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Functional Leakage? New experience


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I’ve been experiencing symptoms of urgency and frequency (12-18x/day) along with incontinence episodes especially at night but also some during the day — all over the past 6 to 12 months or so. So far, my doctors haven’t been able to tell me anything definitive about the cause; but as you might’ve read in another thread (Doctor Visit

https://r.tapatalk.com/shareLink?share_fid=29464&share_tid=64528&url=https%3A%2F%2Fwww%2Edailydiapers%2Ecom%2Fboard%2Findex%2Ephp%3F%2Ftopic%2F64528-Doctor-Visit&share_type=t. - https://www.dailydiapers.com/board/index.php?/topic/64528-doctor-visit/), I do have an upcoming appointment for a higher-level urologist.

 

Anyways, this past week, I had a new experience for me. Over the past several months, the times in which I’ve had leakage almost always have occurred when I couldn’t get to a bathroom in time, or when it started to come out just as I was getting to the toilet. I would be in conversation or in a work meeting or whatever and not able to get away and...INTENSE URGE...leak... Or I’d be driving down the road and not able to find anywhere to stop...INTENSE URGE...shift around...squeeze squeeze squeeze...flood.

 

This time, I was in a phone call meeting for work. It was a video chat; actually a job interview if you believe it. I had a pad on which I’ve been wearing almost all day every day for the past couple weeks. These I’ve found to be super useful for taking off a little bit of the pressure when the intense urges come and I cant in that moment get to the bathroom. Anyways, an urge came about 40 minutes into the 70 minute meeting and I started my usual shifting from cheek to cheek routine, squeezing, tightening, legal... And then I let a little bit out in hopes of it tiding me over to the end of the meeting. It lasted 5 minutes before the same pain was back 10x over. I did it again...same thing... but just before the meeting ended, my bladder just spasmed and wouldn’t quit. No matter how hard I squeezed my muscles, my bladder just forced everything out and I was totally soaked. Luckily, this all happened under the table and other than perhaps looking a little worried/upset/distracted on camera (I actually think i kept a pretty good poker face), I dont’ think they noticed anything at all.

 

The funny thing about it is that if I weren’t in that interview, I could have easily made it to the toilet like I usually do. It was because I was functionally unable to get up because of the meeting... I pretty much have the experience of only being able to hold it for 60 minutes or so and if I can’t get to the bathroom in that window, I’m going to be very upset, in a lot of pain, and eventually, leaking.

 

Anyways, is this experience relatable for any of you? Did you move from intense urges that you could hold, to “intentionally” leaking a tiny bit at a time to release urgency, to having incidents where you couldn’t hold it back?

 

I found it very strange, but strangely not terribly distressing. Weird. I mean, I felt more compassion for myself if anything. Like...almost as though my symptoms and temporary diagnosis of OAB is actually warranted... More than anything, it feels like it’s pointing to me like everything is still going in the wrong direction with regards to my symptoms.

 

 

 

 

Sent from my iPad using Tapatalk

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I can relate to much of what you describe. For me it began about 3+ years ago when I occasionally had some post-void dribbling. Waking up in the night and needing to go started happening on a regular basis too. About 2 years ago I started to have trouble after holding for a long time (stuck in a meeting or in traffic) when I finally got to a toilet it would take several minutes to get the flow started, or it would start and stop several times before my bladder was empty. Sometimes even after being sure I was finished, tucked in and zipped, the occasional dribble might be more than just drips! I had the same trouble at night, taking sometimes 5-10 minutes before getting back to bed. 

In the last year or so the frequency during the day has increased to every 30-60 minutes, and the time between feeling the urge and can’t hold-any-longer keeps getting shorter. I don’t seem to have any trouble getting the flow started anymore. In fact, in spite of heroic efforts to hold, I begin leaking within a few minutes if not seconds after the initial urge. A few times I have gotten no warning at all...feeling nothing until I feel dampness after having leaked, or that I’m actively peeing. At night I can rarely make it to the bathroom in time. I start wetting as soon as I wake up, and a few times I’ve awakened mid-wetting.

As of 6 months ago when I last saw my doctor, (a men’s health specialist) he can’t find any cause other than enlarged prostate, which he says is still within “typical” range for my age. No infection, no blockage, no nerve damage. He was totally up front about treatment options and their side effects, and left it up to me to make the “quality of life” decision. I would rather deal with moderate incontinence than risk erectile dysfunction or a plethora of other problems.

I am not an AB and not really DL either, but my spouse and I share a bit of a pee fetish which makes this situation not entirely burdensome. 

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Wet Tony, your story is very similar to mine.  My continence started failing about 12 years ago.  It took about 4-5 years before I realized that i needed more than just a pull up or pad.  My Doctor told me after a cystiscope (I think that is what it was called) was inserted and they literally showed me the spams of my bladder as they happened almost immediately when they tried to fill me up with water.  They said they are not sure why this occurs, and can either provide drugs that cause horrible side effects, botox that I have heard can swing the other way to where you can't pee and have other issues, or a shocking device that get implanted.  I chose the option they did not provide - wearing a diaper.  All of the options they provided did not guarantee I would not need protection at any point.  I saw no desire to deal with the options if at the end of the day a diaper would be worn.  I just accepted it and now I am much more comfortable.  Somedays it is very inconvenient but I will take that and the ability to just allow myself to relax and reduce the spasms.

I am not really a AB or DL either, but this site does a great job of providing a platform for all people to discuss their situation and gain support from others that may be in similar roles.

