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Close To Incontinence With A Catheter

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Loveable, just to clarify- the under inflated balloon still does okay with not migrating out of the bladder?

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It will slid out under some conditions such as when you may really push hard during a BM. Otherwise for me it stays in place very well.  If you got it working and its sliding out try adding more fluid to the balloon, just go easy on the fluid in the balloon

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Okay a couple of notes:

 

1. Pretty much any hole punch, leather punch or anything that creates and edge gets painfully irritating after 12-24 hours and it has to come out.

 

2. Tried multiple small slits lengthwise along the cath, same irritation.

3. Tried single 1.5 inch slit approx 3.5 inches from balloon, worked great for 12 hours, then massive irritation.  

4. Tried 1 inch slit 3.1 inches from balloon, same result.

I noticed upon removal that any slit, even when closed up during insertion, ended up with a gap, which must appear after some time in there, which must be what is causing the irritation.   

Going to now try with a stent type thing and see if that is successful! ☺️ 

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One more, as a kind of note to self:

with these designs I don’t get like stress incontinence surges, I tend to get constant dribbles, as you would with an open cath draining to a diaper.  So I really don’t get the “help I’m peeing” feeling, but I do feel things getting warmer and wetter until I feel like I need a change. 

Also tried loveable guys design, sadly could not fit the screw protector in past the meatus.  Will have to try another smaller one.

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Another note of some success with a holey Foley design:

Tried small hole punch about 4” from balloon, been in for 6 days without irritation.  Don’t want to jinx it! Will take photo of design when I eventually remove it.  

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That is something I can't or won't do. Because of a spastic sphincter, I couldn't use a catheter if I wanted to. Not even a Foley would stay in. I was under strict orders from the urologist to not remove it if it stayed. He said if I removed it myself, it could cause scarring as other damage that could not be fixed. So please, please use utmost caution, and better yet don't do it. Being full time incontinent, for me, means hard to cure diaper rash and itchy balls. Pee runs up my butt crack and causes a crack to crack which often becomes a bed sores. I know people claim that they've been using catheters for years without ill effect. I guess in this "area" I''d be cautious. Good luck!

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@ppdudeIf you have liquid pee in your diaper for more than several seconds, then you either need to change it or you need to use a better diaper. Though it doesn't happen much anymore, when I "flood" I release from 250mL to 500mL in about two seconds, and with the better diapers everything has passed through the barrier sheet within about 8 seconds or less unless my diaper is nearing it's capacity limits when that takes a lot longer. Skin itches when it's irritated, and clean dry skin doesn't get irritated and doesn't much itch. A good diaper and scrupulous cleaning twice a day is my trick, and now I only get chafing rashes and not many of those.

Bettypooh

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I always use barrier cream (Sudocrem) on my "butt crack" - that seems to do the job.  Without it I get problems, even when I'm not wearing nappies.  Quotation marks used as I lapsed into American there...😀

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On 9/8/2018 at 9:16 AM, ppdude said:

That is something I can't or won't do. Because of a spastic sphincter, I couldn't use a catheter if I wanted to. Not even a Foley would stay in. I was under strict orders from the urologist to not remove it if it stayed. He said if I removed it myself, it could cause scarring as other damage that could not be fixed. So please, please use utmost caution, and better yet don't do it. Being full time incontinent, for me, means hard to cure diaper rash and itchy balls. Pee runs up my butt crack and causes a crack to crack which often becomes a bed sores. I know people claim that they've been using catheters for years without ill effect. I guess in this "area" I''d be cautious. Good luck!

This resonates with me. While I don't wear full time I wet at night and wear diapers to bed. For most of my life my skin was touch as nails and I never had to use cream of powder. In the last couple years I regularly have a  really sore butt crack upon waking. No cream I've tried makes it go away fully. I use cloth which I like but feels worse on my skin then disposables for whatever reason.  Do you wear disposables or cloth, ppdude?

 

 

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On ‎10‎/‎7‎/‎2011 at 6:55 AM, Elfy said:

Sorry I was just looking around bits of the forums I don't usually go on and got a bit caught up in it all... Didn't mean to offend!

