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Showing results for tags 'urge'.
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Has anyone had the Interstim implant in the last year or two? How did it work for you (or not), and what should I expect? I've had urge incontinence for the last 16 years since a really bad car wreck. I've see a dozen different urologists for it and had been put on just about every incontinence med out there. To this day I still get uncomfortable (and sometimes painful) urges that I will pee in about 20 seconds- regardless if I make it to the bathroom or not. I always seem to wake up at least once in the night to pee my diaper, then roll over and fall back asleep again (if I can). Most urologist have seemed like they didn't know what they were doing, just didn't care, or were too focused on curing me that lost sight of just trying to improve my quality of life all together. Today I went to see yet another urologist, but this one actually seems to have gotten it and recognized I have over active bladder OAB that is causing my urges (probably from a spinal injury that went un-diagnosed from my wreck). He wants me to try a test week for an interstim implant to try and see if it cures me. If that doesn't work he plans on using botox to weaken my sphincter so I can pee without the urges and hopefully sleep at night. I've really come to like wearing diapers (leaks and all) so personally I think I would prefer option two for the intermediate/long term, but I have to jump though this hoop first. I'm scheduled for an outpatient surgery later this month to get the temporary electrodes implanted. I'm told that in about 80 percent of people who get it done, they see a 50 percent improvement or decreased symptoms. That sounds like a 40 percent success rate to me. The other 20 percent; apparently they get pain from the device, infections, or it just doesn't do anything. I'm hoping to stay objective though, who knows I may still help.
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So if anyone has followed my posts in the past they would know I've been trying to get a double sphincterotomy lately. For those who haven't, let me explain. I'e always loved wearing diapers for as long as I can remember. About 18 years ago I got into a bad car wreck and have had urge incontinence ever since. Now I certainly do like the diapers but my urges are annoying at best and painful at worst. I've had every med for incontinence, and even a few surgeries to try and eliminate my urges. This has actually made things worse for me as I would just flood my diapers before, but now I also have an obstructive sphincter which means I have a hard time peeing as well. This is like a double wammy on me now since the longer it takes for me to pee the more painful my bladder gets. I'd like to also point out that my urges are most likely a result of neurogenic bladder caused by spinal shock and spinal bruising from my wreck. As such I do not have a conscious control over my bladder that I could choose to give up. This means the 12 month program, or just keeping it relaxed down there, just won't work on me. Nor will hypnosis. About 8 years ago I came to realize that there just wasn't a "cure" out there for me- no matter what my urologists wanted to try. That's when I started looking for ways to make me pee openly without my bladder ever filling up. Thereby eliminating my urges out right, and as a bonus, allow me to sleep through the night. The hard part has been finding a urologist that first, won't focus on solely curing me with more pills. And second, will actually listen to what I want, to help me cut my losses and focus on improving my quality of life. I think I may have found one at my local mayo clinic though. My first appointment with him seemed to have gone pretty good, but now he seems to be wavering a little. He now want's to do another urodynamics test on me- the third one now in a single year. His main concern seems to be that urogists just haven't done sphincterotomies in 6 years now (where was I 8 years ago then). I've written him a personal letter in the hopes it will persuade him to do it, but it seems this is still all in the air. I'm worried this won't work out for me as I see no other realistic alternative for me. I'm still holding out to the hope he will focus on doing me good instead of failing that and doing no harm, but we'll see.
