather embrace it and go full-monty than remain in a midspace.

  2. Just a general discussion on what everybody prefers to use

    I've sampled a few

    - johnson's baby oil (smells good, but next to pointless)

    - jojoba oil (not really helpful in this area, but makes skin feel nice without any scent)

    - castor oil (sticks well, costs a bit, better value as a laxative)

    - palmers bottom butter (a fave for the texture and cocoa smell)

    - Sudocrem (smells good, comes off too easily)

    - Ungvita (smells f**king awful due to cod liver oil, works the best for rashes as a final resort)

    any recommendations? (preferrably not through amazon which doesn't really cater to my country)

    could be helpful to share this sort of info between us for future reference, especially for those who may have sensitive skin and want to find a good solution

  3. I've been lurking here for some time now, but this will be my first post ;)

    Recently had the opportunity to pick up some of the old Molicare super plus plastic backed in my size (small), I know others have complained about the drop in quality but the supplier I buy from doesn't move a lot of stock because I'm in New Zealand hence I came into a supply of the older, better stuff!

    I digress, Tonight I'm trying a double diaper with a 500ml enema of warm water and powdered potato just liquid enough to go in but thick enough to start settling in and feeling heavy on the ol' tushy. Anybody else try something similar?

    Will post results if there's interest :)

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