 

I said I don't begrudge your desires or anything, just suggesting you look at another perspective, I mean feel free to not look at the other perspective!

just for thought with the upmost respect then why post anything

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1 hour ago, Kenseibert said:

just for thought with the upmost respect then why post anything

And I have to wonder why you are responding to a post from 2011 when things are clearly different now? There was no point in you posting this either- just saying it's a lot like the pot calling the kettle black if you know what I mean.

Bettypooh

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On 9/9/2018 at 8:11 AM, Bettypooh said:

@ppdudeIf you have liquid pee in your diaper for more than several seconds, then you either need to change it or you need to use a better diaper. Though it doesn't happen much anymore, when I "flood" I release from 250mL to 500mL in about two seconds, and with the better diapers everything has passed through the barrier sheet within about 8 seconds or less unless my diaper is nearing it's capacity limits when that takes a lot longer. Skin itches when it's irritated, and clean dry skin doesn't get irritated and doesn't much itch. A good diaper and scrupulous cleaning twice a day is my trick, and now I only get chafing rashes and not many of those.

Bettypooh

The Dry 24/7 diapers work really well. It soaks up floods really well and can go a long time before irritation and rash sets in. I have a steady, variable volume leak. The diaper works great for this. Sometimes I'm not sure if or how much I've wet, so will put on a cloth diaper to confirm that it's happening as sometimes I don't think I am having a problem. It usually gets really wet after 3-4 hours but not dripping wet. I'll go as long as I can without vinyl pants so that I can get a better idea of the of the time it takes before putting them on. After about 6-8 hours they are drenched. At that point, a new disposable goes on.

Catheter wouldn't work; the sphincter pushed the Foley out. No catheter here!

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Foley catheter can not be push out catheter. If the balloon is inflated to a 10 ml and it come out you got a really really big urethral


Sent from my iPhone using Tapatalk

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Previously all my attempts at making stents and holey foley catheters have resulted in varying degrees of discomfort although I regularly use catheters without problems.

Yesterday, instead of cutting a hole in a catheter I cut a longitudinal slit just outboard from where the external sphincter would be. Using a Bardia 14FG and a new box cutter, I held the catheter over the forefinger with the inflation line down and carefully cut along the catheter with the new blade. The material is quite tough but with a little sawing action it can be cut this way.   The catheter was soaked in alcohol and rinsed with boiled water before being inserted in the usual way. A spigot was then placed in the outlet.   Works fine. No discomfort.

 

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We have all gone thru the same trial and error it getting our stent suited to our bodies. Congrats on your success.

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 I am hoping this form is still active I’ve been researching both this form and the one by Cathdiap and his stents I’ve been working towards making my own and I am running into a couple of issues my designs have proven concept however I can’t figure out how to measure the distance between my external sphincter and my internal sphincter  using a clean catheter I have inserted it until I feal the first bit of slight resistance which should be the external sphincter I push past that and feel the second resistance which should be the internal sphincter in the bladder I measure that out and I get roughly an 1 1/2 what I’m trying to figure out is do I need to make my bends on the outside of that or have the actual bend center 1 1/2 inches from each other  also with the stents that I have gotten to somewhat work I’m having  migrating into the bladder issues also it always feels like there’s stining a bit at the tip of my penis yet my stents don’t go past 5 inches total do I need to shorten them ? where is my problem I really would like to figure this out thank you for all your help  

 Stay safe and  Play safe 

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The topic is still alive trust me.😉 But, I am sorry to tell you I am afraid you will have to figure it out by yourself, not that I am not willing to help and I think others are willing to help as well. For sure you can use all the tips and pointers given in this topic and the other one named ”my experience with catheters” I would even recommend it, for it might keep you from making mistakes others already made. Thing is, we all differ in a way although our anatomy is the same, it could very well be related to personal height for instance. On a personal note I never could get the stents with bents in them to completely work for me, while for other members they work just fine. Some have 2” between the bents while others have 1 ¾” between them, it really is a case of trial and error I am sorry to say. I have tried to make some with bents in them way, way back, but I couldn’t get it to work like I wanted them to work, I had migration issues amongst others so went for another approach and that works for me. I started out with Cathdiap design and took it from there. I know others tried my method and for them my design sucked big time. I firmly belief there is no right or wrong it is just the case of figuring out what works best for you with as little as possible complications and hinder. I think it is not really the answer you are looking for but to my personal opinion it is not far from the reality.

