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First/Intake Visit with Urologist/Doctor: How did they react to protection?


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I just had to set up a new primarily care provider so have to go through the reason i chose diapers to deal with my bladder and bowel leakage trying medicine for it.  My explanation was because of my family history it was then put in my charts that i use diapers to control it and would prefer not to us meds.  I got sick a couple weeks ago and have had trouble with my bowels since but have had previous trama so they are open to allowing you to handle it. Had an ultra sound my diaper was sticking out above the waste band ultrasound tech never asked about it

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So I went to the urologist and he was cool with me wearing as in he didn't mention them even when i had no pants on. He sent me for testing. X ray. Mri. Ultra sound scan and urodynamnics test.

I wore one of those stupid gowns that opens at the back during all my test. So my nappy was obvious. The most obvious was the ultra sound it was out in the open. The man doing the scan said 'when was the last to you urinated' I said 'I'm not sure but I'm wet so in the last hour' he said 'How can you not know' at which point the nurse said 'he's obviously wearing protection' I went redder than red ?

Urodynamnics test was a whole other world of embarrassing but hey these things have to be done

 

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2 hours ago, wetste said:

Urodynamnics test was a whole other world of embarrassing but hey these things have to be done

 

I wonder about the "have to" part. I know that it gives them data for a better diagnosis and helps rule out some things, but when they can't really fix most of the problems then it just seems like a waste of time and money to be tested for what you can usually tell them with enough accuracy to deem whether the whole range of tests are needed or not. But that's how American medicine gets done, and it's why we spend the most and usually wind up getting the least for our money at the same time.

Doctors and me usually have a strained relationship because I ask questions and demand adequate answers, and when those are not forthcoming I point that out. I also take charge of my treatment- it's me making the decisions, not them, and they're not used to anyone who doesn't just blindly follow whatever they say. I haven't had any dealings with Doctors other than my Chiropractor since I started wearing 24/7 but when that happens, if they ask questions I'll basically tell them it's not why I'm there, and the issue has been handled already by trained Physicians so get back to doing what I'm paying you too much for already, alright? :o

Now you see why Doctors don't like me :P:roflmao:

Bettypooh

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Yeah. I'm in the UK so all medical needs testing etc are free. But i do get the whole not following blindly and to be honest I'm at the point where I'm fed up of testing etc and I'm starting to put my foot down a little. Oddly the test showed them exactly what i was telling them was happening. My bladder just gives way with no warning signs ie no urgency one second I'm fine next I've flooded... literally what happened in the test. 800ml fluid in my bladder and the doctor asked me to stand up as I did 800ml came out all over the floor! Go figure. 

I have had to refer myself to the continence care team as the consultants and doctors are only interested in the why. But that doesn't help when my skin is so damn sore and bleeding now! Hopefully they will sort it. Oddly my wife has been using a steroid cream on her skin and being so desperate i used it... My skin hasn't been so good in the last 6 months after just a few days 

 

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16 hours ago, Bettypooh said:

I wonder about the "have to" part. I know that it gives them data for a better diagnosis and helps rule out some things, but when they can't really fix most of the problems then it just seems like a waste of time and money to be tested for what you can usually tell them with enough accuracy to deem whether the whole range of tests are needed or not. But that's how American medicine gets done, and it's why we spend the most and usually wind up getting the least for our money at the same time.

Doctors and me usually have a strained relationship because I ask questions and demand adequate answers, and when those are not forthcoming I point that out. I also take charge of my treatment- it's me making the decisions, not them, and they're not used to anyone who doesn't just blindly follow whatever they say. I haven't had any dealings with Doctors other than my Chiropractor since I started wearing 24/7 but when that happens, if they ask questions I'll basically tell them it's not why I'm there, and the issue has been handled already by trained Physicians so get back to doing what I'm paying you too much for already, alright? :o

Now you see why Doctors don't like me :P:roflmao:

Bettypooh

Yup, you right. The doctor aren't always right. My urologist has been trying to push the interstim surgery on me and I declined because I already read up on that and it dosn't sound very good. Only some patients see a 50% improvement of their symptoms. Why would I go through an operation that only has a chance of only halfway fixing me. Not to mention that they have to do additional operation to replace the battery in the device every 4 to 7 years or if the wires shift out of their proper position. Umm sorry, I don't think so.

