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punk18

Am I becoming incontinent ?

26 posts in this topic

For the last year I've noticed that I pee very frequently. I'll have a long pee and then about 20 mins later I'll have to go again and it feels like a lot but when I go it's not that much.

 

I wake up several times during the night to pee and I loose sleep over it. I wake up about 2 or 3 times.

 

like last night I got up to pee 5 times and it was only alittle 

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That's how my OAB/interstitial cystitis/incontinence  began. I began to notice I was in the bathroom frequently, and while I always made the bathroom in time I would leak until the next time I would use the bathroom. Sometimes bathroom trips were 10-15 minutes apart. I started keeping track of how many times I was in the bathroom per day and it started as 12 or so, then went to 15-18, then 20, then 25, then 30. On average I'm in the 20-30 times a day range with afternoons and evenings being the most busy. At night it was anywhere between 0-5 times getting up, some nights I'd sleep through the night, other nights was up 5 or more times (rarely more than 5 times) went to 14 doctors and nobody could figure it out. Urology prescribed Foley catheters, which my wife inserts weekly as she is a nurse.  So the only thing that has really helped has been the foley. I'm in diapers 24/7 to catch the small leaks. Even with the foley in. I use pullups at work under a uniform, usually don't take the foley to work, though.

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1 hour ago, punk18 said:

For the last year I've noticed that I pee very frequently. I'll have a long pee and then about 20 mins later I'll have to go again and it feels like a lot but when I go it's not that much.

 

I wake up several times during the night to pee and I loose sleep over it. I wake up about 2 or 3 times.

 

like last night I got up to pee 5 times and it was only alittle 

Going on the age on your avatar, you are a bit young for an enlarged prostate, but in any case speak to a doctor as soon as you can they will be able to the tests. And hopefuly put your mind at rest.

Hope it all goes well for you and do let us know.

All the best. Maly.

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Talking to a doctor should be on the top of your to do list.  Also you may want to get checked out for a UTI, if that is negative you may still have a infection of the prostate.   Either of these can cause the issues you are describing.   However they can be treated with Antibiotics.   So talk to you doctor and give them all the information don't  be embarrassed to talk to them.

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Only one thing to do I would say go see a doctor if it worries you. if it doesn't bother you or if it is something you seek do nothing it is quite simple  there are only a view options.

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Its time to see your doctor and an urologist just to make sure its not a more serious issue thats causing your bladder issues.

my bladder issue started simuler to your issue,  so yes you may becoming incontinent but an urologist will make that call 

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When I was a teenager I could go all night without having to get up to pee.  I wet the bed as a kid until I was almost 6 and wore diapers at night, but never after that age.  In my early 20's I started having to get up to pee once a night.  Now I'm 58 and I have gotten up sometimes as often as 8 times a night to pee.  3 to 6 times is about normal for me.  I have had my prostate checked many times and the doctors say it is fine.  Lately there have been nights where I have gotten up just once or twice to pee, but that may have been caused by a family situation that happened early in December.  Some days when I went to work I would have to go and pee every 20 to 30 minutes, just as you described.  Not a lot but an significant amount.  A friend of mine about my age also said that happens to him now and then.  Not an every day or even every week occurance, but happens now and then.  It could be caffeen since I do drink diet soda and not coffee, or it could be the cycle of my body either absorbing or not absorbing the liquid I need based on my activity or when and how much I drank.  Anyway, I have been getting up multipul times a night to pee for 30+ years, but like I say, I'm 58.  At your age I don't know that you are becoming incontinent because I am not incontinent and have the same situations as you describe for many years.  I would talk with a doctor about it as everyone else suggested.  You may need to change a few things (not talking about your diapers here -_-) but perhaps less sugary drinks, maybe be checked for diabetes, monitor how much you are drinking and when, cut down on caffeinated drinks and maybe just be aware that as we get older, a lot of us have to pee more often (even though you are pretty young yet for getting up to pee 3 times a night).

