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sjaeger

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    Australia
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    30

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  1. Hi Would any one know of any other helpful Incontinence Facebook or Forum support groups as I have issues dealing with mine and find online support useful. Thanks
  2. Hi all I am concerned regarding my Urologist who is a professor at my local hospital hence no one is higher than him. 2nd appointment (which was a teleconference with my support worker and carer at the time) He first stated there wasn't any solution then he wanted me to self Indwell Catherise (he stated this on the phone with my support worker or get support worker to do it) without any training or knowing exact size. 3rd Appointment (Dec) He stated he doesn't want me to be Indwelled catherised due to uti risks and have Botox to the Urethal Spinctor and prostate (but wrote to GP COPY AND PASTED "Botox injections to the pelvic floor and bladder neck given that he does have longstanding voiding dysfunction".) I signed relevant paperwork that day and was told have the procedure in February. 4th Appointment (28th Feb)Urologist never showed up nor communicated this with his staff as he was flying to London (I am in Sydney, Australia) and was not notified this until 30mins after the appointment and had to wait an additional hour for a different urologist who made me sign the same paperwork as didn't know if it was sent to Admissions back in December (thankfully as after the appointment I went to hospital admissions and found out my urologist never submitted the paperwork in December and refused to allow me to make a written complaint due to all the issues with the urologist. I forgot to mention he flat out refuses to communicate with my Continence Nurse (who is private and the urologist is public public system refused my a public Continence nurse) my continence Nurse is a Doctorate with a PHD and I requested him to do this numerous times. My question is Is Botox to the Urethal Spinctor and prostate and "Botox injections to the pelvic floor and bladder neck given that he does have longstanding voiding dysfunction the same? If so what are peoples experiences as I have a letter from admissions that I should have the procedure in about 3 months? And would people trust this behavior from their specialists? Many thanks
  3. Not yet the urologist hasn’t even put the signed paperwork into admissions since December and didn’t bother t show u on Wednesday at the appointment so had to see another urologist there 1.5 hrs after the appointment was supposed to happen
  4. Loved the story so much that I stayed up all night reading it
  5. Hi I have real bladder issues (whihc my treating urologist knows about so not a kink for me) I wake up 5+ times per night to rush to toilet and it is becoming unsafe for me 1. Falling getting to the bathroom about once per week as well as the fatique where sometimes I nearly fall due to the exhaution of lack of sleep.
  6. I do have both and under active bladder and spinal issues but issues with toilet training as a young child
  7. I have bipolar, ASD 2 and ADHD spinal and feet issues and underactive bladder and continence issues. I have been told by numerous treating Psychiatrists my control freak and OCD issues are part of my Aspergers (original diagnosis) / ASD 2 (since DSM5). I have told my Urologist, psychiatrist and psychologist Id rather be totally urinary incontinent rather than my bladder having a mind of its own and not be able to control it all time I did express my logic well I have been told by numerous Neurosurgeons and Urologists I will never have a fully behaving bladder as well as I dehydrate myself due to painfully fully bladder or urgency I just rather leak all the time as it is I wake up for the bathroom 5+ times a night and have falls about once per week due to Psych sleeping meds and mobility issues and as well as have severe sleep apnea on top I rather just have a soaked nappy/diaper/pad to deal with in the morning. Since my issues started in 2009 when I excerbated my spinal issue which no one knew I had prior I started researching about incontinence and came across these types of sites, which I am embarrased to say I enjoy the fiction stories on here (not sure if that also makes me ABDL) and also wear Bambino Magnifico Adult Nappies instead of the continence nurse prescribed Bambino Bianco Ultra Stretch All White Diapers which are the same instead of the print but the plain white are limited stock in Australia and all medical Diapers/nappies in Australia are cloth backed which irritates my skin and pullup type which I can get away with causes bad chaffing and slips as it doesnt fit my body type and not adjustable,
  8. I find myself dehydrating myself to have some normalcy of the bladder as well
  9. Well I embarrased to say even though I have an underactive bladder with incontinence issues I have begged my Urologist to make me fully urinary incontinent as I can not deal with the unpredictability as well as my GP is telling me I am harming my Kidneys by not drinking enough due to the unpredictability of bladder behavour either overfilling to point of pain and sometimes struggle to release. Also waking up bloody 5+ times a night and having falls about once per week (mobility issues due to spine and feet).
  10. Been diagnosed with under active bladder and urologist next month is giving me Botox at the prostate and urethral sphincter. Has anyone had this done as it is I tend to store 800 -1200mls before I feel it if I don’t have overactive symptoms that day. my private continence nurse and public health urologist has divided me on different treatment plans as urologist refuses to communicate with continence nurse
  11. Hi all What should I know about Indwelling Cath as had a phone consult with public urologist and he wants me to trial a size 16 as medications have failed and well I am getting up at least 5 times per night and nearly physically collapsed (thankfully support worker caught me) I am considering doing the valve system instead of having a bag
  12. partially in a wheelchair. I have Bladder retention and leakage and over-sensory issues with the bladder (I also have autism) as well as issues with slight leakage and severe constipation of the bowels. Public Urologist has no confidence in how to treat me he expressed to me and my Support worker (who is also a nurse) I see my Continence Nurse early next month for a follow-up I am wondering Are there any reusable anal plugs to keep prescribed suppositories in for the required 30mins due to bowel issues due to spinal signal issues? Also looking at an Indwelling catheter to drain into diapers like a temporary stent (to stop the over-sensory issues and retention) I do not want a bag as I am mostly mobile as well as a bag gets twisted as well as pee can escape around the catheter as well as I can't self-cath due to disabilities incl Essential tremors in my hand which are too extreme. A previous Public Urologist stated years ago they can't do anything as they could make the leakage or retention worse hence the idea of induced incontinence as well as making myself physically and psychologically sick with dehydration as water aggravates the overstimulation of my bladder hence I drink mostly Pepsi max or coke zero with is damaging me teeth etc As it is these issues are really affecting me mentally to the point of thoughts of Self Harm (don't worry I won't as I have a fur baby that keeps me on my toes and hasn't had a depressive episode in years) as really who would want to really piss themselves but I think would be the healthier option ( a means to an end )overall if it allows me to drink more fluids including water (replacing caffeine etc) I have also mentioned this to my psychologist and psychiatrist as I also have Bipolar and Autism so it affects both and also mentioned it to Urologist (in writing but ignored my concerns and symptoms as well as my Continence Nurse has been sympathetic with me and I have emailed her. Has anyone done this if so any recommendations TIA
  13. What should I look for in a portable reusable adult changing mat? As going to start getting much-needed support from a support worker for personal care I am 172cm I need help with personal care, including suppositories and lotion, and creams after baths. TIA
  14. Hi all I am in Australia and wondering what are the differences between Abena abriform slip premium and Abena abriform comfort Both are cloth backed Tia
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