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On 12/16/2018 at 5:39 AM, wetste said:

Yeah. I'm in the UK so all medical needs testing etc are free. But i do get the whole not following blindly and to be honest I'm at the point where I'm fed up of testing etc and I'm starting to put my foot down a little. Oddly the test showed them exactly what i was telling them was happening. My bladder just gives way with no warning signs ie no urgency one second I'm fine next I've flooded... literally what happened in the test. 800ml fluid in my bladder and the doctor asked me to stand up as I did 800ml came out all over the floor! Go figure. 

I have had to refer myself to the continence care team as the consultants and doctors are only interested in the why. But that doesn't help when my skin is so damn sore and bleeding now! Hopefully they will sort it. Oddly my wife has been using a steroid cream on her skin and being so desperate i used it... My skin hasn't been so good in the last 6 months after just a few days 

 

wetste,

from your description, you have the exact same symptoms that a chronological baby has, but not the same reason. A baby wets from a full bladder cause it doesn't know mentally how to handle the singals from an expanding bladder that it needs to empty its bladder. Also it's sphincters are in a staste of flux. It does not know how to close its external sphincter. Yes, a baby does also dribble from an open sphincter where the bladder does not fill. In your case, your sphincters remain in a state - closed until your bladder is full. At that stage, they will open. When you stood up, the weight of your internal organs placed pressure on your bladder and your sphincter opened.

In your case, you may know mentally how to handle the signals from an expanding bladder. The process is to inturrupt the signal to your sphincter to open. The process to inturrupt is not working and the information of a full bladder is not getting to your brain. I suspect that, if you wish,  you could benifit from an electrical implant - one to trigger your sphincter to open. However, there are longterm complications from such a device. In my humble opinion, the diaper is handling the symptoms so why bother to deal with the impersonal and ignorant medical people that you are dealing with? Each 'specialist' will test you for what they see as a cure - and will only address the symptom of bladder incontinence. Do you know what caused this originally - you never stated whether you are bladder incontinent from birth / from an accident / incident. Also, has what caused this been addressed?

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Due to the hippocratic oath, and a misunderstanding of same, those people that have sworn same presume that they have to 'fix' every problem that they see and usually at the cost of the paitent.

In simple terms, incontince is a symptom - a side effect of a larger issue. The continence process of house dwelling primates takes a huge amount of energy to effect a finely balanced complicated set of processes. All it takes is a break-down in one of these processes for incontinence to occur. Secondly, the complicated set of chemical reactions that we depend on to ensure our survival costs us in terms of energy excertion. The body is an expert at conversation of energy - as a result, when a chemical process is ceasing to give the desired result, the body stops this process. It is one of the ways how we adapt to all circumstance.

Considering the above, - incontince is a symptom, not the original problem, and the original problem we have adapted to handle, and the body has adapted to incontince (maybe not us - the brain)  - incontince is not curable in any form.

This causes a quandry in the medical profession '1/fix all problems - 2/incontinence is a problem - 3/fix the problem - incontince is not curable - see #1 must fix all problems'

It is both annoying and comical in some forms how the medical industry try to address this quandry. Diapers / nappies are refered to as protection garments / pads etc - anything else other than the term used in common for babies. Why? - so not to associate the product as infantile!!! It is NOT infantile to not have bladder and/or bowel control. A baby DOES have bladder and bowel control. A baby does know before, during and after that it is going to / is / has soiled its diaper. A baby was taught to soil its diaper. A baby does know what a toilet is and does not have the motor skills to go to a toilet. As a result, a diaper is NOT a typical infantile garment. It is a product to hold excreted waste. The medical industry is fully aware of all of this, yet state that a diaper that is adult sized is not a diaper but a 'pad' etc.

Many here know me, and my profession, and even then, I try to avoid the medical profession in what I do.