I hope you find a comfortable place in life with your situation.

 

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While the mechanism of incontinence may become known, the underlying cause often cannot be found and treated directly, leaving only the treatment of the symptoms as the course of available action. My own leakage is due to some kind of nerve malfunction; exactly which nerve(s) and where cannot be determined. Even if it could be pinpointed, there may be no direct treatment for it as the various forms of surgeries can only do so much and there is a lot which they still cannot do. 

It is up to each of us to decide what we are going to try and what we are going to allow our Medical advisors (this includes Doctors) to do with us. It is our body, not theirs, and therefore our decision to make. Many here have tried everything to no avail, some have experienced partial relief, and some who are probably not present or vocal here have been cured. Of the first two categories many of us have decided to forego anything further and wear diapers as the best approach for ourselves. It is often but not always the best course to take when no cure exists for us. Gain as much knowledge as you can, then decide what you think will be best for you in the end. That is all we can really do anyway regardless of what our situation in life is. Life isn't always fair or pleasant, but it's here for us and we must deal with it.

Bettypooh

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For those whose bladder spasms, it is a autonomic response but in reverse. Let me try and explain it simply.

Assume that you have an electric motor that is capable of running either directions. If we were to install that electric motor as a drive for a clock, we would have to devise something to ensure that the motor would only start clockwise. The mechanical devices that does this is a spring... that winds up and reverses the direction of the motor if it starts  in the wrong direction. Assume that we put two of these springs on the electric motor... one to force clockwise rotation, and another to force anti-clockwise rotation. The electric motor, under power will start going one way, hit the limit of the spring and reverse... hit the limit of the spring and reverse.

In simple terms, the bladder filling and emptying process is analagous to the above example, yet it takes a lot more time to fill than it does to empty (or it should). An early signaling bladder to empty will start the empty process... but the fill process is not complete. As a result, the bladder will enter a back-foward loop and spasm.

One was trained, by inherited behaviour, to relax by holding ones sphincters closed, and only open them when triggered to void. This 'relax closed' process can be defeated by medication and/or hypnosis, but apart from that, not easily defeated. One can learn incontinence by shortening the fill empty cycle = early triggering. This reduces the elasticicy of the bladder which inforces the void when urine enters the bladder. This does not cause the sphincters to stay open, but just open at contents of 10-25ml instead of 200-500ml. Since the average adult will produce ~200ml urine in about 100 - 200 minuites, (2-3 hrs approx), that calculates as 1ml urine per minute. Therefore, a bladder that voids with 10 - 25ml of urine = voiding every 10 - 25 minuites. With early triggering invoked, one voids every 5-10 minuites in volumns that one does not notice.

Incontinence is a fault in one or more of the processes involved in voiding. Spasms are normal, as is dribbling and retention (which can cause flooding). Each are caused by the process stopping somewhere along the line - as the body tries to find a 'solution' to adapt to the situation. Use your brain - wear diapers / protection and forget about the incontinence. Diapers ARE the solution. Leave the 'we will fix you cause you are broken' brigade (you call them Doctors / urologists / specialists etc ) to practice on some one else.

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Inconsistent incontinence leaves you with either wearing for what you expect which can prove to be too little protection, or always wearing enough protection to handle whatever may occur. At least the latter gives you a consistent appearance and should not fail you unexpectedly. 

After several leakage accidents, I adopted the latter approach as I found myself needing changes at bad times too frequently otherwise. Better to have and not need than to need and not have. It may not be pleasant for you but if it is the only really good choice then you should take it and learn to live with it. In time you will notice it less and less till it becomes your normal.

Bettypooh

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I have been finding that the intervals between spasms are going down if anything. I typically can last an hour, but sometimes it’s just 15 minutes apart and I get these intense urges — then hardly anything even comes out even though it feels like I have a full bladder to empty.

I’ve essentially been wearing pads in my underwear non stop for the last couple weeks - and when I’m going out where I don’t know about access to a bathroom, either pull-ups or even diapers. It’s consuming s lot of my thought and attention. This is no fun.

I think for me anxiety and stress increase the symptoms - and the anxiety about having an accident increase The symptoms even more.

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I hope you’ve seen a urologist and had a cystoscopy to verify that there aren’t any serious problems with your bladder. 


Yes I’ve had one cystoscopy and the finding was negative for any growth or cancer or malformation. I have another appointment once again soon with a little higher level urologist at s medical school. Hoping to verify that indeed, I am not dying, and to get a more definitive diagnosis.
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You're doing what you can, so try not to let your protection or your bladder condition bother you. Have some kind of pleasant distraction handy- music, a book, the internet- for the moments when your worries want to take over your mind. Knowing your protection is good enough can help relieve stress too. Feeling stressed out or worried is only going to increase the level and strength of nerve functions, thus adding to urges and spasms. When the Doctors come to a conclusion then there is time to be concerned, but until then there's no point in letting this ruin your daily life. There's really not much else you can do at this point.

 

Bettypooh

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  • 4 weeks later...

Hmm... well... to be honest... I thing OK-  it's a DL side so yes but - how ever this is the IC section. So the point is: If you have a medical problem with urge IC there are manny way's to cure this or at last to ease the pain. So if you're interested in hint's for your next doc visit please feel free to ask. But at last for me your story sound a bit like you also like this humiliating situation. To be honest - even in a job interview I would ask for a toilet if I know that I have this problem and do not wear appropriate protection. Cleaning up your working place is probably more complicated - and I guess you did't do the VK in the kitchen or the bathroom...

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