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Found 5 results

  1. Hi All, I met with my GP and explained symptoms which supported OAB. They asked a lot of questions and did a prostate exam. No issue there. Suggestion was try kegel exercises and to try and hold as long as I could before racing to the bathroom. I had been doing that without much success. I moved out of state and started with a new GP and explained my OAB symptoms again as medical record did not transfer through systems. Was referred to a specialist who I met with. I wear pull ups in the event I don’t make it to the bathroom. Went through a series of questions with him, preformed an exam, and asked how I was managing it wearing protection. Told him not a big enough issue where it’s impact my quality of life and ok wearing pull-ups. Explained what I’ve been doing per my previous Dr. recommendations and explained while it hasn’t gotten worse hasn’t gotten better either. He didn’t think medication would be effective right now and encouraged I continue to do what I’m doing. Result, he entered in my chart diagnosed/ problem OAB, nothing more was prescribed, that’s it, I’ve got OAB. Have any of you had a similar experience? I’ve read about countless tests others have gone through before a diagnosis and was surprised nothing else was ordered/ done. And now that I’m “diagnosed” as having such in one chart do I bring this up going forward to other medical professionals? Feel like I have to should especially if I’m wearing a pull up diaper. I also ask because my insurance has changed requiring me to seek a new GP and will assume nothing will transfer over since the hospital systems use different Electronic Medical Record systems. I should mention I’m a completely healthy, in shape, active/ athletic 40 yo with no other issues to suggest an underlining health issue otherwise. Thanks
  2. Has anyone had the Interstim implant in the last year or two? How did it work for you (or not), and what should I expect? I've had urge incontinence for the last 16 years since a really bad car wreck. I've see a dozen different urologists for it and had been put on just about every incontinence med out there. To this day I still get uncomfortable (and sometimes painful) urges that I will pee in about 20 seconds- regardless if I make it to the bathroom or not. I always seem to wake up at least once in the night to pee my diaper, then roll over and fall back asleep again (if I can). Most urologist have seemed like they didn't know what they were doing, just didn't care, or were too focused on curing me that lost sight of just trying to improve my quality of life all together. Today I went to see yet another urologist, but this one actually seems to have gotten it and recognized I have over active bladder OAB that is causing my urges (probably from a spinal injury that went un-diagnosed from my wreck). He wants me to try a test week for an interstim implant to try and see if it cures me. If that doesn't work he plans on using botox to weaken my sphincter so I can pee without the urges and hopefully sleep at night. I've really come to like wearing diapers (leaks and all) so personally I think I would prefer option two for the intermediate/long term, but I have to jump though this hoop first. I'm scheduled for an outpatient surgery later this month to get the temporary electrodes implanted. I'm told that in about 80 percent of people who get it done, they see a 50 percent improvement or decreased symptoms. That sounds like a 40 percent success rate to me. The other 20 percent; apparently they get pain from the device, infections, or it just doesn't do anything. I'm hoping to stay objective though, who knows I may still help.
  3. Hi, my name is Scott and I have been struggling partial incontinence (have some, but weak control over bladder/bowels). But the lack of control isn't what bothers me, it's the pain I get from attempting to hold it even for a short period of time. I've seen 3 different urologists and will be seeing a GI doctor soon, one of those only tried one medication on me before he decided he wanted to jump straight to the interstim, I respectfully declined as I have heard some bad things about that and I feel uneasy about invasive surgery. My second urologist tried 4 different meds on me only to write me a prescription for the first med I started on to begin with. So now the one I currently see recommended I go to an GI doctor as a problem with the GI tract can cause problems with your urinary tract. But anyways I'll cut to the chase, I was wondering if I wear 24/7 to become fully incon, would that condition be less painful as you couldn't feel the urge to go? I imagine it wouldn't take that long to lose the little control I have left as I already have shaky control to begin with. Anyhow, thanks for any advice I may get.
  4. Hi all, I am new here so here we go. So far i've been incontinent since Feb 2013 with wetting during the day and night with frequency between 15 and 22 times a day. It had taken a long time to work out that tena Maxi was working the best but i still have to use a terry and gary pants to bed to stops leaks. (Dont want to soak my wife). I saw the doctor within 2 weeks but its probably been a couple of years I cut tea and coffee out during the day as that would make me pee for britain and with some real urgency. The wetting bit just got worse and worse so I knew I needed to wear something. Like many on here you start with the store brands and work your way through, learning as you go. I was refereed to a continence nurse and also for a scan and urodynamics. I took me 6 weeks to get a continence appointment and after phoning the hospital it will be another 6 weeks until I get a date for that, so mid August. I have now been supplied 3 months of Euron Super plus and also use a cath and bag during the day, all FINALY supplied through the NHS. I use the daipers in the evening as my wife finds the caths a little too medical looking and also it means we can easily keep our sex life together as diapers are easy to whip off. I suppose the thing thats got me the most is the time it has taken to get any form of help or protection for a very serious problem. 6 months of wetting myself in the day and night. I worked out that i'd pee'd more the 130 gallons just in the night. I dont think they realize what damage that does to your bed and ceiling! I've had liver and kidney tests, checks for UTI, Bladder scan, diabetes tests etc and so far they are 90% sure i have severe OAB wet. it feels like my bladder is pushing against my pelvic floor when i wet so they want to check pressures to make sure I'm not pushing wee up to my kidneys. What a journey! I'm only 34, I have a wonderful wife and 3 young kids. I NEVER thought this would happen to me. my wife jokes and says I bought it on myself. we're into latex and all manner of kink so being trapped in Diapers and condom caths is not too bad for us. I'm also mega lucky because since i started wearing 24/7 my wife has become a bit of a self confessed
  5. Hey everyone I’m Paige and I’m 25 years old. I’ve posted here before but its been quite some time. I officially came out to my family as a MtF transgender woman about a year and a half ago. Now I’ve I recently started hormone replacement therapy which seems to going good. However right now I feel like I’m about to cry, as I’m considering going back to wearing diapers at night again. Due to having to take 100mg of Spiroonolactone twice a day which is also a diuretic by the way, It has also caused sever night time nocturia. I wake about every two hours to go pee at night which in the morning I still find my self tired. I feel really shameful and embarrassed wearing diapers at night being that I know I can make to the toilet at night. Now I’ve tried cutting back liquid at night and it doesn’t seem to help so you can throw that out the window. As for daytime issues I seem to be peeing more often then I would like. Daytimes pretty bad also I find my self using the restroom about every hour or more. Now in the past I’ve dealt with daytime incontinence and had to wear diapers which thank god I no longer have to, but I’m starting to notice small wet spots on my underwear and they usually smell like pee when take them off. I’m also considering on starting to use pads during the daytime. Does wearing some sort of protection sound strange for all of this. I just wanna cry. PS Can anyone recommend a good daytime pad.
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