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On 1/1/2017 at 9:47 AM, punk18 said:

For the last year I've noticed that I pee very frequently. I'll have a long pee and then about 20 mins later I'll have to go again and it feels like a lot but when I go it's not that much.

I wake up several times during the night to pee and I loose sleep over it. I wake up about 2 or 3 times.

like last night I got up to pee 5 times and it was only alittle 

Your description sounds very much like my experience as I became increasingly dependent on diapers.  How often do you currently wear and use diapers now?

The more often and longer I used diapers, the weaker and lazier my bladder became.  It also became more sensitive to holding increasingly smaller amounts of urine.  When I was wearing a diaper, there was no real urgency to empty my bladder quickly unlike when I was standing at a urinal or toilet and wanting to get the process over with quickly.  As a result, over the years when I emptied my bladder, urine would flow, but with little force when I consciously opened the sphincters.  Gravity and weak bladder contraction would empty my bladder but it took longer.

I found that if I was forced to hold my urine (like on an airplane during takeoffs and landings) while not diapered, I would get very uncomfortable, but could manage until I could finally get to a lavatory.  However, once I used the toilet, my bladder didn't empty completely.  It felt empty because the discomfort was relieved, but it still held a residual amount of urine.  The bladder was desensitized and the sphincters were slow to close because of the abnormal stress and a prescription drug I was taking.  As a result, I leaked the remaining urine and wet myself over the following half hour or so, but was completely unaware of doing so until sometime later when I discovered my pants were wet.  After a couple of experiences like that, I started wearing a diaper anytime I couldn't be sure to get to a toilet when I felt the need to go.

My increasing reliance on diapers also had the effect of shortening the amount of time between voids.  When not diapered during the day, I found that I needed to go several times an hour depending on how much liquid I was drinking.  At night, I was getting up to go five or six times during the night.  When I was diapered, I would go whenever I felt the slightest discomfort.  When not diapered, even small amounts of urine in the bladder were uncomfortable, resulting in my needing to get to a lavatory with increasing frequency.

I saw my primary care doctor and mentioned the problem of waking up so often to urinate.  He prescribed Terazosin, which did reduce the frequency at which I had to go.  It did have some unpleasant side effects, like drying up my nose, clogging my sinuses, and giving me headaches.  I often found myself waking up at 4AM because my nose was so plugged up I couldn't breathe.  After taking the drug for about two years, I also discovered that I was having bladder control problems because the drug worked by desensitizing the bladder.

Eventually, I stopped taking the Terazosin because of the side effects.  My solution to the nighttime problem was to wear a diaper to bed and wet it instead of getting up every time I had to go.  Over time, my bladder emptied automatically and no longer woke me up during the night.

I saw two different urologists and both of them came to the same conclusions. I have a lazy bladder that no longer contracts forcefully.  There isn't any physical problem that they could treat and that I'd have to learn to manage the situation.  Diapers have been my preferred underwear since I was young (which was the reason I was a DL in the first place), so my management solution was to wear diapers 24/7.

So, to answer your original question, I'd have to say, 'Yes.  You are on the path toward becoming incontinent.'  If that's what you want, continue what you're doing.  Keep in mind, my incontinence developed over a longer period of time and later in life than your's is and thus had less of an impact on my career choices and life style.  Do some serious thinking about what you want out of life before you decide to allow incontinence to develop.

I'd also recommend that you see your doctor to make sure your bladder control problems aren't the result of some underlying medical problem.  However, if the doctor recommends a drug like Terazosin or another in that class of drugs to reduce the frequency that you urinate, I'd ask him about other non-pharmaceutical alternatives like bladder control exercises. 

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Hmm this is alittle scary but I have scheduled an appointment..

i don't wear often at all. I have trained myself to relieve and feel comfortable in a diaper. I pee frequently in a diaper. But I don't wear 24/7 and when I do wear it's like once maybe twice a week.

