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kasarberang

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kasarberang last won the day on May 12 2022

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About kasarberang

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  1. @Jesse The BabySpiderBoyI'm moving this conversation here, as I always feel bad whenever we derail a thread to talk about something unrelated.

    To try and answer your question of why other with my condition did not live very long.

     

    Because the level of care required is higher than the standards of the medical industry. They would get infection after infection caused by nurses/doctors not being careful enough. Even I have had many infections due to medical neglect.

    When I was 2 I had my last site for my central line to go, you have a certain amount of viable places and all of mine were gone by the age of 2.  When that happened my mom learned how to do all my medical stuff and made sure she did things really carefully and really well. She (up until my dad died) had the highest standards as far as my care was concerned. I have gotten very few infections since then. But even my younger sister died from medical neglect. The medical industry is shit, they genuinely don't care and often times do the minimum required to not get fired.

    Not everyone is this way, there are a few genuinely great nurses and doctors out there, but they are the exception, not the rule.

    You know that saying "Male bullies become cops, female bullies become nurses?" from my experience, that's very true.

    1. Show previous comments  1 more
    2. kasarberang

      kasarberang

      @Jesse The BabySpiderBoy

      It's often not the doctors, but the nurses. And yes, it's a matter of sterility.

      Speaking frankly, it's easy for someone to say that they've received only the best of care if the care they receive does not require a whole lot of effort on a nurse's part. It's not hard to say, change a bandage, rotate a patient, give someone medication, take someone to the bathroom, or even to insert and deal with a simple arm I.V. Those things are fairly low risk and require low skill and effort on the nurse's part. I could literally do most of those things myself, no problem.

      It's often those require a certain level of care, one that requires someone to actually, well, give a shit. Something that, if messed up, could literally kill the patient. It's those people who receive the shit care because nurses simply don't, they don't care. If the patient dies because they weren't careful, or didn't maintain sterile protocol, they still get their paycheck, they won't get in trouble "oh, he was going to die anyway" they'd say and because the situation was slightly more complex than average, everyone will believe that, yeah they probably would have died anyway.

      I have had such a bad experience with the medical industry that I actively avoid telling my doctors things that any normal person would be worried about. I've had multiple issues where I tell the doctors the problem, so then the doctors try and "fix it", usually the "fix" causes permanent problems and doesn't actually fix the original issue. So, I've just stopped telling anyone anything, unless I, personally, deem it an emergency. The doctors aren't as bad as the nurses though, I have had better experiences with them on average (though still plenty of bad experiences.) I think it's because it's far easier to become a nurse than a doctor, so doctor's tend to be more knowledgeable and more caring in general.

    3. Little Cub Pants

      Little Cub Pants

      That is EXTREMELY fucked up! No wonder you HATE the medical industry. I would too given what you've been through. Like, GOOD God!☹️?????? Those nurses should get their medical license taken away, if they do stuff like that. it goes against the hypocratic oath. Especially because a patient can die on your watch when you could've prevented it. That's JUST cold blooded murder at THAT point. LOL!???????

    4. kasarberang

      kasarberang

      @Jesse The BabySpiderBoyThe fact is nurses, especially RN's which is the only level of nurse which is allowed to take care of people like me, are on short supply. They get hired and basically can do whatever they want because they graduated from nursing school. That's all it takes, they don't have to be good, and they will never get fired, and even if they are, it doesn't mean anything. Companies will snatch any RN up if they get a chance.

       

      I had a nurse who was there when my dad had a heart attack, she was taking care of me at the time, but I was upstairs watching stuff with my wife, while she was downstairs. She watched my dad die on the stairs of our house as my sister's screamed. She did not perform CPR on my dad, which could have saved his life.

      She is still at the exact nursing agency she was at when she was working with me, she didn't even get a slap on the wrist for not performing CPR which she is technically mandated to do if ever there's a situation like that.

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