This thread has been a great document of experiences. I've reactive my login for some questions for you guys who've had the surgery.
I'm interested in your leakage at night. I read that there's not a lot of flow, just random leaks and dribbles as you move around. I realise that until recently you've had a bladder with generally normal capacity. But the bladder is a muscle and now you can't use yours anymore during the day (ie intentionally holding urine) as the sphincter are gone. I understand hat the bladder is still stretchable enough that it will fill to some degree while you're lying on you back, say, or some other way that your pee isn't reaching the open neck.
But if you don't use a muscle it atrophies. So, the question is, are you expecting your bladder to shrink? If it never stretches, then eventually it can't stretch, the ability is lost. Even at night, I'd therefore expect the amount of pee it can hold without leaking to get smaller over time. S that what you are expecting, or experiencing at all?
Do you therefore tend to gush urine when you get up in the morning? And would you expect this to get smaller over time as you leak more during the night? Does your bladder ever feel full enough that you feel the need to pee, or does it always leak before that point?
Thanks for any info!