 

I would always find myself in situations where I would have to hold my pee in until I could go. But yes I will have the urge to go a lot and then when I pee not go a lot. I have noticed I pee a lot more frequently and this happened around last year. Ever since then.. I'm 23 btw 

Im trying to think if I've done anything to damage. I've held in my pee a lot which I know isn't good but when I do wear diapers I try not to resist at all. I can't describe it well enough but if you're crouched forward there is something inside of you that naturally blocks pee and you can hold your pee back with out this natural like wall. But what I did was I completely let go and sat in this way until the pee went past this.. hard to describe

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punk18, SIDincontinent,

it seems to me that both of you have what is called a neurologic bladder, which means that you bladder does not empty all the way and it retains a small amount of urine. Since your excretory process has already been tripped, even if only 5ml of urine remain, as your kidneys place more urine into your bladder, it simply weeps out. The urologist prescribing foley catheters is designed to empty the remainder of urine so it does not get to concentrated / bacteria rich and create an infection is only adressing the symptom rather than the actual problem. Enlarged prostrate is just one of the many causes a bladder does not empty, and I strongly suggest that firstly, both of you create a voiding frequency & amount chart (void into a plastic measuring jug, write down the time and the amount) for at least 7 days before you both set an appointment to see a qualified medical practioner. There have been hernia cases that have caused the symptoms you both described, so be prepared to undergo a number of tests from different specialists. This is curable.

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Just got back from the doctors appointment they're going to send a urine sample out for a culture he didn't see anything except a little protein in my bladder.  

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I'm guessing this was your primary care doctor. If you really want to find out what's happening, you're going to have to get a referral to a urologist. A urologist will perform urodynamics tests and may recommend an ultra sound scan to determine how well your bladder is functioning and whether there is any residual urine in the bladder after you're done voiding, as Babykeiff proposes above.  The primary care doctor will be able to diagnose medical conditions like diabetes, enlarged prostate, etc.; but generally isn't equipped to perform bladder function tests. 

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On 2017-01-01 at 6:52 PM, SIDincontinent said:

That's how my OAB/interstitial cystitis/incontinence  began. I began to notice I was in the bathroom frequently, and while I always made the bathroom in time I would leak until the next time I would use the bathroom. Sometimes bathroom trips were 10-15 minutes apart. I started keeping track of how many times I was in the bathroom per day and it started as 12 or so, then went to 15-18, then 20, then 25, then 30. On average I'm in the 20-30 times a day range with afternoons and evenings being the most busy. At night it was anywhere between 0-5 times getting up, some nights I'd sleep through the night, other nights was up 5 or more times (rarely more than 5 times) went to 14 doctors and nobody could figure it out. Urology prescribed Foley catheters, which my wife inserts weekly as she is a nurse.  So the only thing that has really helped has been the foley. I'm in diapers 24/7 to catch the small leaks. Even with the foley in. I use pullups at work under a uniform, usually don't take the foley to work, though.

Hi!

How do you manage to stay out of infections as you use diaper on you catheter? I have tried it twice but got infections both times. Otherwise it was interesting to get everything in place, get down in front of the computer and a few cans of beer on the table and get astonished how fast i got really wet.

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On 1/6/2017 at 3:09 AM, John64 said:

Hi!

How do you manage to stay out of infections as you use diaper on you catheter? I have tried it twice but got infections both times. Otherwise it was interesting to get everything in place, get down in front of the computer and a few cans of beer on the table and get astonished how fast i got really wet.

I don't let the catheter drain into the diaper. That would cause a UTI. I use a leg bag during the day and the overnight/bedside bag at night. I have a prescription for the catheters and associated equipment and it is paid for by my health insurance. I still wear diapers over the catheter as there is always some small leaks. But extreme caution must be exercised when using catheters as there is a very real risk of infection, which could kill you. My catheter care is very good, I've had 2 UTI's in 2 1/2 years of using catheters. The wife does all the catheter insertions since she is an ER nurse, but after she puts it in, I'm on my own for taking care of it and changing the bags etc.