 

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dlnoir thank you for your responses it actually gave me way more info then you know i do know that every one is different but the fact that u say that the bends dont work for you and you had migrating issues helps me alot the similarity help me diagnose what im doing wrong i do have one ? that you mite be able to answer i am modifying the red rubber speed caths and when i trim to fit it seams that the trim side is scratching the inside but its smooth im puseld other then this form "close to incontinence with a catheter" and my experience with stents" do you have more info suggestions

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Hi Stubaby7.

 

Over the years I have tried numerous designs, lengths and models, frankly I lost count. In the beginning I had the same problems like you do, the cuts and seams scratched my urethra folding the tubes inward solved that problem. In my designs I always used a medical grade silicone tubing 6mm (1/4”) in diameter and silicone O-rings to keep the stent in its place. I never tried anything else but silicone tubing and O-rings. Silicone is rather soft and gentle. The only downside I found you can’t bend it like you can with other polymers like PVC with heat. Over time I learned that a shorter stent worked better for me than a longer one, shorter stents caused less irritation. When I started out my initial design measured up close to 125 mm (5”) while the one I use nowadays only measures 75mm (3”) max. By now my drive to experiment with stents dropped to zero for my latest design works perfectly for me, it took me like forever to get though. As with so many things in life you’ll try something see if it is an improvement if it is not you’ll simply have to think it over and try something else. That is basically what is did throughout the process to get where I am now. I have tried some things over the years which were drop dead horrible while initially I thought they would be an improvement. In my latest design I dropped the outer O-ring replacing it for and silicone bulge. The bulge is big enough to prevent the stent from migrating inward into the bladder. I kept the inner O-ring at the same position like I did from day one.  The one is meant to keep the stent positioned inside your bladder and provides more retaining power in comparison to the silicone bulge. The silicone bulge in comparison to the O-ring is more gentle to the urethra and much smoother

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Dlnoir, I looked back a few pages hoping to see photos showing your design and found nothing. I like you am always experimenting and looking for better ideas. Would it be possible to post a photo of your latest design?

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On 3/15/2019 at 1:32 AM, Loveable_guy said:

Dlnoir, I looked back a few pages hoping to see photos showing your design and found nothing. I like you am always experimenting and looking for better ideas. Would it be possible to post a photo of your latest design?

Sure no problem. The picture is probably posted in the topic my experience with stents, but here it is.

IMG_1329.JPG

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I did look thru your profile and other post but thank you for re-posting it here. WOW, you have a lot of the stent entering the bladder. Not that a normally Foley does not but most of the stent designs discussed here have less entering the bladder. The important thing is it works! The flare at the end is interesting. Would instructing on making the flare also be elsewhere also? Remember we lost a good bit of content sometime back to board crash.

The stent I have in place now is just under 5" in length, was made from silicon airline, The ends were folder inside making them perfectly smooth.  To prevent the ends from rolling back (out) I placed a short section of rigid tubing inside the folds. The retrial cord is attached the end by tying it around the second rigid insert. I was able to crate the flare less distance you have your O ring by heating the tubing and forcing a Watts A-2C brass compression ring inside the tubing. So far so good.

Thanks again for re-posting. May your diaper always be wet!

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Hi Loveable-guy.

The total of the stent only measures some 75 mm (3”) and the perforated section only measures 20 mm (3/4”) so I think it is not all that long. The O-ring gently leans against the internal sphincter muscle without causing any hinder. If I remember correctly a fully inflated Foley catheter will be longer and bigger in that aria. The location of the bulge only measures some 5 to 6 mm (1/4”). The bulge is made out of silicone polymer which I shape to my likings and desired diameter. The distance between the O-ring measures some 50 mm (2”) at the most. As far as I can remember I never posted any instructions, just a short list of the materials which I used, the tool and a maybe a general description at best. I know a lot of information got lost with the crash maybe they can restore it at one time or another.  I do remember a lot of posters made a complete description on how to make one using pictures and all really is a shame if it got lost permanently.

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