Is it any wonder that the medical industry reacts to a diaper wearing adult in this manner. In my humble opinion, the medical industry is not based on the hippocratic oath in any form... but rather hypocritical.

 

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On 12/17/2018 at 3:34 PM, babykeiff said:

wetste,

from your description, you have the exact same symptoms that a chronological baby has, but not the same reason. A baby wets from a full bladder cause it doesn't know mentally how to handle the singals from an expanding bladder that it needs to empty its bladder. Also it's sphincters are in a staste of flux. It does not know how to close its external sphincter. Yes, a baby does also dribble from an open sphincter where the bladder does not fill. In your case, your sphincters remain in a state - closed until your bladder is full. At that stage, they will open. When you stood up, the weight of your internal organs placed pressure on your bladder and your sphincter opened.

In your case, you may know mentally how to handle the signals from an expanding bladder. The process is to inturrupt the signal to your sphincter to open. The process to inturrupt is not working and the information of a full bladder is not getting to your brain. I suspect that, if you wish,  you could benifit from an electrical implant - one to trigger your sphincter to open. However, there are longterm complications from such a device. In my humble opinion, the diaper is handling the symptoms so why bother to deal with the impersonal and ignorant medical people that you are dealing with? Each 'specialist' will test you for what they see as a cure - and will only address the symptom of bladder incontinence. Do you know what caused this originally - you never stated whether you are bladder incontinent from birth / from an accident / incident. Also, has what caused this been addressed?

Hey. Yeah. I get that it makes sense. I have been wetting like this for 18 months or so. But have always been a bedwetter since birth. 

Thanks :)

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12 hours ago, wetste said:

Hey. Yeah. I get that it makes sense. I have been wetting like this for 18 months or so. But have always been a bedwetter since birth. 

Thanks :)

If this daytime wetting is only for the past 18 months, what has triggered the change.

Night-time wetting (secondary nocturnal enuresis = after being trained, at night/rest, bladder leakage ) is a slightly different process - in very simple terms, the kidneys filter the blood and pass water & salt mix (urine) into the bladder. During times of rest, the body releases vasopressin so that only a small portion of water is past into the bladder. This increases the concentration of salts etc in the urine, and the concentration level is finely balanced by receptors within the bladder wall. This allows the bladder not to fill while at rest. Most children, as they pass through puberty and their hormone production goes into overdrive, will go through a period of sleep wetting. Some will regress to the infantile sleep wetting ie 1/as soon as they fall asleep, they relax the bladder sphincters and weep urine all night OR 2/overfill their bladder and *reflex wet. For some, this corrects itself. Primarily, the cause of this continuing is the inbalance of the bladder receptors and/or low production of vasopressin.

I suspect that you, during times of rest, relax your sphincters and/or *reflex wet. For this to occur overnight means that there is a low production of vasopressin, and has been since birth. This should not be affecting your daytime control unless there is a nerve issue. If there is, and it has progressed to affecting daytime control, I suspect that you have a neurodegenerative disorder that needs to be managed. Talk to your primary medical care agent.

* Babies / infants void their bladder by the following processes (Simple explaination)

1. When bladder is full, the reflex loop forces the external sphincter to open and the bladder to contract. Reflex Wetting / Overflow

2. Due to the bladder sphincter being in a state of flux, urine weeps out.

3. When they stand, the weight of their organs press on a partially full bladder and the weak sphincter yeilds and the baby wets.

4. From a percieved threat, laughter, force of muscles (pulling self to standing), concentrating on a task - any of these cause the weak sphincter to relax.

5. As they fall asleep, a baby will relax all muscles including its bladder sphincter.

6. Since the learnt signal is to block the autonomic relaxation of the sphincter, a baby, following teaching, ignores the 'need to void' signal. Therefore, the baby bladder will void autonomically as it becomes 1/3 full. This 'need to void' signal is sometimes suppressed by the baby as the baby is constantly trying new things. Since the baby is in a diaper, it doesn't get the cause-effect loop to realise the function of the 'hold it' signal. 

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