On 1/5/2017 at 2:39 AM, babykeiff said:

punk18, SIDincontinent,

it seems to me that both of you have what is called a neurologic bladder, which means that you bladder does not empty all the way and it retains a small amount of urine. Since your excretory process has already been tripped, even if only 5ml of urine remain, as your kidneys place more urine into your bladder, it simply weeps out. The urologist prescribing foley catheters is designed to empty the remainder of urine so it does not get to concentrated / bacteria rich and create an infection is only adressing the symptom rather than the actual problem. Enlarged prostrate is just one of the many causes a bladder does not empty, and I strongly suggest that firstly, both of you create a voiding frequency & amount chart (void into a plastic measuring jug, write down the time and the amount) for at least 7 days before you both set an appointment to see a qualified medical practioner. There have been hernia cases that have caused the symptoms you both described, so be prepared to undergo a number of tests from different specialists. This is curable.

No, just overactive bladder (my diagnosis) and interstitial cystitis (from the doctors)

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Well. Did abunch of tests. Doc said everything was fine.. even though I piss still very frequently through the day and wake up to pee. I would love to wear at night but I sleep on my side and would then leak all the time.. plus for some reason I have trouble sleeping in diapers idk why. Maybe the kind I have are small 

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If you use disposable diapers, you're going to leak if you sleep on your side.  The only solution I've found is to use cloth diapers at night.

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I'm just curious as to why this is happening though.

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It was when I was in my early 20s that I started having similar problems as you, punk18.  I would have very sudden urges to urinate and would sometimes be peeing every 15-20 minutes.  I could easily be peeing 20 times daily.  This made life difficult but I never did anything about it except I began wearing diapers during my commute, etc.  It wasn't until 10 years or so later that I realized that it was caffeine that was causing my frequent urination.  Even if I just had one cup of coffee or tea my bladder would be very affected.   If I knew then what I know now!  

My advice is to cut all caffeine from your diet and see how your body reacts.

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2 hours ago, bobbyc said:

It was when I was in my early 20s that I started having similar problems as you, punk18.  I would have very sudden urges to urinate and would sometimes be peeing every 15-20 minutes.  I could easily be peeing 20 times daily.  This made life difficult but I never did anything about it except I began wearing diapers during my commute, etc.  It wasn't until 10 years or so later that I realized that it was caffeine that was causing my frequent urination.  Even if I just had one cup of coffee or tea my bladder would be very affected.   If I knew then what I know now!  

My advice is to cut all caffeine from your diet and see how your body reacts.

My urologist and continence nurse told me to quit caffeine and it would help my incontinence. I did for a while it helped a bit but not that much so as I was already wearing a nappy al the time I just went back to my usual Coffee intake.

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I don't even drink coffee haha. I will keep a little journal and write when I void and such so it isn't "in my head"

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I'd suggest you track both input and output.  Log what, how much, and when you drink something and when and how much comes out. 

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2 hours ago, punk18 said:

I don't even drink coffee haha. I will keep a little journal and write when I void and such so it isn't "in my head"

Remember all the other things that include caffeine in them, such as chocolate, energy drinks and especially soda pop such as Coke, root beer, Dr. Pepper, Mountain Dew and almost any soda weather it's regular or diet.  7-up and Sprite dosn't have caffeine as far as I know.

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On 7/1/2017 at 5:44 PM, SIDincontinent said:

I don't let the catheter drain into the diaper. That would cause a UTI.

 

SIDincontinent,

that is a common myth, It has no truth in it at all, which came from lazy nurses. It is easier for a nurse / medical assistant to change / empty a leg bag than to change a wet diaper - and some paitents can be taught to change / empty their own leg bag. For bed ridden patients, larger bags can be strapped to the side of the bed, and the job of changing / emptying the bag can be given to someone without medical training (ie not the nurse / medical assistant). Also, for bed ridden patients, if they need to soil, a bed pan can be supplied if need be. Most medical professionals prefer that the paitent not be in diapers as this creates extra work for the nurse / career = higher nurse to paitent ratio = higher cost = less profit. The medical industry is designed to extract the most money for the least work, where paitent care comes second, and paitent comfort, a distant third.

