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moondog

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Posts posted by moondog

    Problems With Diaperspace

    in Our Lifestyle Discussion

    Posted

    Hello,

    Does anyone know how to get in contact with the admin at DiaperSpace? I have been trying to register on their site for a month but I cannot get a response and whenever I try to login there I get a message stating that "account is not activated". Can anyone help?

    thanks!

    External Sphincter Dyssynergia (Desd)

    in Incontinence - Medical

    Posted

    I get urinary tract infections about once every three years and usually a weeks worth of antibiotics clears them up with no problem. Actually my health is so much better now because I am not constantly having surgeries like I was before. I think the stents are a better option for DESD because they don't initiate the scarring and strictures like sphincterotomies do and I know that they can be removed.

    External Sphincter Dyssynergia (Desd)

    in Incontinence - Medical

    Posted

    Hi Thomas,

    I had three sphincterotomies and a bladder neck resection to treat my DESD. The operations were eventually successful in that they reduced the pressure in my bladder and saved my kidneys and left me dripping all the time, but I had an unfortunate side effect. I developed severe urethral scarring due to the surgeries. To treat the scarring they put in stents, about 3 or 4, if I remember correctly. Unfortunetly the stents didn't stop the scarring from closing off my urethra so I had to have a urethroplasty. The doctor cut out all of the stents which the tissue and scarring had grown over and left me with a urethral opening below my scrotum by pulling up my scrotum into my bladder. The doctor that performed this surgery was and probably still is the best urologic surgeon in the United States. I had really good insurance at that time. So now I drip constantly out an opening below my scrotum which connects directly to my bladder. I no longer have any problems whatsoever except dealing with the incontinence; diapers are my only option. It was pure hell with the scarring and the strictures the first sugeries caused; imagine taking a stiff plastic catheter and jamming it with all the strength you have to force it into your bladder. I was in that situation for over a year. I think if I had to do it over I would start with the stents because the risk of scarring and strictures from a sphincterotomy are too great.

    Moondog

    New And Improved Wellness Diapers

    in Diaper Lovers

    Posted

    Hello, Has anyone tried the "new and improved" wellness diapers listed on ebay? I used to order them regularly, i am incontinent, but they changed the design and the plastic backing would often tear so I stopped using them about a year ago and switched to the dry 247 which work great, but are expensive. I would like to try the wellness again if I knew that the problem with the plastic backing was fixed. Anyone familair with the improvements? Thanks!

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