[Telegram group for incontineres...err or a group for those that WANT to be incontinent]

Hi. Could you please add me. @Austmo

 

[Getting Surgery in Mexico]

On 2/15/2024 at 12:51 AM, BrownBobby said:

Simple answer on why you don't get "everything": bleeding.  You need to make sure what you did cut can fully heal without causing blood loss, strictures, or worse. Three weeks is enough time for the first round to heal well enough to make a second procedure safe.

What i dont understand is why a larger catheter is not used post surgery, and leaved in until everything is healed around it? I guess everything is not healed properly before after 6 months. If I ever decide the same path, I would have requested that, and lived with whatever pain and inconvenience it made.

[My experience with stents]

49 minutes ago, bleie1990 said:

So I just made my first stent using silicone tubing and stainless steel tubing. I’m quite pleased with the result for this to be my first attempt. The silicone tubing is 6mm and the stainless steel tubing is 5mm

It was quite hard to insert but managed to get it placed in the bladder and I started to drain immediately. One thing I noticed was that was when I clenched like I would to stop the flow it migrated into my bladder. Not all the way but just enough to stop the flow. This might be because I didn’t have so much urine in my bladder. 
 

what would be the next step to have it stop the migration? 

I will keep it in a little more just to see how it works 

Could the distanse between the two beads be too short, making pinch of the spinchter force the stent back into yhe bladder?

[My experience with stents]

I decided to go with a catheter. Now one mention anything about it before the surgery, and I woke up with a bag connected. The bag was removed from the valve before I left the hospital.  

Had to go back to the hospital today, cause I felt I didn't feel any urge to pee at all last night, but even I opened the catheter I voided about 1 liter of urine.

They requested me to wear leg bag to ensure drainage of the bladder to avoid kidney damage. I also hook up to a night bag at night. 

As urine retention is quite common after a surgery like I had, I was requested to wear it for a week. 

I will reinsert the stent after that.

 

 

 

[My experience with stents]

Thanks for the advice. I think will go for a pull-up, as I'm diagnosed with an overaktiv bladder. 

[My experience with stents]

I will have a small back surgery next week. This will be a day surgery. For my examination before this surgery I wore the stent and pull-ups covered by a clear plastic pant.  

What do you guys suggest I wear for the surgery, it will be general anesthesia. Should I remove the stent, and use diapers, or condom catheter?  Should I insert a catheter?

Suggestions are appreciated. 

[I told my doctor about incontinent desires, diapers, and I asked her for help to get surgery.]

Has anyone ever investigated the possibility to have a external urethral sphincter dilation performed? An alternative to sphincterectomy.

[My experience with stents]

The stent is made of titanium and is very durable and lightweight.  It can be removed by inserting the rod into the draining hole, pulling it carefully out. This makes it more or less permanent, not easy removable. It could easily be used for years without getting calcified. I've removed it for cleaning frequently. 

[My experience with stents]

It is possible to make stent that is solid and that could be used permanent without retrieval line  my stent is made with anchor beads in each end with a diameter of 13 mm. This of course means you will have to dilate your urethra using sounds to manage this size also troug your meatus. This took me a lot of effort, tears, blood and pain. Once done, it's possible to pass the titan stent in and out.

The stent sits stable due to the beads and don't have any chance of migrating into the bladder. See photoset for insertion.

[I told my doctor about incontinent desires, diapers, and I asked her for help to get surgery.]

Hi Ferix.

Read your story from start to end, and I totally understand your desire. As  a stent user since 2010, I believe that the fulfillment an incontinent life gives us is so important to our mental health, that this can not be treated or reversed. Without my good working titan stent, I would definitely walked the same path. 

Wish you all the luck on your way to get help with your surgery and hopefully a good and successful incontinent life. 

Keep us updated on your progress.

 

[Hiding your diaper in public?]

Anyone of you concerned about smell? I always think about that, and do think godd fitting plastic pants helps. Otherwise I wear my diapers with pride, but wear clothes that makes me look "normal" and alway wear long tshirts tucked inside of my pants to avoid diaper peeking. 

[Stent specific UTI issue]

You could also try to get hold of Hiprex. This will acidify your urine, killing unwanted germs causing UTIs

[What if you really gain IC? – Party or Visit a Doc?]

Did the procedure affect your ability to get an erection?

[The things you would stop doing, if you were incontinent]

I do ride the bike quite often for exercise, and never use diapers. Always let the pee flow freely. No one has ever commented.

[Pubic Hair Removal]

What about using a a IPL device to remove it permanent. One for home use isn't that expensive

[Difference between stents and catheters?]

Thanks for sharing the video.

[Finding a urologist in India to make me incontinent.]

There are different kinds if medical stents available, that are removable. Would a be fare better option than a sphincterectomy. I would think that it is easier to find a doctor willing to do stent in.

[Close To Incontinence With A Catheter]

Hi guys, I'm Austmo, and I know some of you have been discussing me and my device here. Thought it is about time to pop out and tell you some about my life. sorry I have't said much about it befor, I'm a bit afraid to talk too much about it with strangers. I've experimented with a catheter for 20 some years, and the thought of being incontinent. I also made ​​some arrangements of catheters, with anchor balls at both ends, that has served as a kind of stent. This makes the passage from the bladder and the outside of tte sphincters open, urine flows freely without me being able to prevent it. After much research on this I finally desided about the shape and size and I got this device made ​​by a guy in Canada. I promised not to reveal the source, as this is a special thing to make for him. He specializes in implants and made ​​this in titanium. The ends are just small enough to pass through the urethra, and positioning the device, so that one bead sits within the inner sphincter inside the bladder and the other just outside the outer sphincter outside the prostate. It then provides a permanent incontinence. I use diapers or condom catheter bag to collect urine. Got this last December 2010

Hope this excplane a bit more how this works, and how I got it.