END RANT 

A UTI or urinary tract infection (infection somewhere between the kidneys the end of the urethra) is caused by something preventing the dispersal of bacteria in the tract. A catheter will cause this. The urinary tract does not secrete mucus or have high acidic contents in order to kill the bacteria that migrate into it. It uses the process of voiding to flush all bacteria out of the tract. A catheter, being a plastic tube, prevents the tract getting flushed, and allows for bacteria to multiply to damaging levels in the space between the catheter and the uretethra.

Methods employed to reduce the risk if bacteria are -

  1. Use an anibacterial lube when placing the catheter in the urinary tract.
  2. Sterile environment when inserting catheter
  3. Sterile catheter
  4. Sterile gloves

This will reduce the risk, not eliminate altogether.

It really doesn't matter what the outlet is drained into, as the flushing action of voiding will ensure that no bacteria will get inside the catheter and there for high enough to cause any problems.

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On 5/1/2017 at 8:45 PM, punk18 said:

Just got back from the doctors appointment they're going to send a urine sample out for a culture he didn't see anything except a little protein in my bladder.  

Protein within one urine could indicate a list of different issues. The doctor you seen, is he/she a urologist or a GP. A good urologist would look deeper, not state that you have a list of symptoms without a cure! Stating to SIDincontinent, and I also suspect that Punk18 was also told similar, that you are suffering from interstitial cystitis  Wiki Description is similar to saying that you will have balance issues, itchy feet, phantom pain, lightheaddedness, and we are sorry there is nothing we can do ... after your leg has been jammed in a door and is hanging on by a thread.

I strongly suggest that both of you get a second opinion. If it is the begining of bladder cancer (and I am NOT stating that it is), the symptoms you describe, plus the protien in urine is one of the very early signs.

1 Please read the Wiki Description

2 Get a second opinion - preferably from a qualified certified urologist, not your own GP. Your own GP may not have the skills / experience to deal with this considering that he/she is using terminology that was updated 2002 - 2010.

There are two names for the group of symptoms

interstitial cystitis/bladder pain syndrome Normally called ICBPS

OR

urologic chronic pelvic pain syndrome normally called UCPPS

These names have been in existance since 2007 approx., and if your doctor was up to date with his/her medical knowledge, he/she would not have made such an error.

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Catheter/bag assembly is a "closed system" when "closed system" is open (i.e. Draining in a diaper) that leaves an open pathway for bacteria to migrate up the catheter and into the bladder.  I clean and sanitize my bags morning and night alternating between bleach/water and vinegar/water to clean the bags and use alcohol preps to clean the end of the tubing where it attaches to the catheter whenever I change the bags. I don't ever leave the catheter open, this is asking for trouble. My wife is an ER nurse and she does the catheter insertions, she is quick and efficient, having done it thousands of times over a 17 year nursing career. I only use the bags for a week, two at most. Additionally, I shower and wash the urethral meatus one sometimes teice a day and clean with a baby wipe after every bowel movement. I must be doing something right since in over 2 1/2 years of being cathed every week I've had two UTI's with my last one being mid-November 2015. Her hospital policy doesn't allow for catheter insertions without a doctors order, they avoid them and use diapers wherever possible since many insurance companies will not pay for CAUTI (catheter associated UTI) in the healthcare system. Comsequently they don't often cath patient's unless there is a real need for it, urinary incontinence is NOT an indication for indwelling urinary catheter placement.

FYI, 

I've been to 14 doctors/providers:

1 PCP

5 urologists 

2 nephrologists

1 endocrinologist 

3 interventional neuro-radiologists

1 neurologist

1 functional medicine nurse practitioner 

its interstitial cystitis with co-existing overactive bladder I wasn't diagnosed until I got to the functional medicine nurse practitioner. The standard systems approach which is western medicine, treats groups of symptoms accordingly, bladder problems get cystoscopies, urodynamics workups, lab work (blood and urine) and medications. The first line medications for these groups of symptoms are the anticholinergics, which have a lengthy side effect profile and limited efficacy for most patients including myself. Trust me, I'm not new to this. I've been refractory to almost all standard treatments. Hence the Foley catheters.

 

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